RE: Polio + parlodel

[Guest guest]

hi i was on parlodel years ago and for several years to correct elevated

prolactin levels ..

it was THE WORST MEDICATION i have ever taken in my entire life and i have

been thru multiiple antibiotics , antibiotics + antiverals , difflucon,

chelatation oral etc.. with cfids/fm

parlodel mimics the symtpoms of the first trimester of pregnancy : nasueaus ,

lack of energy ,etc.. ..you get every side effect from it of pregnancy and it

takes over a week for your body to adapt to restarting it every time!!

i felt like pure crap from it everytime i had to go off of it to measure my

prolactin levels and then going back on it it was as though my body had never

been on it ever... you get all the symtoms of being pregnant without the

pleasure of making a baby .

..also i wonder since it affects the pitatry gland , how safe can it be for

people to take it ..

i would have to have high prolactin levels to ever consent to taking this agin

...awful medication.

tealk

Polio

A link between Polio and M.E. has been suggested many times over the

years, and it is still the model that makes the most sense to me. Has

anybody tried taking the drugs that help with fatigue and cognitive

dysfunction in Post Polio Syndrome?

I notice that all four recommended by the Mayo Clinic are in Dr. Jay

Goldstein's list of drugs that help people with M.E.:

" Medications. Medications, including aspirin and other nonsteroidal

anti-inflammatory drugs, may ease muscle and joint pain. Certain drugs —

pyridostigmine (Mestinon), amantadine (Symmetrel), selegiline (Eldepryl)

and bromocriptine (Parlodel) — have been studied as a treatment for PPS

fatigue, but no clear benefit has been shown. Other medications for

fatigue may help, such as modafinil (Provigil). Studies of insulin-like

growth factor-1 (IGF-1), a medication designed to improve muscle strength,

showed that although it didn't change strength or susceptibility to

fatigue, it did improve recovery after exercise. " -

http://www.mayoclinic.com/health/post-polio-syndrome/DS00494/DSECTION=8

Goldstein's treatments:

http://avoca.vicnet.net.au/~mecfs/general/goldstein_treatment.html

I am taking Amantadine now, and I am able to increase my concentration,

reading comprehension, and work ability, and the amount of yawning has

decreased considerably. I must be in the 40% who are helped by this drug:

http://www.pediatricnetwork.org/medical/CFS/bell-commentary/amantadine.htm

Katrina.