RE: What exactly is experimental was MODERATOR: Treatment centric ....

[Guest guest]

Hi Ken and others --

Since I'm relatively new to this list and haven't been following treatments

for some time, I'm not exactly sure what is " experimental " treatments

nowadays. I tried what was available in 1990 -- so much has changed by

then. For example, when I tried Kutapressin in 1990, it was most assuredly

experimental as most things were then but not sure if it is now.

And in some cases, something I might consider not experimental my doctor may

because it's not mainstream, such as supplements. Is there a source for a

quick version of what's what? I know it may not exist but if it does,

great. If not, I'm educating myself as fast as I can. In fact, to bring

myself up-to-speed, I've gone to the first post for the experimental site

and am reading post-by-post. Of course, that would take a fair amount of

time but it is very helpful and educational.

To the issue of what's experimental, what's not, there's a number of things

that are listed in the 1999 posts I'm wondering about in terms of the

current thinking or status:

* Ampligen

* Interferon

* Transfer Factor

* Mannatech products

* Kutapressin

* RNase-l

* ImmunePro

Thanks,

Laurel

MODERATOR: Treatment centric ....

Discussing shampoos for hair and dying may be helpful for some

members -- but this is very much off topic.

As a reminder for NEW MEMBERS --- this group is

* EXPERIMENTAL TREATMENT orientated....

and that means it is not about *conventional* treatment that is

generally known and practised by MD's familar with CFIDS.

It can be tempting to try doing everything on one board... CFSFM

Experimental is NOT the board to do it on.

This group is intended for those that have gone thru 2,3,4,5 or more

conventional treatment without success. If you are new to treatment

issues, there are many good books out there.

I am about to create a seperate list CFSFMNONEXPERIMENTAL

http://groups. <CFSFMNonExperimental>

/group/CFSFMNonExperimental

This is an offshoot from for discussion by those

doing non-EXPERIMENTAL treatments - for example, From Fatigue to

Fantastic by Dr. Teitelbaum , or doing Fibromyalgia & Fatigue

Centers, Inc.

Please post in the appropriate group