Re: Severe cognitive difficulties...please advise.

[Guest guest]

Hi

19 months into the below regime - I still get headaches but when I keep

detoxing they continually reduce. Ive set myself a goal to be as well as io can

by Mrach 07 - this will be 2 years of doing my regime!!!

1)diet - no wheat or dairy restricts sugar for around 12 months -

***once your glutathione levels are up and you have got to point 5

reintroduce fruits.

2) Raising glutathione & thyroid - Whey Protein -

***It took me 12 months to raise my glutathione levels - at this point i

felt no difference taking the whey.

3) Killing infections - Lactoferrin / Coconut oil / Manuka Honey

***After taking the whey for around 3 months ( enough to help detox any

circulating metals ) ***- I took lactoferrin for 4 weeks to wipe out bacteria

***Then i took coconut oil for 4 weeks to wipe out yeast.

***Then i took Manuka honey for 4 weeks to wipe out any remaining gut

bacteria ie h pylori

4) Improving adrenals - Licorice / Salt

***Take salt in water to correct OI intolerance and reverse potassium

imbalance.

***Adding licorice in the form of a pure licoice sweet is a powerful way to

correct low cortisol.

5) Improving digestion - Probiotics / Digestive enzyme with oxbile

***Start adding probiotics at this stage as alot of infections would have

been killed off.

***Add Digestive enzyme with ox bile as your body has more than likely

stopped produceing it as your liver is so overwhelmed by all the toxins.

6) Liver / Galbladder flush - Olive oil / Grapefruit juice / Turmeric /

Apple juice / probiotics

***Include Turmeric in your foods for 4 weeks.

***Include Apple juice for 4 weeks this will soften stagnant bile in your

gallbladder

***Simply do this liver flush once a week in between detoxing heavy metals.

As once you have started to detox metals some of it will have to be flushed

out of the liver gallbladder to prevent it from re circulating.

7) Bladder Cleanse - OPC's rich fruits

***include lots of OPC rich fruits.

8) Heavy Metals - Coriander herb /Chlorella/ Garlic

***do a metal cleanse once every few days and then liver flush - for around

3 months

***take chlorella 15 mins before eating - then add coriander to your food.

***take a little garlic with foods also

9) Kidney Cleanse - Parsley / Lemon juice /Magnesium /Probiotics to flush

out any kidney stones

10) Colon & Bowel Cleanse - Magnesium/ Chlorella / Probiotics

11) Fatty Liver - Lecithin, Evening Primrose oil / Essential fatty acids

12) Vits and Minerals - Vit & Mins, Cod liver oil (vit A), B12 Zinc, mg,

calcium , potassium Colostrum , probiotics

Regards

CS

[Guest guest]

The brain requires lots of oxygen. Very likely, a lack of oxygen

delivered to the brain is contributing to your cognitive difficulties.

My guess is that a blood volume test would provide better information

than the tests that you mention you will be having.

All the best,

Jim

>

> I have had CFS since 1998, and over the last year also

> developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

>

> My cognitive difficulties are so severe that I have trouble

> concentrating/understanding the posts on this board, (some are very

> technical).

>

> I have been on and off meds for anxiety/panic disorder/depression

> since my teens, but I could always exercise vigorously until after a

> period of extreme stress in 1997 followed immediately by a virulent

> flu.

>

> My doctor says I now have ADD, or rather exhibit ADD behavior, but

> has

> confirmed that I did not have this disorder as a child or young

> adult.

> My understanding is that this condition does not begin in adulthood

> and I had no problems concentrating or studying for hours while in

> school.

>

> He is however, treating me with ADD meds. I had to stop taking

> Adderall because in combination with Levoxyl I started getting

> palpitations. Besides psychiatric meds (anxiety,depression, he then

> retried Provigil, which helps me stay awake but does not help me

> focus. I also had an allergic reaction to it (edema) this time and

> am

> now off it temporarily.

>

> In short, I am a Zombie. I found the exhaustion hard enough, but

> this " Zombie Brain Syndrome " is the most distressing. I'm awake

> enough

> to know that I can't learn anything technical, and my short term

> memory is nothing to brag about.

>

> Only a relaxing nonfiction novel or TV show can hold my attention.

>

> I am going to a memory clinic for tests/MRIs, etc.

>

> Any advice/coping methods/therapies fellow sufferers can offer would

> be most appreciated. Thanks in advance.

>

[Guest guest]

I once was so bad I could hardly read. The first thing that made any difference

in my brain was injections, several a week, self-administered, of vit B12,

(hydroxycobalamin), 1-2.5 cc's.. Trouble is, this treatment is not mainstream,

so most docs won't do it. I convinced mine tousing documentation. But struggled

for years to find a doc who would. It has to be obtained from a compunding

pharmacy.

