Re: Ann Marie

[Guest guest]

Hi Ann Marie:

I would say, about every one of us in the group still notices how

flat our child's head still is. But noone else would notice it -

just like how you complimented Abby's picture the other day. I still

definitely see flatness on Abby's head, but I know no one else can

see it. It comes from obsessing over it every day of our child's

life! I wish I wasn't like that, but I cannot help it!

If you haven't seen many more changes in 's head, I'm sure

you're ready for him to graduate! Address your concerns with your

orthotist, the band might have lost it's effectiveness after all this

time. I know Cranial Tech. DOCband say the bands lose their

effectiveness after 4 or 4.5 mos time, so that could be happening

with 's STARband.? Maybe give him til the end of March

like you had originally planned & see if there has been any more

improvement, if not, then maybe graduate him!

That's terrific news his tort has been resolved .

Letus know how tomorrow's appt goes. Good luck.

Debbie Abby's mom DOCGrad

MI

> Debbie (and all other members),

>

> We have an appt. with 's orthotist tomorrow afternoon.

Over the past two months we have not really seen much change, if any

at all. His last appt. with the orthotist was on Jan. 4th. His head

looks really great -- but there is still a little flatness behind the

right ear. His orthotist wants him in his STARband until he is at

least 14 mos. -- that will be March 25th. He said that his soft

spot is still open and his head is still very malleable. Anyone who

sees him says that his head shape looks terrific and his asymmetry is

almost totally gone too. I'm wondering if the " flatness " that I see

is just me -- I am soooo used to seeing it that I think I might

imagine that it is worse than it really is!! Do you know what I

mean? Did you get that way? My husband was in Atlanta last week for

business and when he came home and gave him his bath one night, he

couldn't believe how great his head looked!!! (When 's

hair is wet, like in the tub, is when you really notice the

flatness. When his hair is dry, even I can barely notice it!!!)

> Anyway, I know the STARband people will keep their patients banded

until at least 18 mos. I'm just hoping that he won't have to be in

it that long!!! He will be 18 mos. in July, and he was put into his

band in Aug. 2001!!! That will be almost 1 year in the

helmet!!!!!!!!!!! My husband is the one who is really getting tired

of the helmet -- he thinks he is ready to graduate -- actually he

thought he was ready this past December!!!!! I am being more patient

with it than he is -- but I am now getting pushed to the limit

also!!! I don't want him out of it until the orthotist says he's

finished, but I'm not sure if the helmet is helping him anymore or if

he even needs it. BTW, he has been in the same helmet that he was

originally casted for (and that was last August)!! They've made many

adjustments, but more so at the beginning of his therapy (

was 7 mos. when he rec'd. his band). They've even added a spacer to

the side opening of the band to make it bigger for . I do

not doubt our orthotist -- I trust him completely -- he has tons of

experience with the STARbands, and I know that for a fact!! I guess

I just need some reassurance or something from others who have been

through this themselves. (I do not know of any other babies in our

area with helmets so without this support group -- I have no one to

talk to. If you've never been through the torticollis/plagiocephaly

experience you wouldn't ever understand.)

> Sorry this turned out to be soooo long -- I didn't expect it to!!

If anyone else has read this entire novel and has any info. for me --

let me know!!!! Take care all!!!!!

>

> AnnMarie & (13 mos.)

> DX w/ torticollis -- July 2001

> STARbanded -- August 2001

>

> PS -- Torticollis is now resolved. He has complete ROM. He

occasionally has a slight tilt, when sick, teething, etc. PT will

stay with him until he is walking steadily on his own. (He now walks

like a miniature " enstein " taking 8 or 9 steps before falling to

his butt!)

[Guest guest]

Oh!! Ann marie.

My heart goes out to you.. Please take care and know you are in my thoughts

and prayers

Love Joyce from the UK.

xxxxxxxxxxxxxxxxx

snowespi <snowespi@...> wrote:

Good-morning to ALL! This is a safe place for me. Once again, I woke up

in a truck spot and in so much pain. Thank God I am not in jail. It was

a first and it was hell. Cassey, I am praying for you as I know you

will have your moments as I am having. There is fear and lonliness. It

is soooo hard. I feel like rob won and I lost my daughter. I can't make

sense of it. My daughter and I were so close. How can this be

happening???? I am alone. In this state I have no one. I only had my

daughter. Thank you, all for your prayers. I have nothing. When I came

out of jail - the locks were changed and so at least I can come to the

public library and use the computer. I do not feel safe here. I do not

trust rob at all. That's my daughter's husband. God bless each and

everyone of you. I'll keep reading All the posts as you are my family.

At least I know you will never reject me. Thank you June and All! We

will survive one day at a time. Hang in there, Cassey. ANd Lynn and

each and everyone. I am open to any suggestions. With love,Marie

>

> Hi Cassy:

>

> You say that his mom won, but, truthfully, I think

> that you did, as his negativity and the extra stress

> he causes you is gone from the house. My prayers are

> with you, my friend.

>

> Kathe in CA

>

>

>