Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Hi there! You might still have time!! My neuro-surgeon told me he has had success up to 14 months old, but older than that he cannot say whther the helmet really worked or whether it was mother nature. We were too late. My daughter got into the neuro at 19 months and it was too late. 14 months with the fontenal still open is VERY hopeful! See what the specialist says after seeing her skull specifically! But you are definately not too late! - in Canada > First of all I want to thank everybody who responded to my questions. > > My daughter Katerina is going to be 13 month old on February 14th. We > just made an appointment with the craniofacial surgeon on February > 19. I am sure Katerina will be at least 14 month old by the time the > band or helmet will be ready for her to wear. Does anybody here have > an expirience with older children (14-15 month old)? What are the > results? > > I just hope it is not too late. It would be a disaster. Katerina's > plagio is very noticable. > > Thank you, > Leana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Hi Leana, we stated treatment with neuro after her 12 mths check up and she wore helmet from 13 mths to 17mths. we did get some improvement but not as much as I wanted. Since then she now nealy 3 and we have had a little more correction as her head got bigger. its not right but compared to how bad it was I should be happy.My estimate of improvement from helmet is hard to guess because I was never told but I would say 40 to 50 %. since then her hair grew in and shes running around and my mind is not as focused in her misshaped head and I learnt to accept it and I think sometimes i cant even see it. I would reccoment cranial technologies as a place to unterview and see what they say. Its free for a consult I think. my email is lorrainesonn@... if you want more imfo. lorraine. > First of all I want to thank everybody who responded to my questions. > > My daughter Katerina is going to be 13 month old on February 14th. We > just made an appointment with the craniofacial surgeon on February > 19. I am sure Katerina will be at least 14 month old by the time the > band or helmet will be ready for her to wear. Does anybody here have > an expirience with older children (14-15 month old)? What are the > results? > > I just hope it is not too late. It would be a disaster. Katerina's > plagio is very noticable. > > Thank you, > Leana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Hi Leana: My daughter began her DOCband treatment when she was 11.5 mos old. Abby had severe plagio. She wore one DOCband for 4.5 mos & we got good correction. Her head is still not perfect today, but the DOCband did help her plagio significantly. Beginning " older " , you probably won't get 100% correction, but my feeling was any improvement was better than nothing. As long as Leana's sutures are not closed (which they should not be yet) you could still get improvement with a band at this age. Good luck with the surgeon next week. Please let us know how it goes & what he suggests. Debbie Abby's mom DOCGrad MI > First of all I want to thank everybody who responded to my questions. > > My daughter Katerina is going to be 13 month old on February 14th. We > just made an appointment with the craniofacial surgeon on February > 19. I am sure Katerina will be at least 14 month old by the time the > band or helmet will be ready for her to wear. Does anybody here have > an expirience with older children (14-15 month old)? What are the > results? > > I just hope it is not too late. It would be a disaster. Katerina's > plagio is very noticable. > > Thank you, > Leana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Leana, We have had quite a few parents here whose child didn't start treatment until later. And although they might not have received 100% correction, most were thrilled with the correction they did get. And honestly, even those whose child starts treatment earlier don't usually receive that 100%. 13 months is not too late to be starting, you still have a great window of opportunity for the band to work. Good luck to you and be sure to keep us up to date. Niki Kaylie & Danny (STAR grads) Phila., PA > First of all I want to thank everybody who responded to my questions. > > My daughter Katerina is going to be 13 month old on February 14th. We > just made an appointment with the craniofacial surgeon on February > 19. I am sure Katerina will be at least 14 month old by the time the > band or helmet will be ready for her to wear. Does anybody here have > an expirience with older children (14-15 month old)? What are the > results? > > I just hope it is not too late. It would be a disaster. Katerina's > plagio is very noticable. > > Thank you, > Leana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Hi LC & welcome to our group! NO, it is not too late! Is Sydney's plagio severe? My daughter Abby did not begin her DOCband therapy until she was 11.5 mos of age, she had severe plagio & we were still able to achieve good correction with the DOCband made by Cranial Technologies. Abby wore one DOCband from 11.5 mos - 15.5 mos of age. Her head is not perfectly round but it is SO much better than it was before we had her