I learned of it here, on this list, and don't know if I would still be alive

without it. It's been several years now.

Adrienne

Severe cognitive difficulties...please advise.

I have had CFS since 1998, and over the last year also

developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

My cognitive difficulties are so severe that I have trouble

concentrating/understanding the posts on this board, (some are very

technical).

I have been on and off meds for anxiety/panic disorder/depression

since my teens, but I could always exercise vigorously until after a

period of extreme stress in 1997 followed immediately by a virulent

flu.

My doctor says I now have ADD, or rather exhibit ADD behavior, but

has

confirmed that I did not have this disorder as a child or young

adult.

My understanding is that this condition does not begin in adulthood

and I had no problems concentrating or studying for hours while in

school.

He is however, treating me with ADD meds. I had to stop taking

Adderall because in combination with Levoxyl I started getting

palpitations. Besides psychiatric meds (anxiety,depression, he then

retried Provigil, which helps me stay awake but does not help me

focus. I also had an allergic reaction to it (edema) this time and

am

now off it temporarily.

In short, I am a Zombie. I found the exhaustion hard enough, but

this " Zombie Brain Syndrome " is the most distressing. I'm awake

enough

to know that I can't learn anything technical, and my short term

memory is nothing to brag about.

Only a relaxing nonfiction novel or TV show can hold my attention.

I am going to a memory clinic for tests/MRIs, etc.

Any advice/coping methods/therapies fellow sufferers can offer would

be most appreciated. Thanks in advance.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

>

> I have had CFS since 1998, and over the last year also

> developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

>

> My cognitive difficulties are so severe that I have trouble

> concentrating/understanding the posts on this board, (some are very

> technical).

Hi, how is your energy level? I find thinking is very energy

consuming. I have two things going on, one being brain fog, and the

other being constant exhaustion. I think the exhaustion is more of a

hindrance to thinking and comprehension than the brain fog (if the

distinction makes any sense to others). Regaining energy is a long

term process--I have come from the point of not having enough energy

to chew food to now being able to be with others for a short time and

joining in conversations. I hope you can find some answers.

Blessings. Janine

[Guest guest]

Hi

Magnesium deficiency can cause symptoms of ADD.

> >

> > I have had CFS since 1998, and over the last year also

> > developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

> >

> > My cognitive difficulties are so severe that I have trouble

> > concentrating/understanding the posts on this board, (some are

very

> > technical).

>

>

> Hi, how is your energy level? I find thinking is very energy

> consuming. I have two things going on, one being brain fog, and

the

> other being constant exhaustion. I think the exhaustion is more

of a

> hindrance to thinking and comprehension than the brain fog (if the

> distinction makes any sense to others). Regaining energy is a

long

> term process--I have come from the point of not having enough

energy

> to chew food to now being able to be with others for a short time

and

> joining in conversations. I hope you can find some answers.

> Blessings. Janine

>

[Guest guest]

I would try hawthorne, coq10, and nattokinase (available at healthfood stores or

more cheaply from beyond-a-century.com and will improve cardiac function and may

get more blood to your brain), and try to get a doc to write scripts for mag.

sulfate (1 mg./ml/day and hydroxycobalamin (min. 10 mg or 10,000 mcg.)

injections (both are compounded by McGuffs's compounding pharmacy 877-444-1133).

As Adrienne said, this really helps the brain - hydroxy will neutralize toxins

in your brain. The dose seems high for b-12 but this type of b-12 is not toxic.

Other things that may help brain are choline and dmae; both can be ordered

cheaply from beyond-a-century. Steve B.

qqtip2001 <qqtip2001@...> wrote: I have had CFS since 1998, and

over the last year also

developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

My cognitive difficulties are so severe that I have trouble

concentrating/understanding the posts on this board, (some are very

technical).

I have been on and off meds for anxiety/panic disorder/depression

since my teens, but I could always exercise vigorously until after a

period of extreme stress in 1997 followed immediately by a virulent

flu.

My doctor says I now have ADD, or rather exhibit ADD behavior, but

has

confirmed that I did not have this disorder as a child or young

adult.

My understanding is that this condition does not begin in adulthood

and I had no problems concentrating or studying for hours while in

school.

He is however, treating me with ADD meds. I had to stop taking

Adderall because in combination with Levoxyl I started getting

palpitations. Besides psychiatric meds (anxiety,depression, he then

retried Provigil, which helps me stay awake but does not help me

focus. I also had an allergic reaction to it (edema) this time and

am

now off it temporarily.

In short, I am a Zombie. I found the exhaustion hard enough, but

this " Zombie Brain Syndrome " is the most distressing. I'm awake

enough

to know that I can't learn anything technical, and my short term

memory is nothing to brag about.

