UPDATE - Desparate Parents in the UK

[Guest guest]

Hi everyone,

First off I would like to thank everyone who posted a response to my

appeal to find a specialist who I can see about my 8 month old baby

daughters head.

Loads of you responded with encouragement, advice and directions in

where to look and as a result I've now found a german doctor (Dr

Blecher) in London who understands this condition. I'm in the process

of making an appointment to see him and hopefully all will be right

from there onwards.

If there are still issues however which cannot be resolved in the UK

then I will take her to the Boston Childrens Hospital as I have been

contacted by several UK parents who have been there as well as some

American parents who have all said how good it is. It also is easier

to get to from the UK which I exepect is a nightmare flying for 7

hours with an 8 month old who gets bored easily

Its great to know your not alone out there and all the comments and

feedback has been brilliant. Thank you everyone for that.

I will of course let everyone know how baby Tegan is getting on.

We're seeing out local doctor on Wednesday to resolve any insurance

details and then on to see Dr Blecher.

Thanks again

Nick and Tegan