Re: Looking for members and help in Charlotte, NC

[Guest guest]

Hi Christy & welcome to our group!

We're happy you have found us. Is currently attending

Physical Therapy to help with her torticollis? A lot of our members

children have or had tort., I'm sure they will offer you good advice

with that. My daughter did not have tort. Torticollis is a leading

contributer to plagio. Has already had a CTscan or xrays done

to rule out craniosynostosis? You said you were in the process of

ruling that out.

> 1. What are members' experiences with the doc band?

A) I cannot say enough great things about the DOCband. My daughter

who had severe plagio didn't begin her DOC treatment til she was 11.5

mos old, she wore one band for 4.5 mos & we were still able to

achieve very good correction.

>

> 2. Has anyone heard of this soft helmet? That is being suggested

by

> a doctor in Winston-Salem who is a cranio facial specialist. They

do

> not believe in applying pressure to the baby's head as the doc band

> does. The doc band sounds so great and I have heard of wonderful

> results, but I haven't read anything about the soft helmet.

A) I think I have read of at least 2 members who have used the soft

helmet, but I cannot remember hearing if they were felt it helped

their child's plagio or head shape at all.

>

> 3. Is there anyone in the group in my area?? We are active in the

> torticollis and craniosynostosis groups and have found wonderful

> support locally from them, but would love to meet some plagio

parents

> also!

A) Nope, I live in Michigan

Again, welcome to our group. Please be sure to keep us updated on

's progress and what her cranio results are.

Best of luck with everything

Debbie Abby's mom DOCgrad 6/01

MI

[Guest guest]

Hi Christy-

I am a little behind cheking the boards so I just noticed your post.

My son Owen is going to be 1 on April 2nd and has been in the DOC

band since 12/5. We live 1/2 away from Charlotte in Concord, NC and

go the Cranial Tech clinic in Charlotte. They are wonderful!!!! We

have nothing but nice things to say about all the OT/PT's there. It

is easy to get and an apt. and convenient for us. Owen has positional

plagio and will hopefully graduate from his DOC band soon ( maybe by

the middle of April !) The only bad thing about our experience has

been fighting CIGNA for payment. We are in the final phase called an

external review and are a tiny bit hopeful we can get our $3K

refunded. If you would like to chat please call me (704) 721-3289 or

email me at owensmom42@... since I don't check my too

often.

Good Luck! -

--- In Plagiocephaly@y..., " christyandlauren28215 " <Bakerfour@c...>

wrote:

> Hi to everyone!

> My name is Christy and my daughter, is 4 months old. She

has

> congenital muscular torticollis, plagiocephaly and we are in the

> process of ruling out craniosynostosis. Her poor head is almost

> taking on an " s " shape if you view it from above. The doctors at

> this point feel this is being caused primarily from the

torticollis.

> I am very frustrated at this point because we have heard so many,

> many differing opinions on treatment for . I have three

> questions:

>

> 1. What are members' experiences with the doc band?

>

> 2. Has anyone heard of this soft helmet? That is being suggested

by

> a doctor in Winston-Salem who is a cranio facial specialist. They

do

> not believe in applying pressure to the baby's head as the doc band

> does. The doc band sounds so great and I have heard of wonderful

> results, but I haven't read anything about the soft helmet.

>

> 3. Is there anyone in the group in my area?? We are active in the

> torticollis and craniosynostosis groups and have found wonderful

> support locally from them, but would love to meet some plagio

parents

> also!

>

> Thank you in advance for your replies!

> Christy

> Mom to 4 months

> Jack 2 years

> Kaitlyn 7 years