Only a relaxing nonfiction novel or TV show can hold my attention.

I am going to a memory clinic for tests/MRIs, etc.

Any advice/coping methods/therapies fellow sufferers can offer would

be most appreciated. Thanks in advance.

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

I notice a big big difference when I eat trans-fats(partially

hydrogenated vegetable oils). If I eat them, I have brain fog that

is really severe. When I don't, my brain fog lessens a lot.

>

> I have had CFS since 1998, and over the last year also

> developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

>

> My cognitive difficulties are so severe that I have trouble

> concentrating/understanding the posts on this board, (some are

very

> technical).

>

> I have been on and off meds for anxiety/panic disorder/depression

> since my teens, but I could always exercise vigorously until after

a

> period of extreme stress in 1997 followed immediately by a

virulent

> flu.

>

> My doctor says I now have ADD, or rather exhibit ADD behavior, but

> has

> confirmed that I did not have this disorder as a child or young

> adult.

> My understanding is that this condition does not begin in

adulthood

> and I had no problems concentrating or studying for hours while in

> school.

>

> He is however, treating me with ADD meds. I had to stop taking

> Adderall because in combination with Levoxyl I started getting

> palpitations. Besides psychiatric meds (anxiety,depression, he

then

> retried Provigil, which helps me stay awake but does not help me

> focus. I also had an allergic reaction to it (edema) this time and

> am

> now off it temporarily.

>

> In short, I am a Zombie. I found the exhaustion hard enough, but

> this " Zombie Brain Syndrome " is the most distressing. I'm awake

> enough

> to know that I can't learn anything technical, and my short term

> memory is nothing to brag about.

>

> Only a relaxing nonfiction novel or TV show can hold my attention.

>

> I am going to a memory clinic for tests/MRIs, etc.

>

> Any advice/coping methods/therapies fellow sufferers can offer

would

> be most appreciated. Thanks in advance.

>

[Guest guest]

hi

i had a similar experience...I even had testing done that documented the

problem. MRI was normal. Ritalin, Adderrall and Provigil were of no help.

The only thing that finally helped me was getting on Transfer Factor and

starting to detox with glutathione.

I can't explain the underlying biology, but I suspect that I was poisoned by a

long-term build-up of toxins (due to malfunctioning detox system) and viral

overload.

I am slowly regaining my mental function and clarity on transfer factor and

glutathione (IVs, whey, oral liposomal etc..). It's like being underwater and

slowly swimming back towards the surface.

FYI, antivirals may work as well as TF. I noticed some immediate cognitive

improvement on Valtrex,, but I was only on it for a month or so before I

switched to TF.

Louella

" Adrienne G. " <duckblossm@...> wrote:

I once was so bad I could hardly read. The first thing that made any

difference in my brain was injections, several a week, self-administered, of vit

B12, (hydroxycobalamin), 1-2.5 cc's.. Trouble is, this treatment is not

mainstream, so most docs won't do it. I convinced mine tousing documentation.

But struggled for years to find a doc who would. It has to be obtained from a

compunding pharmacy.

I learned of it here, on this list, and don't know if I would still be alive

without it. It's been several years now.

Adrienne

Severe cognitive difficulties...please advise.

I have had CFS since 1998, and over the last year also

developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

My cognitive difficulties are so severe that I have trouble

concentrating/understanding the posts on this board, (some are very

technical).

I have been on and off meds for anxiety/panic disorder/depression

since my teens, but I could always exercise vigorously until after a

period of extreme stress in 1997 followed immediately by a virulent

flu.

My doctor says I now have ADD, or rather exhibit ADD behavior, but

has

confirmed that I did not have this disorder as a child or young

adult.

My understanding is that this condition does not begin in adulthood

and I had no problems concentrating or studying for hours while in

school.

He is however, treating me with ADD meds. I had to stop taking

Adderall because in combination with Levoxyl I started getting

palpitations. Besides psychiatric meds (anxiety,depression, he then

retried Provigil, which helps me stay awake but does not help me

focus. I also had an allergic reaction to it (edema) this time and

am

now off it temporarily.

In short, I am a Zombie. I found the exhaustion hard enough, but

this " Zombie Brain Syndrome " is the most distressing. I'm awake

enough

to know that I can't learn anything technical, and my short term

memory is nothing to brag about.

Only a relaxing nonfiction novel or TV show can hold my attention.

I am going to a memory clinic for tests/MRIs, etc.

Any advice/coping methods/therapies fellow sufferers can offer would

be most appreciated. Thanks in advance.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

another thought...in terms of tests, you might want to look into the CFS panel

offered by Immunosciences in Beverly Hills, esp. if you need ammunition to

convince your doc to prescribe antivirals.

