Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Hi I am so glad to hear Tylers surgery went well. Glad he is doing good. I cant imagine how tired you must be after the hospital stay and having to hold him constantly. Poor little guy probably was scared and confused and just wanted mommy. Also wanted to let you know I went and voted for your little cutie! I hope he wins. Christi mom To MYA > Hi everyone. It has been a while since my last post. we have had a > lot going on. 1st thing is that Tyler just celebrated his 1st > birthday on february 21st. He was a happy little munchkin in his > happy day. > > Tyler just had surgery on wednesday the 27th. His Neuro-Surgeon at > NYU placed a small catheter into one of the ventricles in his brain > to measure intra cranial pressure. The stay in the hospital took a > very big toll on me because he had so many wires of all sorts hanging > off him, that every minute he was awake he had to be in my arms. The > most important wire was attached to the catheter in his brain and > even though he had mitts on his hands by the 2nd day he pulled the > plug out several times. He was so unhappy because he recently learned > to crawl and he was restricted from everything. > > The worst part happened at 4:30 this morning, when i woke up to him > screaming. He had managed to pull the entire catheter out of his > head. He was wearing like a turban wrap so he could'nt really touch > it so he may have rolled in his sleep and goyt tangled, but the > moniter was reading negative #'s and i knew that could not of been > good. Everything was and is ok, the monitor can't be placed back in > without another surgery but it was due to come out today anyway. The > overall stay was pleasant and the PICU nurses were really good. > > We are home now and hes a little cranky but we will get through it. > There is one thing that i am excited about, when i read my e-mail > this morning they told me that Tyler made it to the final round of a > photo contest that he's in. If any of you have the time go in and > vote for him please. He's the only baby in a helmet!! > > theparentsite.com/contest/baby/vote.asp > > Speaking of the helmet, that wont be able to go back on until the > stitches come out in 2 weeks. He was actually due to graduate that > stepping stone around his 1st birthday so i'd imagine that it may not > even go back on. We'll see. > > Thanks again for listening. Here is the link for the photo contest. > (if it isnt a link, the just copy & paste) Thank you all. Alison > > theparentsite.com/contest/baby/vote.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Alison: Well, I am happy that yet another surgery in little Tyler's life is behind him & he seems to be doing well. I can imagine how difficult it was - he sounds like a real fighter which is amazing. You are an incredibaly strong mom, my heart goes out to you & your entire family. Thank you for the update. A happy belated 1st Birthday to the sweetie! A congratulations on him learning to crawl as well . Let us know when he can put the helmet back on & how his head progresses. Wishing you NOTHING but the best . Debbie Abby's mom DOCGrad MI > Hi everyone. It has been a while since my last post. we have had a > lot going on. 1st thing is that Tyler just celebrated his 1st > birthday on february 21st. He was a happy little munchkin in his > happy day. > > Tyler just had surgery on wednesday the 27th. His Neuro-Surgeon at > NYU placed a small catheter into one of the ventricles in his brain > to measure intra cranial pressure. The stay in the hospital took a > very big toll on me because he had so many wires of all sorts hanging > off him, that every minute he was awake he had to be in my arms. The > most important wire was attached to the catheter in his brain and > even though he had mitts on his hands by the 2nd day he pulled the > plug out several times. He was so unhappy because he recently learned > to crawl and he was restricted from everything. > > The worst part happened at 4:30 this morning, when i woke up to him > screaming. He had managed to pull the entire catheter out of his > head. He was wearing like a turban wrap so he could'nt really touch > it so he may have rolled in his sleep and goyt tangled, but the > moniter was reading negative #'s and i knew that could not of been > good. Everything was and is ok, the monitor can't be placed back in > without another surgery but it was due to come out today anyway. The > overall stay was pleasant and the PICU nurses were really good. > > We are home now and hes a little cranky but we will get through it. > There is one thing that i am excited about, when i read my e-mail > this morning they told me that Tyler made it to the final round of a > photo contest that he's in. If any of you have the time go in and > vote for him please. He's the only baby in a helmet!! > > theparentsite.com/contest/baby/vote.asp > > Speaking of the helmet, that wont be able to go back on until the > stitches come out in 2 weeks. He was actually due to graduate that > stepping stone around his 1st birthday so i'd imagine that it may not > even go back on. We'll see. > > Thanks again for listening. Here is the link for the photo contest. > (if it isnt a link, the just copy & paste) Thank you all. Alison > > theparentsite.com/contest/baby/vote.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 Alison, Thank you for the update on Tyler. I'm so glad to hear that Tyler is doing well, and crawling...woohoo! You are an incredibly strong woman and a terrific mommy! Rion and Tyler sure are lucky little guys to have you! Niki Kaylie & Danny (STAR grads) Phila., PA > Hi everyone. It has been a while since my last post. we have had a > lot going on. 1st thing is that Tyler just celebrated his 1st > birthday on february 21st. He was a happy little munchkin in his > happy day. > > Tyler just had surgery on wednesday the 27th. His Neuro-Surgeon at > NYU placed a small catheter into one of the ventricles in his brain > to measure intra cranial pressure. The stay in the hospital took a > very big toll on me because he had so many wires of all sorts hanging > off him, that every minute he was awake he had to be in my arms. The > most important wire was attached to the catheter in his brain and > even though he had mitts on his hands by the 2nd day he pulled the > plug out several times. He was so unhappy because he recently learned > to crawl and he was restricted from everything. > > The worst part happened at 4:30 this morning, when i woke up to him > screaming. He had managed to pull the entire catheter out of his > head. He was wearing like a turban wrap so he could'nt really touch > it so he may have rolled in his sleep and goyt tangled, but the > moniter was reading negative #'s and i knew that could not of been > good. Everything was and is ok, the monitor can't be placed back in > without another surgery but it was due to come out today anyway. The > overall stay was pleasant and the PICU nurses were really good. > > We are home now and hes a little cranky but we will get through it. > There is one thing that i am excited about, when i read my e-mail > this morning they told me that Tyler made it to the final round of a > photo contest that he's in. If any of you have the time go in and > vote for him please. He's the only baby in a helmet!! > > theparentsite.com/contest/baby/vote.asp > > Speaking of the helmet, that wont be able to go back on until the > stitches come out in 2 weeks. He was actually due to graduate that > stepping stone around his 1st birthday so i'd imagine that it may not > even go back on. We'll see. > > Thanks again for listening. Here is the link for the photo contest. > (if it isnt a link, the just copy & paste) Thank you all. Alison > > theparentsite.com/contest/baby/vote.asp Quote Link to comment Share on other sites More sharing options...
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