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Hi, all.

I did go to the final day of the Multiple Chemical Sensitivities

Case Definition Workshop today. I'm pretty blown out, so I won't

write a detailed report tonight. I just want to say that I thought

it came out better than I had hoped it would. The working groups

really buckled down and cooperated and worked out compromises, so

that they came up with a pretty good draft for the case definition.

It's a clinical case definition, which is what I had hoped they

would develop, since I don't think enough is known to write a very

tight research definition. So I was happy about that.

The groups presented their output this morning, and then there was

more discussion from everyone present, and suggestions were made for

changes. It ended up with a committee of ten people who have agreed

to consider the suggestions and then come up with a final document

that will be sent out to the participants for comment again, and

then finalized and published. This may take a couple of years, but

I do think a good foundation has been built, and a good product

should come out of it. I learned that the CDC was invited to send

representatives to the workshop, but they did not do so.

More later.

Rich

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Looking forward to that report!

rvankonynen <richvank@...> wrote: Hi, all.

I did go to the final day of the Multiple Chemical Sensitivities

Case Definition Workshop today. I'm pretty blown out, so I won't

write a detailed report tonight. I just want to say that I thought

it came out better than I had hoped it would. The working groups

really buckled down and cooperated and worked out compromises, so

that they came up with a pretty good draft for the case definition.

It's a clinical case definition, which is what I had hoped they

would develop, since I don't think enough is known to write a very

tight research definition. So I was happy about that.

The groups presented their output this morning, and then there was

more discussion from everyone present, and suggestions were made for

changes. It ended up with a committee of ten people who have agreed

to consider the suggestions and then come up with a final document

that will be sent out to the participants for comment again, and

then finalized and published. This may take a couple of years, but

I do think a good foundation has been built, and a good product

should come out of it. I learned that the CDC was invited to send

representatives to the workshop, but they did not do so.

More later.

Rich

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On 8/7/06, rvankonynen <richvank@...> wrote:

> Hi, all.

>

> I learned that the CDC was invited to send

> representatives to the workshop, but they did not do so.

Good. They screw up everything they touch. Typical of their not

giving a crap, but better in the long run.

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