Re: neurosurgeon venting........

January 31, 2002

:

Yep, sounds like an unfortunately common neuro.. What a moron!

Be thankful you got Grace her helmet & more importantly things are

going so wonderfully well in it. I'm so happy she's doing so well in

it. That's terrific. Try to ignore what your neuro said, he's

obviously clueless! Heck with him!

Debbie Abby's mom DOCgrad

MI

> Okay can I first say that everything everybody said about the

> neurosurgeons not being too helpful was sooooo true! I knew more

then

> he did (or at least as much ha ha) I am just thankful that we

didn't

> go to see him first and that we went backwards and got the helmet

> first because I think if we would have gone to see him first he

would

> have screwed everything up. He reminded me of the people here who

> have said that their ped/neuros said " oh it will round out. " And

his

> exact quote was " eventually everybodys head rounds out and is

perfect

> so that should really not be a concern. " Maybe he should talk to

> some people on this site! He said that Graces plagio was very mild

> (she has been in the helmet for a month with correction which I am

> not sure he took into consideration) and he said if it weren't for

> the tort he would have never put her in a helmet (because of that

> whole everybodys head rounds out perfect eventually thereoy I am

> sure!) But due to the tort he was ok with it (too late buddy she is

> already wearing it so we really don't need your ok!) Then he

measured

> her head and said that we just need to get her tort worked out (no

> duh!) and it will be fine. He also recommened taking pictures (no

> duh again like we haven't been doing that!) I am sure he made a

nice

> $200-$300 dollars from that 10 minutes of brillance!! Thank

goodness

> for her orthotist who is tracking her and said today that her

> progress is coming along so well that at 2 months in the helmet we

> might be able to start decreasing the time in the helmet. The PT

> still is working on her tilt. ROM is great and she can be taken

> through all of the stretches it is pretty much up to her now to use

> it and tilt it so we continue to work hard on her! Ok just had to

> vent sorry this is so long but I found it quite funny and very

> predictable from what everyone here said it would be!!! and

> Grace

February 1, 2002

Grace,

I can't help giggling at this post! Reminds me of my ranting and

ravings about our neuro when Leigha was first diagnosed. I need to

go to school for my medical degree so I can shrug and say a few

obvious words and make as much money. I don't know why so many

neuros's seem to have a God complex but I think there a few lucky

people here who had wonderful nuero's...I am just thankful that

Leigha only has to see Dr. Colyer the rest of her childhood and not

the nuero who assisted him...lol

Great to hear that things are coming along wonderfully and keep your

chin up..at least you have the DOC during the winter months...the hot

sweaty summer was no fun!

Hugs,

Mel