loloflorida

[Guest guest]

Re: Tough Day

Thanks for your kind message. Your right about not worrying ahead of time, it hard to do though.

hi s mom, Pease try not to worry util they give you a the result which I'n sure will be negative( fingers crossed). I was sent to many tests and they were all negative, now I try to not worry ahead of myself. As with listening to the physical therapist... I would only pay attention to a good neurosurgeon on the Doc clinic, they are exsperts in this field, not someone who's dealt with a few patients.. not that she means ill will. The Insurances lately have been doing alot better at paying for these and you may have to be pushed but they can be paid for. We got our paid 100% and the Doc centre said our Ins was hard to get to pay (UHC of FL). I was suprised you had been told that Bracio was harder to fix, at least without full correction the hair covers this. My daughter is nealy 3 and a Doc grad without full correction because I started too late, her hair cover all her mis shaped head. The last thing with the lamase classes and back to sleep. I did the same exact thing with my first child and shes a perfect round head... its not you at all. My second daughter was born with a deformed head but I was in the corner of "it rounds out on it own" until it dident with aggresive re positioning.I am not blaming myself for any of her problems but I wish I started sooner with her treatment. Good luck Lorraine.Mackenzies mom, Boca Raton FL.> Hi Everyone,> We went for our initial consultation at One Step Ahead in Mayfield OH > regarding getting 's DOC Band. Well, when we got there the PT > said that our neurosurgeon had written craniosynostois on the > order. She was concerned about this because the band is contra-> indicated for cranio. I don't understand this because has not > yet had his CAT scan, and I thought that was the only way to > diagnosis cranio. I got very worried that maybe he suspected cranio > instead of plagio. Can they tell without a CT? I'm very upset about > it and just have to stew since I can't call his office until Monday. > The PT at One Step Ahead tried re-assure us that the neurosurgeon > wouldn't be able to tell if crano without a CAT scan. But then > why would he write that on the order? > > It was just a really bad day all around. Almost six hours on the > road! It was too much, I think we will be staying over from now on. > Add hotel costs onto our final bill! We are exhausted and it seems > like we got nothing but bad news all day. The PT said that has > bracy and that his head shape is one of the hardest to correct. WE > should expect two bands and might get only a 50% correction. I > anticipated higher correction since he is only 7 months. She also > told us that she has never seen our insurance cover the DOC band. > Wonderful!!!!! She also felt that we should get him into physical > therapy because he is not sitting up on his own at almost seven > months. She attributed that to not having enough tummy time to > strengthen his back. Why didn't our ped. pick up on weak muscles and > recommend some physical therapy earlier? Of course they we the ones > telling us his head would round out on its own so I guess I shouldn't > be surprised. I have felt so let down by the medical community > lately. Just when I thought I was coming to terms with my guilty > feelings about all of this, another wave hit me really hard while we > were there today. It was all I could do not to cry during our > meeting. The PT was trying to be helpful but after all that bad news > she had lost me by that point. She was very nice, and very > knowledgable, but I got the feeling that she had lost touch with how > hard this can be on parents when it is all new to them. I wish so > bad that I had never taken lamaze classes. They were the ones that > scared us so bad about SIDS that we were terrified to even put > on his stomach for naps during the day. Even though no one warned us > about plagio, or stressed the importance of tummy time, I feel like I > should have somehow known and that ultimately it is my fault. I just > don't understand why this all has to be so hard? All I ever wanted > was what was best for my baby. So jealous of people that have babies > with perfect little round heads right now. I'm sure I will feel > better in the morning. Right now I'm tired, overwhelmed, and having a > pity party for myself. Sorry about that, and thanks for listening.> ps sorry this is so longFor more plagio info