Re: dissapointed uk parent

[Guest guest]

:

I'm so sorry you're unhappy with your son's helmet. A lot of our

member's baby has worn a helmet that sound similiar to the one your

son has. If it is cutting into the back of his ears as you describe,

then it most likely needs an adjustment made to it, probably could

use a good trim in that area. It is very hard for most of us parents

to first see their baby wearing their helmets or bands. I also was

very upset for the first week or 2 of my daughter wearing hers. I

cried & felt so guilty. After the first week though, I felt much

better & was used to seeing her in it. Remember, this is not hurting

your son at all, you're doing the right thing by putting him in this

helmet. I hope you feel better about it soon. Hang in there.

Debbie Abby's mom DOCGrad

MI

> my son has severe plagiocephaly and is now 6 months old after

months

> of upset trying to find somewhere in the uk to treat my son we went

> to bristol to have a casting done we have just come back from

getting

> the hat from their technician and i am very dissapointed and upset

> the hat is nothing like the doc bands i have seen on the internet

but

> it is a cruedly made perspex cap that covers the whole head with

lots

> of holes in for ventilation i could have cried when he lays down

the

> hat cuts into the back of his ears and it is very tacky looking

> really what i am asking is that has there been anyone in the uk

that

> has been treated at bristol and was it succesful for their child

> because i dont want to keep travelling 400 miles round trip every

> time. Also can any one tell me if they know of dr blechers

teratment

> of plagio that comes to londons king college hospital and would we

be

> better going to see him i would be grateful for any advice LAURA

[Guest guest]

:

I'm so sorry you're disappointed with your son's helmet . Many of

our group members have had their child in a locally made helmet which

sounds similar to the one your son has. It is very hard for many

parents to adjust to seeing their child in a helmet or band. I had a

terrible time seeing my Abby in her band. I cried often for the

first week or 2. You will slowly adjust to seeing your son wear this

hunk of plastic & it won't bother you. Trust me....it gets easier

every day. You're doing what's best for him - please keep telling

yourself that.

Debbie Abby's mom dOCGrad

MI

p.s..this is another re-reply that got lost in land - forgive

me if you see another one show up later

> my son has severe plagiocephaly and is now 6 months old after

months

> of upset trying to find somewhere in the uk to treat my son we went

> to bristol to have a casting done we have just come back from

getting

> the hat from their technician and i am very dissapointed and upset

> the hat is nothing like the doc bands i have seen on the internet

but

> it is a cruedly made perspex cap that covers the whole head with

lots

> of holes in for ventilation i could have cried when he lays down

the

> hat cuts into the back of his ears and it is very tacky looking

> really what i am asking is that has there been anyone in the uk

that

> has been treated at bristol and was it succesful for their child

> because i dont want to keep travelling 400 miles round trip every

> time. Also can any one tell me if they know of dr blechers

teratment

> of plagio that comes to londons king college hospital and would we

be

> better going to see him i would be grateful for any advice LAURA

[Guest guest]

I forgot to mention in my earlier reply, that if the helmet

is " cutting " into his ears or anywhere else, it could need an

adjustment made to it. Keep a close eye on it & call the orthotist

if it is in fact digging into him at all.

Debbie Abby's mom DOCGrad

MI

> my son has severe plagiocephaly and is now 6 months old after

months

> of upset trying to find somewhere in the uk to treat my son we went

> to bristol to have a casting done we have just come back from

getting

> the hat from their technician and i am very dissapointed and upset

> the hat is nothing like the doc bands i have seen on the internet

but

> it is a cruedly made perspex cap that covers the whole head with

lots

> of holes in for ventilation i could have cried when he lays down

the

> hat cuts into the back of his ears and it is very tacky looking

> really what i am asking is that has there been anyone in the uk

that

> has been treated at bristol and was it succesful for their child

> because i dont want to keep travelling 400 miles round trip every

> time. Also can any one tell me if they know of dr blechers

teratment

> of plagio that comes to londons king college hospital and would we

be

> better going to see him i would be grateful for any advice LAURA