Re: NBC NEWS: Chronic Fatigue Syndrome is REAL

[Guest guest]

Yes I saw it on the network news. Of course the newspeople called

it " chronic fatigue " , but so does everyone else.

The good news is that the woman from the CDC said:

" People genuinely are suffering and there are things we can do to

genuinely help them, " says Dr. Gerberding, who heads the

Centers for Disease Control (CDC). " And we need to take this

seriously as a real illness for a lot of people. "

She did not seem to be implying that they need to help us get over

our unfounded belief that we are sick.

The other good thing was that the PWC they profiled was not someone

who was working full time or playing pro athletics. It was a woman

who had started a career as a lawyer but had been unable to work for

13 years, I think.

We've still got a long, long way to go, but this is good news.

Tom

>

> FINALLY, national news coverage...

>

> http://www.msnbc.msn.com/id/15535705/

>

[Guest guest]

Dan-did u happen to see the piece last night on the NBC nightly news?

The PWC that they interviewed looked fine, was very articulate and

was walking around with a cane, but nonetheless walking. Actually

she

looked pretty good. I am glad we got some national coverage, but I

think it would be much more helpful to show someome like me during a

relapse, when I hadn't showered for three days, lying in a dark room

w/ a pillow over my head. Or to show someone like you or me who has

lost 1/3 of their body weight w/ serios muscle wasting.

BTW, our local NBC affiliate in Dallas did a short piece on CFS

tonight. This is all about the new CDC 'awareness' campaign that

that is described at

http://www.cdc.gov/od/oc/media/pressrel/r061103.htm.

I hope it does some good. The treatment section in the link above

is what bothers me. It is hard to believe that 20 years after

the Nevada outbreak that we are still seeing awareness campaigns

and prevalance studies instead of some serious research into

treatment. The CDC did an awareness campaign about 10 years ago w/

a satellite video feed to various parts of the country. I hope I

didn't burst your bubble, this might be the CDC doing their minimum.

Mike C

>

> FINALLY, national news coverage...

>

> http://www.msnbc.msn.com/id/15535705/

>

[Guest guest]

The wheel turns awfully slowly, but it turns.

Adrienne

NBC NEWS: Chronic Fatigue Syndrome is REAL

FINALLY, national news coverage...

http://www.msnbc.msn.com/id/15535705/

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discussed here, please consult your doctor.