Re: Hi, new member with questions...

[Guest guest]

Hi Darcy and welcome to the group! We recently just had a member

here asking about doctors at Toronto Sick Kids. (I'm not from Canada,

but I'm pretty sure this is the only place in Toronto that provides

bands, I could be wrong though) Anyway, our wonderful group owner

did a search in the archives and came up with the name of two doctors

at Toronto that one of our members used. Here is the link to that

post:

Plagiocephaly/message/16817

My son Danny also had the brachy head shape and I'm trying to

remember if he had any bumps like the ones you are describing. I

think he might have had bumps right above each ear, but it was

nothing that I or any of my doctors, including the neurosurgeon were

concerned about. To keep Madeleine off the back of her head, while

she is sleeping put a rolled towel behind her so that she stays on

her side. Also, try putting something interesting off to the side so

that she turns her head. And of course, try to give her plenty of

tummy time!

Good luck Darcy, I hope you are able to get the help you are looking

for. And again, welcome to the group!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi, my daughter, Madeleine is almost 10 months (she was born

> prematurly so her corrected age is close to 8.5 months). She has

had

> a smallish indent at the back of her head for several months now

that

> we have been hoping would go away. Unfortunately it is still there

> and we have noticed a couple of bumps develop on the right and left

> sides of her forehead. I was supposed to get X-rays today but they

> wouldn't take them at the clinic i went to since she squirmed too

> much.

>

> After spending many hours researching this weekend, i believe she

may

> have brachyplagiocephaly (no assymtry of the face but a flat head

at

> the back). Its the small bumps that have develop that have me

really

> worried right now.

>

> I'm located in Toronto, does anyone here recommend a doctor at any

of

> the hospitals (i'm waiting right now for my paediatrician to call

me)?

>

> Also, if your child has brachy what kind of repositioning

techniques

> can you do? She sleeps right on the back of her head and i'm not

> sure how to get her head to lie right or left...? Did your

> son/daughter have this small indent as well?

>

> Thanks in advance,

> Darcy Hall

> Toronto

[Guest guest]

Hi Darcy:

Welcome to our group! I see you've already gotten 2 great response

for repositioning as well as help finding a Dr in your area. I hope

those are of help to you. My daughter had plagio. and I never

noticed any small bumps anywhere on her head like you are

describing. I really wish I could be of more help to you .

Check out the link Niki gave yuo as well as the www.plagiocephaly.org

website for good repositioing tips. You could also check out

our " bookmark " section in the group for other information that might

help you.

Too bad they couldn't get the xrays done, gee imagine a 10 mo old

squirming too much!!! Shocking!! Did you reschedule them?

Please let us know of anything you find out with the information

given to you - good luck!

Debbie Abby's mom DOCGrad

MI

> Hi, my daughter, Madeleine is almost 10 months (she was born

> prematurly so her corrected age is close to 8.5 months). She has

had

> a smallish indent at the back of her head for several months now

that

> we have been hoping would go away. Unfortunately it is still there

> and we have noticed a couple of bumps develop on the right and left

> sides of her forehead. I was supposed to get X-rays today but they

> wouldn't take them at the clinic i went to since she squirmed too

> much.

>

> After spending many hours researching this weekend, i believe she

may

> have brachyplagiocephaly (no assymtry of the face but a flat head

at

> the back). Its the small bumps that have develop that have me

really

> worried right now.

>

> I'm located in Toronto, does anyone here recommend a doctor at any

of

> the hospitals (i'm waiting right now for my paediatrician to call

me)?

>

> Also, if your child has brachy what kind of repositioning

techniques

> can you do? She sleeps right on the back of her head and i'm not

> sure how to get her head to lie right or left...? Did your

> son/daughter have this small indent as well?

>

> Thanks in advance,

> Darcy Hall

> Toronto

[Guest guest]

Hi Darcy,

I live in Burlington and am currently waiting for an appt. with Sick

Kids to discuss my son's plagio. I can't recommend anyone yet, but

I'll let you know how my appt. goes when (if ever) they call me. lol.

I spoke to a receptionist at the crainal facial dept. (I think

that's what they were called) and she told me that they currently

have 40-50 children on the wait list. She was hoping to get us in

by March where my son is now 6 1/2 months old.

I would push for your ped. to make the referral now if you want a

further assessment completed regarding his head shape.

Good luck and keep us posted.

Dana (mom to )

Ont.

> Hi, my daughter, Madeleine is almost 10 months (she was born

> prematurly so her corrected age is close to 8.5 months). She has

had

> a smallish indent at the back of her head for several months now

that

> we have been hoping would go away. Unfortunately it is still

there

> and we have noticed a couple of bumps develop on the right and

left

> sides of her forehead. I was supposed to get X-rays today but

they

> wouldn't take them at the clinic i went to since she squirmed too

> much.

>

> After spending many hours researching this weekend, i believe she

may

> have brachyplagiocephaly (no assymtry of the face but a flat head

at

> the back). Its the small bumps that have develop that have me

really

> worried right now.

>

> I'm located in Toronto, does anyone here recommend a doctor at any

of

> the hospitals (i'm waiting right now for my paediatrician to call

me)?

>

> Also, if your child has brachy what kind of repositioning

techniques

> can you do? She sleeps right on the back of her head and i'm not

> sure how to get her head to lie right or left...? Did your

> son/daughter have this small indent as well?

>

> Thanks in advance,

> Darcy Hall

> Toronto