Re: Can anyone help me?

[Guest guest]

I havent been on here too much but I know a few people in England who

have been getting treatment over there even on the NHS. Go up to top

corner and press words in like UK and NHS and Dr Bletcher(maybe spelt

wrong) ans see what you get from archive posts till someone gives you

more imfo... sorry I cant be more helpful.

Lorraine.

--- In Plagiocephaly@y..., " eleanorsheppard " <eleanorsheppard@y...>

wrote:

> Hi there - i've just found out that my little boy on - 5 mths

> hads positional plagiocephaly. I'm really upset as all the

> information i've received is based in the USA - does anyone out

there

> have any information on specialists and techniques used in the UK?

>

> desperately awaiting information,

> thanks

> Eleanor

[Guest guest]

Hi Lorraine,

Thankyou so much for your help - still looking!!

With Kindest regards,

Eleanor

> > Hi there - i've just found out that my little boy on - 5

mths

> > hads positional plagiocephaly. I'm really upset as all the

> > information i've received is based in the USA - does anyone out

> there

> > have any information on specialists and techniques used in the UK?

> >

> > desperately awaiting information,

> > thanks

> > Eleanor

[Guest guest]

Hi Eleanor,

My son was treated for plagio in UK. We saw a German doctor, who

comes to Kings College Hospital, and treats children here. He is

excellent doctor, and you can contact him on email

Joerg.C.Blecher@... .My email is

aleqsandra@... for any questions (I'm sure you have a lot of

those ). With your son being just 5 months you can have great

results.He uses bands that are same as DOC bands. I know that there

is a doctor in Bristol, that some people used, he makes a helmet, and

that is covered by NHS. If you see doctor Blecher, you'll probably

have to pay ( maybe something changed since we graduated ).We were

also referred to that doctor in Bristol, but because my son Boris was

already 16 months at a time, it was quicker to see Dr.Blecher. I'm

sure I can find a letter somewhere with his details. But if I don't,

hopefully some here who saw him will read your message and help you.

Please, feel free to ask any questions.

Good luck!

Aleksandra- Boris's mum (DOC grad 28/11/2001 )

[Guest guest]

Hi Eleanor:

Welcome to our group! We have a lot of UK members in our group. I

searched the archives and found this message that could be of help to

you. This was posted 2 or 3 mos ago by another UK member, he posted

this info. to be of any help to other UK parents like you. I really

hope this helps some: Here you go: Debbie Abby's mom Michigan

> Hi,

>

> We recently found this group very useful as we were desperately

> searching round to figure out what was best for our daughter Molly

> and things were quite confused here in the UK.

>

> I therefore wanted to post something about the UK in the hope that

> others may find this posting in the future.

>

> (FYI, Regarding Molly it turns out that her case is quite mild and

> does not require helmet therapy.)

>

> 1. In the UK things are very confused but it is clear that you

child

> should go and see one of the four regional craniofacial centres in

> Liverpool, Birmingham, London and Oxford.

>

> These guys are very negative on helmets but are the real experts.

>

> 2. For the helmet point of view, there is only one guy to talk to

and

> that is Dr. Blecher. You can find a link to him on the website and

> his email is: Joerg.C.Blecher@c...

>

> 3. There is a guy in Bristol who is doing helmets. I haven't met

him

> and didn't get a helmet off him but my strong feeling is that Dr.

> Blecher is more experienced and offering a much higher quality

> soltuion.

>

> I hope this is of use and thanks to all for your help up to now.

>

> Cheers,

>

> Van Buren

[Guest guest]

,

You've come to the right group. Many of us have shared your experience

with the broken worker's comp. system. I am in year four now and still

haven't had my day in court. My worker's comp. attorney continues to

make excuses why he can't bring it to trial yet despite the

documentation from numerous doctors stating the health compromises

from the sick building and a state qualified medical examiner that

states my health compromises are 100% from the building.

I too had the ceiling tiles raining down on me and they all

mysteriously disappeared when the OSHA inspector arrived to

investigate and supposedly take samples.

The attorneys are right...these cases are too " hard " to prove and in

fact the powers in charge have made it so. My lawyer told me I didn't

have enough money to do a thorough investigation of the building when

I went out and of course he wasn't going to fit the bill.

To be honest, I wish I would have done a personal injury case instead

of worker's comp because others employed by my employer did this and

won. I'm sure others can speak to the advantages and disadvantages of

doing another case besides workers comp.

Personally if it were me I would NOT give away any of my personal

medical documentation. They will try to " prove " that your

exposures/health compromises are from some cat you had in 1990 or

Claritin that you took in 1996. They want to prove some pre existing

thing that will deny that you got anything from their

building...beware....

Hopefully the environmental doctor knows mold exposures.

So sorry your fellow workers signed the false statements. OSHA wrote

in their report that several people at my site were interviewed but in

reality none of the ones listed that I spoke with were every

interviewed. This is part of the game...only it isn't funny is it?

Did you get any photos before you left? Do you have any friends who

can photograph the conditions for you?