Of course,I am assuming your CFS is of the viral-onset type like mine.

Best

Louella

---------------------------------

Want to start your own business? Learn how on Small Business.

[Guest guest]

I also lived like a zombie for about two years and even though it is better

now I am still far away from being healed.I know what you are going

through.When I go through a period that I am forced to think more than my

brain handles it comes back.May God help you.

Things that helped.

Detoxification by spa therapy,coffee enemas(You may find other means of

detoxing).

Bio energy therapy

Massage

Rest,not thinking much.

methycobalamin

Ginkgo biloba-some help

Don't know what the exact working mechanisms of these are,though.

Best wishes and good luck.

Nil

Severe cognitive difficulties...please advise.

>I have had CFS since 1998, and over the last year also

> developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

>

> My cognitive difficulties are so severe that I have trouble

> concentrating/understanding the posts on this board, (some are very

> technical).

>

> I have been on and off meds for anxiety/panic disorder/depression

> since my teens, but I could always exercise vigorously until after a

> period of extreme stress in 1997 followed immediately by a virulent

> flu.

>

>

[Guest guest]

From what I've read, some people with CFS seem to have a lot of success by

radically overhauling their diet and only eating whole ( as in unprocessed)

foods or raw foods.

Given what I've been reading about glutathione and the detox system, I am

inclined to think this is because these foods require much less effort to

process and thereby allow the body to use its stores of glutathione to detox the

toxins in the body, instead of adding to its detox burden as trans fats do.

Of course, raw foods also have a higher enzyme content than cooked food, and

this helps too.

Just a thought.

Louella

j mascis <mascis_j@...> wrote:

I notice a big big difference when I eat trans-fats(partially

hydrogenated vegetable oils). If I eat them, I have brain fog that

is really severe. When I don't, my brain fog lessens a lot.

>

> I have had CFS since 1998, and over the last year also

> developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

>

> My cognitive difficulties are so severe that I have trouble

> concentrating/understanding the posts on this board, (some are

very

> technical).

>

> I have been on and off meds for anxiety/panic disorder/depression

> since my teens, but I could always exercise vigorously until after

a

> period of extreme stress in 1997 followed immediately by a

virulent

> flu.

>

> My doctor says I now have ADD, or rather exhibit ADD behavior, but

> has

> confirmed that I did not have this disorder as a child or young

> adult.

> My understanding is that this condition does not begin in

adulthood

> and I had no problems concentrating or studying for hours while in

> school.

>

> He is however, treating me with ADD meds. I had to stop taking

> Adderall because in combination with Levoxyl I started getting

> palpitations. Besides psychiatric meds (anxiety,depression, he

then

> retried Provigil, which helps me stay awake but does not help me

> focus. I also had an allergic reaction to it (edema) this time and

> am

> now off it temporarily.

>

> In short, I am a Zombie. I found the exhaustion hard enough, but

> this " Zombie Brain Syndrome " is the most distressing. I'm awake

> enough

> to know that I can't learn anything technical, and my short term

> memory is nothing to brag about.

>

> Only a relaxing nonfiction novel or TV show can hold my attention.

>

> I am going to a memory clinic for tests/MRIs, etc.

>

> Any advice/coping methods/therapies fellow sufferers can offer

would

> be most appreciated. Thanks in advance.

>

---------------------------------

Access over 1 million songs - Music Unlimited.

[Guest guest]

> >

> > I have had CFS since 1998, and over the last year also

> > developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

> >

> > My cognitive difficulties are so severe that I have trouble

> > concentrating/understanding the posts on this board, (some are

very

> > technical).

>

>

> Hi, how is your energy level? I find thinking is very energy

> consuming. I have two things going on, one being brain fog, and

the

> other being constant exhaustion. I think the exhaustion is more

of a

> hindrance to thinking and comprehension than the brain fog (if the

> distinction makes any sense to others). Regaining energy is a

long

> term process--I have come from the point of not having enough

energy

> to chew food to now being able to be with others for a short time

and

> joining in conversations. I hope you can find some answers.

> Blessings. Janine

>

My energy levels are very low...I have to literally force myself to

walk the dog. Whether I overdue physically or mentally, the effect

is the same, i.e. " crash " .

[Guest guest]

>

>

>

> Hi

>

> 19 months into the below regime - I still get headaches but when I

keep

> detoxing they continually reduce. Ive set myself a goal to be as

well as io can

> by Mrach 07 - this will be 2 years of doing my regime!!!

>

>

> 1)diet - no wheat or dairy restricts sugar for around 12 months -

>

>

> ***once your glutathione levels are up and you have got to point

5

> reintroduce fruits.

