Re: Re: New and anxious-neurosurgeon next Wed.

[Guest guest]

,

Great news!! Good luck at your appt. When I saw the neuro, I already knew my son had tort- just didn't expect him to say my son was the worst case he'd seen (for tort)- then left me with my mouth open and told me to find a pt on my own (that was it, didn't care to see him for 6 months!). Since your child also favors one side, please ask the neuro for an MRI to get a dx of torticollis, or to rule it out. Also, ask about helmet therapy and the process. It sounds a lot like tort, so you should ask for a referral for a physical therapist in pediatrics/infants. Check into the torticolliskids for a better understanding of tort and its symptoms. Please feel free to email if I can help you on this topic.

Whatever the neuro tells you, just know that you are getting so much education about this, and so much support here online, that you have the direction and the drive (obviously, your here!) to do what it takes to get resolve. I'm happy to say my son is doing just fine, resolved from tort after agressive pt and DOC band worked wonders. My neuro did not know about DOC bands, so I went that route alone- even my ped advised against it. Only you as Mommy and Daddy can determine what needs to happen when all is said and done in my opinion (after your fully informed). Ask the nuero all the questions that pop into your mind- there are no stupid questions! Make him/her work for that money!! Good luck to you at your appt. and please keep us all posted!

' Mom

[Guest guest]

-

Hooray! Sounds like you have really got the ball rolling! Good for you. I

cannot believe how quickly everyone is moving on this - you are very, very

fortunate. Please let us know how the appointment goes and I will be praying

for you. (I believe in the power of prayer also - I'm convinced that is why

my baby is here today!!)

Marci (Mom to )

Oklahoma

[Guest guest]

Forgot to address that: I believe in the power of prayer too! I have the Virgin pic taped to my wall over looking a pic of !

' Mom

[Guest guest]

Hi, and thanks to everyone who responded to New and

Anxious. God has been answering my prayers

quickly(don't know if you believe in the power of

prayer,but I know it's there!) After I read the

article in the baby mag., got onto the website,joined

this group, and read a couple responses, I emailed a

nurse of a ped. neurosurgeion who's address I found on

a link to the Univ of MO.on the plagio website. I

actually live in Columbia MO, where the Univ. is and

she emailed me right back with a suggestion to have my

son seen in their clinic and said she could squeeze

him in next week if I could get a referral from my Dr.

I was a little nervous about that, because I was

afraid since my Dr. said not to worry about it , she

might be a little irritated that I was suggesting

this, but she was very cool. So, we have an appt. with

Dr. Jiminez at the Univ. next Wed. Thank you all so

much for your emails, and if you have specific sugg.

of what to ask or experiences with your first visit,

let me know! Kaneko(mother of Kai Shalom)in

Columbia, MO.

--- lisbell0115 <lisbell0115@...> wrote:

> Just thought I would share my story as well with

> you. I noticed my

> daughter's head being flat on one side at about 3

> 1/2 months. I also

> noticed at this time that she preferred to look to

> one side as well,

> making the flat spot worse. She, like your baby

> could look to the

> other side, but preferred not too. When I mentioned

> it to the

> pediatrician, she agreed and made a diagnosis of

> plagio and

> torticollis. We have been seeing a physical

> therapist for about a 1

> 1/2 months and have seen great improvement on the

> torticollis. Even

> though I didn't realize it at first, she didn't turn

> her head

> completely to the other side, and had a slight tilt.

> Your baby could

> be doing this too, without you really noticing,

> unless you really

> look very carefully. Not that I am saying you

> haven't been careful,

> just that it was hard for me to see, not being a

> trained

> professional, and our case being mild.

>

> At the same time, we have been monitoring her flat

> spot and looking

> for improvement. Again her case of plagio is mild,

> so we have been

> trying repositioning, fighting a hard battle because

> of the tort.

> After almost 2 months of monitoring, we made the

> decision to band.

> Our STARBand has been ordered and we should get it

> next week. We have

> had some recommend against the band, becuse she was

> mild, but I felt,

> along with her pediatrician (which is rare) that we

> should go forward

> and get it corrected. I really think Mom & Dad know

> best in most

> cases, so go with your gut feeling.

>

> I think maybe since you are noticing the flatness

> significantly and

> the possible torticollis that you should really push

> to go to a ped.

> neurosurgeon. As others have said they can help you

> to make the final

> decision and to give you a recommendation. That way

> you can be more

> assured of what you are or are not dealing with in

> your case.

>

> Good luck. It sounds like you are doing the right

> thing by noticing

> and being proactive.

>

>

> Mom to Naomi (STARBand - next week)

> Georgia

>

>

> > HI, everyone, I'm new to this group, just signed

> up because I have

> a

> > 5 and 1/2 mo. old who has a lopsided head! I've

> been mentioning it

> to

> > my family prac. doc. for as long as I've been

> noticing it, and she

> > keeps saying not to worry about it. People keep

> noticing it and I'm

> > getting worried, but don't want to be too

> overanxious since she is

> so

> > laid back about it, she says it will go away when

> he is sitting up

> > more and moving around more. We've always laid him

> on his back to

> > sleep like good parents, and he's always wanted to

> turn his head to

> > one side, we tried alot of things, like blanket

> rolls, etc, but he

> > always managed to scootch the way he wanted to. He

> turns his head

> the

> > other way without any trouble that I've noticed

> anyway, just

> prefers

> > to turn it the one way. Should I press my Dr. for

> a referral, or is

> > there a chance it will reverse itself. I don't

> want him to wear a

> > helmet unless he really needs it, I guess, and am

> afraid if I go to

> a

> > specialist that's automatic. Any advise?

>

>

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