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Re: Expensive Helmet

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I probably felt the same way you did 2 months ago. Especially since

one of the docs kept telling me that all of the information about

the need for helmets before age one was coming from the " advertising

campaign by the people. " My son Dane (5 months)has been in a DOC

Band for 2 weeks. I cannot believe how quickly his head is

shaping. We tried repositioning for 3 months. We did have a bit of

success but then the progress stagnated in January.

It is worth every penny. We would have been willing to pay quite a

bit more than we did to correct the problem. My husband said if we

needed to refinance the house to get his head fix we would. Thank

goodness we didn't have to do that! The DOC Band definetly works.

It is worth every penny.

Dane's mom

ly1 " <deesmilly1@y...> wrote:

> Hello Everyone, We have just found out our daughter will need a

> helmet but our insurance will only pay up to $500.00 the cost of

the

> helmet is $2100.00 after a discount!Does anyone know a reasonable

> priced company that sells these helmets in the Los Angeles area?

> It seems that these companies are just taking advantage of us, Due

to

> the fact that most insurance companies don't cover it.Any help

would

> be great! Marie and family

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Sorry about reply to my own reply! I just noticed the typos

(duh!). I have been up all week with kids who have croup and my

brain is a bit fried. Here is what I was trying to say:

The ped told me when Dane was first diagnosed with plagio that he

doesn't believe in helmets prior to 9-12 months. He said

the " helmet people " adverised the need for them beforehand to

frighten parents and make money. So, I felt the way you do about

being taken advantage of. I thank God we decided to pursue it

before the time he recommended (we later saw another doc in the

practice). After seeing the results in just 2 weeks, I have done a

180 degree turn. It is quite amazing how well it is working. Yes,

it is expensive, but in Dane's case, we will get every penny's

worth.

Sorry for the messy message before!

Cleveland

> > Hello Everyone, We have just found out our daughter will need a

> > helmet but our insurance will only pay up to $500.00 the cost of

> the

> > helmet is $2100.00 after a discount!Does anyone know a

reasonable

> > priced company that sells these helmets in the Los Angeles area?

> > It seems that these companies are just taking advantage of us,

Due

> to

> > the fact that most insurance companies don't cover it.Any help

> would

> > be great! Marie and family

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Hi Marie:

I believe this is your first post, so I'd like to welcome you to our

group! We'd all love to hear more of your daughter's plagio story if

you'd like to share it with us all!

Are you looking into getting your daughter a DOCband made by Cranial

Technologies?? That's what I am assuming based on the cost you have

mentioned. I had the same opinion that you currently have about 18

mos ago. I couldn't believe the cost of these bands! I also thought

these companies were taking advantage of us parents in a difficult

situation. BUT, my opinion quickly changed.

My daughter rec'd her DOCband when she was 11.5 mos old. She had

severe plagiocephaly. The cost of the band was a lot yes, but the

benefits we rec'd from the band (a rounder head) are invaluable. I

cannot say enough good things about Cranial Technologies and their

entire staff. They spend several weeks of intense training of their

physical/occupational therapists and/or orthotists before they allow

them to treat a child with their DOCbands. They also spend years

researching every aspect of plagiocephaly and their DOCband. Their

bands work wonders.

I really understand what you're saying about the cost. But from my

personal experiences, it was anything but a rip off. All health care

now a days is outrageous.

Many of our group members had been denied coverage of their child's

helmet/band. But many of our members have had their denial turned

around and actually covered after several appeals. I really suggest

fighting with your ins. company for all it's worth. On what terms

are they denying coverage? What ins. company is it? Check out

www.plagiocephaly.org then insurance issues for some help.

Sorry I got so long winded there, woo!

Welcome again & please share more of your daughter's story with us!

Debbie Abby's mom DOCGrad 6/22/01

MI

> Hello Everyone, We have just found out our daughter will need a

> helmet but our insurance will only pay up to $500.00 the cost of

the

> helmet is $2100.00 after a discount!Does anyone know a reasonable

> priced company that sells these helmets in the Los Angeles area?

> It seems that these companies are just taking advantage of us, Due

to

> the fact that most insurance companies don't cover it.Any help

would

> be great! Marie and family

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Hi Marie and welcome to the group! How were you able to get a

discount on your daughter's band? I only ask in case it might help

other members get a break too. It sounds to me like you are getting a

DOCband, they are considerably more expensive than a STARband or a

locally made helmet. But that's because they have pioneered the way

for these bands and were the first to be FDA approved. You might

want to consider a STARband because they are very similar to the

DOCband in the fact that both are of an active design, wheras locally

made helmets are passive. STARbands also usually cost less money

than the DOCbands. You can check out Orthomerica's webpage at

http://www.orthomerica.com to find an ortho near you. Whichever

company you do desice to go with, its important that you feel

comfortable with your ortho and that s/he has experience. You can

find a list of some questions you might want to as at

http://www.plagiocephaly.org/support/questions.htm

Again, welcome to the group and good luck!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hello Everyone, We have just found out our daughter will need a

> helmet but our insurance will only pay up to $500.00 the cost of

the

> helmet is $2100.00 after a discount!Does anyone know a reasonable

> priced company that sells these helmets in the Los Angeles area?

> It seems that these companies are just taking advantage of us, Due

to

> the fact that most insurance companies don't cover it.Any help

would

> be great! Marie and family

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