>

> 2) Raising glutathione & thyroid - Whey Protein -

>

> ***It took me 12 months to raise my glutathione levels - at this

point i

> felt no difference taking the whey.

>

> 3) Killing infections - Lactoferrin / Coconut oil / Manuka Honey

>

> ***After taking the whey for around 3 months ( enough to help

detox any

> circulating metals ) ***- I took lactoferrin for 4 weeks to

wipe out bacteria

> ***Then i took coconut oil for 4 weeks to wipe out yeast.

> ***Then i took Manuka honey for 4 weeks to wipe out any remaining

gut

> bacteria ie h pylori

>

> 4) Improving adrenals - Licorice / Salt

>

> ***Take salt in water to correct OI intolerance and reverse

potassium

> imbalance.

> ***Adding licorice in the form of a pure licoice sweet is a

powerful way to

> correct low cortisol.

>

> 5) Improving digestion - Probiotics / Digestive enzyme with oxbile

>

> ***Start adding probiotics at this stage as alot of infections

would have

> been killed off.

> ***Add Digestive enzyme with ox bile as your body has more than

likely

> stopped produceing it as your liver is so overwhelmed by all the

toxins.

>

> 6) Liver / Galbladder flush - Olive oil / Grapefruit juice /

Turmeric /

> Apple juice / probiotics

>

> ***Include Turmeric in your foods for 4 weeks.

> ***Include Apple juice for 4 weeks this will soften stagnant bile

in your

> gallbladder

> ***Simply do this liver flush once a week in between detoxing

heavy metals.

> As once you have started to detox metals some of it will have to

be flushed

> out of the liver gallbladder to prevent it from re circulating.

>

> 7) Bladder Cleanse - OPC's rich fruits

> ***include lots of OPC rich fruits.

>

> 8) Heavy Metals - Coriander herb /Chlorella/ Garlic

> ***do a metal cleanse once every few days and then liver flush -

for around

> 3 months

> ***take chlorella 15 mins before eating - then add coriander to

your food.

> ***take a little garlic with foods also

>

> 9) Kidney Cleanse - Parsley / Lemon juice /Magnesium /Probiotics

to flush

> out any kidney stones

>

> 10) Colon & Bowel Cleanse - Magnesium/ Chlorella / Probiotics

>

> 11) Fatty Liver - Lecithin, Evening Primrose oil / Essential

fatty acids

>

> 12) Vits and Minerals - Vit & Mins, Cod liver oil (vit A), B12

Zinc, mg,

> calcium , potassium Colostrum , probiotics

>

>

> Regards

> CS

>

>

>

>

>

>

[Guest guest]

Hi, I know how you feel. I have a horrible time concentrating and I'm

so extremely exhausted that I can barely do anything. I've begun

D-Ribose, to help with energy. I've read that the following help with

memory and other cognitive problems:

Acetylcholine

Phosphatidyl Serine

L-Tyrosine

Acetyl L-Carnitine

Alpha Lipoic Acid

CoQ10

Piracetam

DMAE

Gingko Biloba

Pregnenolone

Niacin

Green Tea

You can do a search and read about them and decide for yourself if

you'd like to try one or more of them.

I'm about to order (NSI) CoQ10 + Alpha Lipoic Acid + Acetyl

L-Carnitine from Vitacost to help with my cognitive problems and

hopefully give me some energy too.

I hope you feel better.

Sue B.

>

> I have had CFS since 1998, and over the last year also

> developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

>

> My cognitive difficulties are so severe that I have trouble

> concentrating/understanding the posts on this board, (some are very

> technical).

>

> I have been on and off meds for anxiety/panic disorder/depression

> since my teens, but I could always exercise vigorously until after a

> period of extreme stress in 1997 followed immediately by a virulent

> flu.

>

> My doctor says I now have ADD, or rather exhibit ADD behavior, but

> has

> confirmed that I did not have this disorder as a child or young

> adult.

> My understanding is that this condition does not begin in adulthood

> and I had no problems concentrating or studying for hours while in

> school.

>

> He is however, treating me with ADD meds. I had to stop taking

> Adderall because in combination with Levoxyl I started getting

> palpitations. Besides psychiatric meds (anxiety,depression, he then

> retried Provigil, which helps me stay awake but does not help me

> focus. I also had an allergic reaction to it (edema) this time and

> am

> now off it temporarily.

>

> In short, I am a Zombie. I found the exhaustion hard enough, but

> this " Zombie Brain Syndrome " is the most distressing. I'm awake

> enough

> to know that I can't learn anything technical, and my short term

> memory is nothing to brag about.

>

> Only a relaxing nonfiction novel or TV show can hold my attention.

>

> I am going to a memory clinic for tests/MRIs, etc.

