Guest guest Posted December 16, 1999 Report Share Posted December 16, 1999 Based on my experience and my doctor's advice there is no reason to switch to another. But if the mino doesn't seem to work this time you might switch later. PJ > From: Amy M <amyinak@...> > > Hi Group, > > For various reasons I have not been on AP for the last > month. I was taking 200 mgs. minocycline everyday. > Lately I have been trying the antifungal treatment and > for no good reason stopped taking Mino. Yesterday I > got my test results back and my sed rate jumped from > 42 to 60. My ASO is positive again and I'm > discouraged. Can I simply go back on Mino right now or > do I need to switch drugs since I took it for almost 2 > years and then stopped. What do I do? > > Ps: No conclusive results on the antifungal treatment > yet. However, my reactions are becoming less and less > severe and my doc says that must mean something. > Perhaps it means that I will begin to see some > benefit. I'll let you know > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 1999 Report Share Posted December 16, 1999 Dear Amy, You can restart the minocycline - if you get any side effects after the break, you might want to take a lower dose for the first couple of weeks. The ASO test is important - you need to get the streptococcus eliminated - probably ampicillin along with the minocycline for a week or so. Chris. Hi Group, For various reasons I have not been on AP for the last month. I was taking 200 mgs. minocycline everyday. Lately I have been trying the antifungal treatment and for no good reason stopped taking Mino. Yesterday I got my test results back and my sed rate jumped from 42 to 60. My ASO is positive again and I'm discouraged. Can I simply go back on Mino right now or do I need to switch drugs since I took it for almost 2 years and then stopped. What do I do? Ps: No conclusive results on the antifungal treatment yet. However, my reactions are becoming less and less severe and my doc says that must mean something. Perhaps it means that I will begin to see some benefit. I'll let you know __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Our pediatrician said it would " probably " work itself out when Dane started sitting and crawling. I told her " probably " wasn't good enough for us and we didn't want to waste anymore time. She wrote the prescription. I would suggest telling the doctor that you have made up your mind and need a prescription. If the doc won't do it, ask of the name of another doc who will. I bet you'll get the script. Good luck. Cleveland Dane's mom (getting banded this week!) > I had to take Jenna to the doctor today because she has been sick. > We had an appointment tomorrow for a consult regarding her plagio, > but discussed it today since we were there anyway. For the second > time, we were told it will work itself out. I'm so frustrated I feel > like crying. I don't know what to do at this point. I understand > that Jenna's plagio is mild, but I seem to be the only one that is > unwilling to take the chance that it will fix itself. I don't want > her head to stay the way it is. Should I call Cranial Tech, even > though they are 6 hours away, and see if we can get an evaluation? > Would they then be willing to recommend someone to us that we could > take her to for the prescription. > I could really use some advice. I also have the choice of taking her > up to my parents in NY, there is a family friend who is a doctor > that is willing to speak to a pediatric neurologist about seeing > Jenna up there. > > Dana > NC, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Dana: You sound quite concerned about Jenna's plagio, even if it is " mild " like you mention. Being as concerned as you are, it probably is a good idea to get Jenna evaluated from either Cranial Tech or a good neurosurgeon. Is Jenna's Dr. today totally opposed to her getting a band? If not, maybe he would still write you a prescription - ultimately the decision is yours. Let us know what you decide or find out. Debbie Abby's mom DOCGrad MI > I had to take Jenna to the doctor today because she has been sick. > We had an appointment tomorrow for a consult regarding her plagio, > but discussed it today since we were there anyway. For the second > time, we were told it will work itself out. I'm so frustrated I feel > like crying. I don't know what to do at this point. I understand > that Jenna's plagio is mild, but I seem to be the only one that is > unwilling to take the chance that it will fix itself. I don't want > her head to stay the way it is. Should I call Cranial Tech, even > though they are 6 hours away, and see if we can get an evaluation? > Would they then be willing to recommend someone to us that we could > take her to for the prescription. > I could really use some advice. I also have the choice of taking her > up to my parents in NY, there is a family friend who is a doctor > that is willing to speak to a pediatric neurologist about seeing > Jenna up there. > > Dana > NC, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Why not LDN when in a flare? zahavi wrote: > there is special group for ldn and crohn and colitis(ibd). > many people with gut problem have better results with ldn transdermal > cream. > it is never good to start ldn when you are in flare. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Maybe you should try the SCD (specific carbohydrate diet) in conjunction with the LDN- > > Hi everyone: > > I have been on LDN for 7 weeks now. I started on 1.5mg for the 1st 2 weeks, then increased to 3.0mg the next two weeks, and have now been on 4.5mg for three weeks. I started LDN while in a flare. I did get better initially, but then developed constipation which then let to diarrhea and a flare. I have been bleeding pretty much the entire 7 weeks. It appeared to be disappating, but since I skipped my Rowasa enema yesterday and last night, I am bleeding again today. I also have a burning sensation in my stomach pretty often and lots of pain when food hits my colon--I generally have to use the bathroom pretty soon at that point. > > As far as my diet, I have tried to stay away from wheat, and most dairy, but that did not seem to help. I am not eating fruits or sugars except for a little honey or agave. > > I don't know what to do. Most people seem to get better very quickly. I seem to be getting worse. Is this possibly a herxeimer reaction? Any advice would be greatly appreciated. > > Also, if anyone else has experienced similar issues with taking LDN (i.e. not getting better right away) please let me know. It would be helpful to hear if others took a long time to get better or not. I am hoping that is the case for me, and not that I am one of the few that LDN will not work for. > > Thank you! > > Quote Link to comment Share on other sites More sharing options...
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