Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 I don't know if you have the option, but when I took my little guy in for a CT I woke him up at 4am and kept him up for a 10am CT appt. I followed their advice as to not feed him after a certain time (just in case we would need sedation). It was hard to do b/c he was so unhappy and tired... but he fell asleep just before 10am and he was out like a light. It was all worth the fuss to not have to have him sedated. Just a little FYI. Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 Hi I hope that the sutures have not closed. I don't know exactly what type of pointiness degree your talking about, but my son also started getting a pointy top on the right side, as is was essentially being pushed upward. Was the pointiness there before the band? If it was after, that's something different, but the people at CT told me when I discussed this with them prior to the band that the pointiness will still be there, but the rest of the back of the head will start to round out and it won't be so noticeable. When the flat part popped out, it wasn't very noticeable to anyone but we still see a small flat spot on the top back and a small point. was also sedated (at 2 months and again at 6 months)- they have them drink an anestesia that knocks them out but they are not unconscious. They don't like the taste, but it does the trick in most cases. He was out for about 1.5 hours after, and they had me giving him pedialyte to put fluids into him. Both occassions were very uneventful. They will not sedate if they have eaten or drank I think 3 hours before, check with your Doc. Also will not sedate if they have a cold. I hope all goes well for you all, sending prayers your way that the sutures remain open! Please keep us updated! All the best, ' Mom (tort resolved, DOC grad) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 YOU WILL BE IN MY PRAYERS!!!! --- ashersmom15 <scott_chris@...> wrote: > Just an update on my son. We had an appointment > with our orthotist > today. He also talked to Orthomerica on the phone > while we were > there. The pointiness on top has not changed--it's > not getting worse > but also not getting any better. Also, both we and > the orthotist > feel there should be more correction to the back of > the head so far. > The bottom of the head near the nape of his neck, is > rounding > slightly, but the top of the back of his head is > still flat as ever. > What he and Orthomerica decided was, his suture(s) > may have fused and > that's why we are not seeing better correction and > the pointiness is > occurring, and he needs to be seen by his > neurosurgeon asap. If the > sutures have closed, he'll need surgery. If they > have not, they want > to re-cast and make a new STARband. He's to > continue wearing his > helmet for now, to maintain the progress we have > made. > > I managed to get in touch with the ped. > neurosurgeon's office and > they have scheduled me for Wednesday even though > they are already > overbooked. He's going to have to be sedated for a > CT scan. I had > to outline the whole situation for them, and figure > it must sound > serious for us to get an appointment so quickly, as > it usually takes > a month to get in. So we drive to Birmingham Wed. > to see what's > going on. Wish us luck and pray his sutures have > not closed. > > Chris > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 Chris: My fingers are definitely crossed for negative results. Has Asher already had a CT scan or Xrays done prior to getting his band? Good luck with it - PLEASE let us know how everything turns out. Debbie Abby's mom DOCGrad MI > --- ashersmom15 <scott_chris@k...> wrote: > > Just an update on my son. We had an appointment > > with our orthotist > > today. He also talked to Orthomerica on the phone > > while we were > > there. The pointiness on top has not changed--it's > > not getting worse > > but also not getting any better. Also, both we and > > the orthotist > > feel there should be more correction to the back of > > the head so far. > > The bottom of the head near the nape of his neck, is > > rounding > > slightly, but the top of the back of his head is > > still flat as ever. > > What he and Orthomerica decided was, his suture(s) > > may have fused and > > that's why we are not seeing better correction and > > the pointiness is > > occurring, and he needs to be seen by his > > neurosurgeon asap. If the > > sutures have closed, he'll need surgery. If they > > have not, they want > > to re-cast and make a new STARband. He's to > > continue wearing his > > helmet for now, to maintain the progress we have > > made. > > > > I managed to get in touch with the ped. > > neurosurgeon's office and > > they have scheduled me for Wednesday even though > > they are already > > overbooked. He's going to have to be sedated for a > > CT scan. I had > > to outline the whole situation for them, and figure > > it must sound > > serious for us to get an appointment so quickly, as > > it usually takes > > a month to get in. So we drive to Birmingham Wed. > > to see what's > > going on. Wish us luck and pray his sutures have > > not closed. > > > > Chris > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 You've got my prayers. Paige Cone head revisitedJust an update on my son. We had an appointment with our orthotist today. He also talked to Orthomerica on the phone while we were there. The pointiness on top has not changed--it's not getting worse but also not getting any better. Also, both we and the orthotist feel there should be more correction to the back of the head so far. The bottom of the head near the nape of his neck, is rounding slightly, but the top of the back of his head is still flat as ever. What he and Orthomerica decided was, his suture(s) may have fused and that's why we are not seeing better correction and the pointiness is occurring, and he needs to be seen by his neurosurgeon asap. If the sutures have closed, he'll need surgery. If they have not, they want to re-cast and make a new STARband. He's to continue wearing his helmet for now, to maintain the progress we have made.I managed to get in touch with the ped. neurosurgeon's office and they have scheduled me for Wednesday even though they are already overbooked. He's going to have to be sedated for a CT scan. I had to outline the whole situation for them, and figure it must sound serious for us to get an appointment so quickly, as it usually takes a month to get in. So we drive to Birmingham Wed. to see what's going on. Wish us luck and pray his sutures have not closed. For more plagio info Quote Link to comment Share on other sites More sharing options...
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