>

> Any advice/coping methods/therapies fellow sufferers can offer would

> be most appreciated. Thanks in advance.

>

[Guest guest]

Janine's suggestion that cognitive impairment is related to energy levels, is

in my experience true, though not 100% so. There is a major overlap. There is

also an overlap, I find, with mood. I have taken many things -and still do that

help with one or the other. I have not found it to be entirely a long-term

process. Some things I use have an immediate effect, others build. (I also think

some of the stuff I use, or used to, would be frowned upon by some who say

short-term benefit, but long-term harm-by blocking detox[?] but for now it's

the best I can do.

I just quit using caffeine, which made me very cheerful-until, after a couple

of weeks-if I did it straight, which was always tempting-it made me manic;

aggressive and irritable and speedy.

I also recently quit using D,L phenylalanine, (DLPA), after about 20 yrs of

bearing with the side effects. It provided both physical and mental energy,

tamed my appetite a little, and helped with pain. I found a better substitute

which I will mention below

(Once, a decade or so ago, trying to keep up with well people I used both to

excess and got really crazy. Not locked-up crazy, but bad

enough.)

I know that magnesium affects my muscular strength/energy.

I take pituitrophin, a glandular extract, and it gives mainly strength and

some energy.

I use St 's Wort for depression, very effective. Probably a bit of energy

from that, too.

I am experimenting with Siberian Ginseng. It seems like a gentler substitute

for the caffeine.

But the single most important thing, the most important one I found after the

B12, is a product called Excitacor, a proprietary blend of aminos, vits and

minerals from NeuroScience, Inc. They do an amino acids urine test and then

prescribe the appropriate products to balance the brain. It's almost a year now,

and slowly, I am being energized enough in the day to be active enough to be

able to settle down at a reasonable hour at night. I am having a bit more pain

than when I used the DLPA, which this product substitutes for. (I also take some

stuff at night, to bank my mental fires, so I can sleep. I have started

remembering dreams again.)

Adrienne

My energy levels are very low...I have to literally force myself to

walk the dog. Whether I overdue physically or mentally, the effect

is the same, i.e. " crash " .

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Hi J and all

I wished to mention that this zombiness and brain fog are different things.I

also have brain fog but this zombiness is something completely

different.You can only function like a robot,only able to do the things that

you habitually do and can not think at all. All thinking process,all

reasoning,creative thinking stops.I had this zombie like feeling together

with or without brain fog.At this point I am more or less being able to

control the brain fog by staying away from toxic material but recovering

from zombiness is really very difficult thing to do.

Best wishes to all.

Nil

Re: Severe cognitive difficulties...please

advise.

>I notice a big big difference when I eat trans-fats(partially

> hydrogenated vegetable oils). If I eat them, I have brain fog that

> is really severe. When I don't, my brain fog lessens a lot.

>

> --- In , " qqtip2001 "

>

[Guest guest]

http://vitanetonline.com/description/SN1909/vitamins/THE-TRUE-WHEY/

This is what I take for glutathione. There are other products like

ImmunePro, and RenewPro that are more expensive, but seem to be

basically the same thing.

One thing some people notice is that it will work well for a couple

months, then kind of quit working. That happened to me, and I

lowered my dosage to 1/2 tsp. and started alternating days. Others

seem to not have this issue, and can take it consistantly. But this

stuff has helped me more than anything. Better sleep, etc.

Also, a lot of people feel kind of bad when they first start taking

whey, it seems to be something called 'herxhimer(sp?) reaction',

which is your immune system kicking lots of ass quickly and it takes

a while to filter everything. So most people start out with less

than a tsp, like 1/4 or 1/8 for a few days, then build up.

> >

> >

> >

> > Hi

> >

> > 19 months into the below regime - I still get headaches but when

I

> keep

> > detoxing they continually reduce. Ive set myself a goal to be as

> well as io can

> > by Mrach 07 - this will be 2 years of doing my regime!!!

> >

> >

> > 1)diet - no wheat or dairy restricts sugar for around 12

months -

>

> >

> >

> > ***once your glutathione levels are up and you have got to point

> 5

> > reintroduce fruits.

> >

> > 2) Raising glutathione & thyroid - Whey Protein -

> >

> > ***It took me 12 months to raise my glutathione levels - at this

> point i

> > felt no difference taking the whey.

> >

> > 3) Killing infections - Lactoferrin / Coconut oil / Manuka Honey

> >

> > ***After taking the whey for around 3 months ( enough to help

> detox any

> > circulating metals ) ***- I took lactoferrin for 4 weeks to

> wipe out bacteria

> > ***Then i took coconut oil for 4 weeks to wipe out yeast.