banded. We also have many other members past & present who have banded " older " and have still rec'd good improvement. It is true that you most likely will not get 100% correction, but you could still get correction. Are you still trying to get an appt scheduled with a specialist? If the appt they do get you in for is a month or more away (which they usually are), ask to be placed on a cancellation list so they can call you if they get a cancellation for a diff. day. Where abouts do you live? If you are near any Cranial Technology locations, most of their clinis offer free evaluations. Their webpage is www.cranialtech.net to look for locations. Welcome again to the group! Please keep us updated on whatever you find out. We're glad you have found us. Debbie Abby's mom 3/1/00 DOCgrad 2/16/01-6/22/01 MI > Hi, > I wish I had found out about the helmet earlier. I noticed that my > daughter Sydney had an obvious flat spot on the right side of her > head since she's two months old. I expressed my concern at every > check-up, but the pediatrician kept telling me not to worry. I > trusted her, but it just bothered me that Sydney's head was not > getting better after repositioning. I finally decided to get a second > opinion. The second doctor also said not to worry about it and he > had never heard of the helmet/band! After researching the web, I > insisted on getting a referral to a specialist. Now, I'm just > waiting to find out WHEN I can see the specialist. Sydney is turning > 1 year old on 5/18. I'm just wondering if she still has a chance or > is it too late? Anyone out there started banding at 1 yr old and > still got good results? > > Sydney's desperate mom, > LC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 LC, Unfortunately, your story isn't all that uncommon. So many of us here have heard the 'it will round out on its own' line. The good news is, even though Sydney will be one this month, its not too late! The DOCband is effective on children up to the age of 24 months, and the STARband is up to 18 months. Progress may be slower since she won't be hitting the growth spurts as quickly, but there will be improvement. There are quite a few members who have had thei child banded later, hopefully they will chime in and you give you their personal experience. Since time is of the essence, when you make the appointment with the specialist, ask to be put on a cancellation list so that they might be able to get you in sooner. Good luck to you and Sydney, please keep us up to date! Niki Kaylie & Danny (STAR grads) Phila., PA > Hi, > I wish I had found out about the helmet earlier. I noticed that my > daughter Sydney had an obvious flat spot on the right side of her > head since she's two months old. I expressed my concern at every > check-up, but the pediatrician kept telling me not to worry. I > trusted her, but it just bothered me that Sydney's head was not > getting better after repositioning. I finally decided to get a second > opinion. The second doctor also said not to worry about it and he > had never heard of the helmet/band! After researching the web, I > insisted on getting a referral to a specialist. Now, I'm just > waiting to find out WHEN I can see the specialist. Sydney is turning > 1 year old on 5/18. I'm just wondering if she still has a chance or > is it too late? Anyone out there started banding at 1 yr old and > still got good results? > > Sydney's desperate mom, > LC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Hi LC, We just banded our almost 19 mo. son 2 days ago. Yes, we know he's older than the 'norm' but we were told we may still get notieable results. We are being realistic though since he's older and may only see 10 % improvement (or we may not see improvement at all). His plagio is a mild to moderate case and our ped also advised us to let it shape out, which it did quite a bit. There was just a little part of us that thought if we could still do something, then why not try. We have been happy so far with Cranial Tech. (we live near Dallas so we go there). We do not know what the results will be, so this may not help you at all, but just to know there are older kids getting banded and we are hopeful to get results!! Reid's mom > > Hi, > > I wish I had found out about the helmet earlier. I noticed that my > > daughter Sydney had an obvious flat spot on the right side of her > > head since she's two months old. I expressed my concern at every > > check-up, but the pediatrician kept telling me not to worry. I > > trusted her, but it just bothered me that Sydney's head was not > > getting better after repositioning. I finally decided to get a > second > > opinion. The second doctor also said not to worry about it and he > > had never heard of the helmet/band! After researching the web, I > > insisted on getting a referral to a specialist. Now, I'm just > > waiting to find out WHEN I can see the specialist. Sydney is > turning > > 1 year old on 5/18. I'm just wondering if she still has a chance > or > > is it too late? Anyone out there started banding at 1 yr old and > > still got good results? > > > > Sydney's desperate mom, > > LC Quote Link to comment Share on other sites More sharing options...
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