Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Paige, First let me say welcome and second - you are not alone! So many of us have been right where you are at this point. I think you are doing the right thing by getting an appointment with CT. You will get an honest opinion about whether or not your baby would benefit from a band from them. Getting a second opinion from another specialist is also a good idea. Did you get the first specialists name from our page or from CT's page? We should definitely remove him from the list if he is on our page! It's great to hear that you had some success from the repositioning. That's really hard work! Let us know how the consult with CT goes on Monday. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Hello. My son was almost 11 months when he got his helmet on. Like thousands of others, we were told that his head would "pop out". He is 17 months now, and will be wearing it for another 7 months. 13 months is a long time, but I decided that if we did'nt do it, the same 13 months would pass by anyway, and I did'nt want to have any regrets. It's true that we won't see the same results had we started therapy earlier, but we all have to remember that it is not life threating. We had a little scare with my son a few weeks ago, so having a little crooked head that his hair will cover anyways, seems pretty small. We went through the same thing that you are going through, and it is hard, because we only want what is best for out little babies,so the only thing that I can suggest is to go for it. It took my son less than 5 minutes to get used to his helmet, and he has never had trouble sleeping in it. It's funny how little people can adapt so well. Good Luck on your decision!!! Lori. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Hello Group, I've been following your email for a few days. I have a 12 month old with plagiocephaly. We noticed it early on, but were told by our pediatrician that it would round itself out. She continued to " reassure " us at each visit. Then, I came across an article on plagio in a magazine I acquired from her office! I let her know that I understood that by 12 months, head growth slows down considerably and reasserted my concerns for my baby's lopsided noggin. She agreed that I could see a specialist. I went yesterday to a neurosurgeon listed as a preferred physician on the plagio website. Since he was listed, I was really confused when he said that he rarely if ever prescribed the bands because there was no evidence that it had any effect except in the most severe cases. He basically said the whole thing was a scam. He went on to say that the only research that supports the use of banding is research done by the companies who sell the bands. He seemed to think there was nothing I could do but to let nature takes its course. My son's head has improved somewhat since we first noticed it. I did reposition him, but did not do so aggressively as my pediatrician only suggested it as an afterthought and seemed to indicate that it was optional. I am frustrated with her, to say the least. When we first became aware of the problem, we definitely noticed asymmetry in the eyes and some of the other facial features associated with the condition. They have significantly improved, but we still notice one ear appearing higher than the other. His condition may be considered mild at this point, but it is still noticeably flatter on one side. I have a consult with Cranial Tech on Monday. I also have an appt. with Dr. Day earlier that day. I live in the Dallas/Fort Worth area and wonder if there is anyone out there in my neck of the woods who might refer me to a competent and objective doctor. I truly believe the neurosurgeon I visited was a pompous a@#! Still, I am feeling very confused. I don't want to put my baby in band, but I do want him to have a more normally shaped head, of course. That doctor really threw me for a loop. I'm open to any advice. Thanks for letting me vent. Paige Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Hi Paige and welcome to the sight-please fill us in on the name of the DR that you saw first- I am interested to know. My son was seen and evaluated by DR Day when we lived in Plano. I LOVED HIM! He is wonderful and a very thorough and good dr. He definitely believes in banding babies-my son was banded at 3 months and there is generally someone in the office from CT that can tell you about the whole process. He is wonderful thorough and I think you will really like him. He will take good care of you. I am glad you found the board and have been so proactive in getting an evaluation for you child. Please keep us updated on the progress and the results of your appointment and keep up the great mommy work! beck Mom to Memphis, TN doc grad Quote Link to comment Share on other sites More sharing options...
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