> > ***Then i took Manuka honey for 4 weeks to wipe out any

remaining

> gut

> > bacteria ie h pylori

> >

> > 4) Improving adrenals - Licorice / Salt

> >

> > ***Take salt in water to correct OI intolerance and reverse

> potassium

> > imbalance.

> > ***Adding licorice in the form of a pure licoice sweet is a

> powerful way to

> > correct low cortisol.

> >

> > 5) Improving digestion - Probiotics / Digestive enzyme with

oxbile

> >

> > ***Start adding probiotics at this stage as alot of infections

> would have

> > been killed off.

> > ***Add Digestive enzyme with ox bile as your body has more than

> likely

> > stopped produceing it as your liver is so overwhelmed by all the

> toxins.

> >

> > 6) Liver / Galbladder flush - Olive oil / Grapefruit juice /

> Turmeric /

> > Apple juice / probiotics

> >

> > ***Include Turmeric in your foods for 4 weeks.

> > ***Include Apple juice for 4 weeks this will soften stagnant

bile

> in your

> > gallbladder

> > ***Simply do this liver flush once a week in between detoxing

> heavy metals.

> > As once you have started to detox metals some of it will have to

> be flushed

> > out of the liver gallbladder to prevent it from re circulating.

> >

> > 7) Bladder Cleanse - OPC's rich fruits

> > ***include lots of OPC rich fruits.

> >

> > 8) Heavy Metals - Coriander herb /Chlorella/ Garlic

> > ***do a metal cleanse once every few days and then liver flush -

> for around

> > 3 months

> > ***take chlorella 15 mins before eating - then add coriander

to

> your food.

> > ***take a little garlic with foods also

> >

> > 9) Kidney Cleanse - Parsley / Lemon

juice /Magnesium /Probiotics

> to flush

> > out any kidney stones

> >

> > 10) Colon & Bowel Cleanse - Magnesium/ Chlorella / Probiotics

> >

> > 11) Fatty Liver - Lecithin, Evening Primrose oil / Essential

> fatty acids

> >

> > 12) Vits and Minerals - Vit & Mins, Cod liver oil (vit A), B12

> Zinc, mg,

> > calcium , potassium Colostrum , probiotics

> >

> >

> > Regards

> > CS

> >

> >

> >

> >

> >

> >

[Guest guest]

It kind of sounds like thyroid issues. When I took thyroid meds, my

attitude really perked up. I can't take them because they affect my

sleep too much, but when I was taking them, it really helped. Even

if it was chopping a 75mcg pill into 8ths or 16ths, and taking like

one little bit a week.

>

> Hi J and all

>

> I wished to mention that this zombiness and brain fog are

different things.I

> also have brain fog but this zombiness is something completely

> different.You can only function like a robot,only able to do the

things that

> you habitually do and can not think at all. All thinking

process,all

> reasoning,creative thinking stops.I had this zombie like feeling

together

> with or without brain fog.At this point I am more or less being

able to

> control the brain fog by staying away from toxic material but

recovering

> from zombiness is really very difficult thing to do.

> Best wishes to all.

>

> Nil

> Re: Severe cognitive

difficulties...please

> advise.

>

>

> >I notice a big big difference when I eat trans-fats(partially

> > hydrogenated vegetable oils). If I eat them, I have brain fog

that

> > is really severe. When I don't, my brain fog lessens a lot.

> >

> > --- In , " qqtip2001 "

> >

>

[Guest guest]

Hello. I noticed from the site below that True Whey has 1 mg. of

sugar per 10 mg. serving. That is usually not good. It also doesn't

say what the other ingredients are if any.

Mike C

>

> http://vitanetonline.com/description/SN1909/vitamins/THE-TRUE-WHEY/

>

> This is what I take for glutathione. There are other products like

> ImmunePro, and RenewPro that are more expensive, but seem to be

> basically the same thing.

[Guest guest]

Wasn't that a form of lactose, Mike?

Adrienne

Re: Severe cognitive difficulties...please

advise.

Hello. I noticed from the site below that True Whey has 1 mg. of

sugar per 10 mg. serving. That is usually not good. It also doesn't

say what the other ingredients are if any.

Mike C

[Guest guest]

ImmunePro has 0.6g sugar per 10g serving -

http://www.wellwisdom.com/a_immunoprorx.php

RenewPro has 0.8g - http://www.wellwisdom.com/a_immunoprorx.php

Serving info for TrueWhey is 10g.

Other ingredients are natural vanilla flavor, and stevia.

> >

> > http://vitanetonline.com/description/SN1909/vitamins/THE-TRUE-

WHEY/

> >

> > This is what I take for glutathione. There are other products

like

> > ImmunePro, and RenewPro that are more expensive, but seem to be

> > basically the same thing.

>

[Guest guest]

IS that True Whey figure also for a 10 g serving?

Adrienne

Re: Severe cognitive difficulties...please

advise.

ImmunePro has 0.6g sugar per 10g serving -

http://www.wellwisdom.com/a_immunoprorx.php

RenewPro has 0.8g - http://www.wellwisdom.com/a_immunoprorx.php

Serving info for TrueWhey is 10g.

Other ingredients are natural vanilla flavor, and stevia.

> >

> > http://vitanetonline.com/description/SN1909/vitamins/THE-TRUE-

WHEY/

> >

> > This is what I take for glutathione. There are other products

like

> > ImmunePro, and RenewPro that are more expensive, but seem to be

> > basically the same thing.

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

>

>

>

> Hi

>

> 19 months into the below regime - I still get headaches but when I

keep

> detoxing they continually reduce. Ive set myself a goal to be as

well as io can

> by Mrach 07 - this will be 2 years of doing my regime!!!

>

>

> 1)diet - no wheat or dairy restricts sugar for around 12 months -

>

>

> ***once your glutathione levels are up and you have got to point

5

> reintroduce fruits.

>

> 2) Raising glutathione & thyroid - Whey Protein -

>

> ***It took me 12 months to raise my glutathione levels - at this

point i

> felt no difference taking the whey.

>

> 3) Killing infections - Lactoferrin / Coconut oil / Manuka Honey

>

> ***After taking the whey for around 3 months ( enough to help

detox any

> circulating metals ) ***- I took lactoferrin for 4 weeks to

wipe out bacteria

> ***Then i took coconut oil for 4 weeks to wipe out yeast.

> ***Then i took Manuka honey for 4 weeks to wipe out any remaining

gut

> bacteria ie h pylori

>

> 4) Improving adrenals - Licorice / Salt

>

> ***Take salt in water to correct OI intolerance and reverse

potassium

> imbalance.

> ***Adding licorice in the form of a pure licoice sweet is a

powerful way to

> correct low cortisol.

>

> 5) Improving digestion - Probiotics / Digestive enzyme with oxbile

>

> ***Start adding probiotics at this stage as alot of infections

would have

> been killed off.

> ***Add Digestive enzyme with ox bile as your body has more than

likely

> stopped produceing it as your liver is so overwhelmed by all the

toxins.

>

> 6) Liver / Galbladder flush - Olive oil / Grapefruit juice /

Turmeric /

> Apple juice / probiotics

>

> ***Include Turmeric in your foods for 4 weeks.

> ***Include Apple juice for 4 weeks this will soften stagnant bile

in your

> gallbladder

> ***Simply do this liver flush once a week in between detoxing

heavy metals.

> As once you have started to detox metals some of it will have to

be flushed

> out of the liver gallbladder to prevent it from re circulating.

>

> 7) Bladder Cleanse - OPC's rich fruits

> ***include lots of OPC rich fruits.

>

> 8) Heavy Metals - Coriander herb /Chlorella/ Garlic

> ***do a metal cleanse once every few days and then liver flush -

for around

> 3 months

> ***take chlorella 15 mins before eating - then add coriander to

your food.

> ***take a little garlic with foods also

>

> 9) Kidney Cleanse - Parsley / Lemon juice /Magnesium /Probiotics

to flush

> out any kidney stones

>

> 10) Colon & Bowel Cleanse - Magnesium/ Chlorella / Probiotics

>

> 11) Fatty Liver - Lecithin, Evening Primrose oil / Essential

fatty acids

>

> 12) Vits and Minerals - Vit & Mins, Cod liver oil (vit A), B12

Zinc, mg,

> calcium , potassium Colostrum , probiotics

>

>

> Regards

> CS

>

>

>

>

>

>

[Guest guest]

if you want a blast go with valganciclovir/valcyte.

again,

www.ihmf.org/journal/download/HHV-6Report.pdf

is the paper sent out by Klimas with the IACFS invite and was passed on

to me, so it is more than just " interesting " .

Make sure you take it regularly, probably do the induction (3x/day for

a week--i didn't do), just check CBC/platelets weekly for the first

month, then every couple weeks. Cognitive surge, response can be

dramatic. The CMV423 mentioned in the paper would be highly

SYNERGISTIC with valcyte, so hopefully this becomes available soon--

If you have EBV up, you have 6b/ possibly 6a--they still don't know the

numbers. Read the Paper.

If you could get a test to type the 6a vs. 6b before starting this anti-

viral it would be ideal as you probably can't get a valid test

afterwards, but if you're getting smoked...

google CD46 and HHV6 and see what this is doing in YOUR brain, how this

pulls MHC-1 off the cell surface into the lysosome (read Stealth) and

goes cell-cell transfer.

HIV has HAART-- DAAT (dually active antiviral therapy) is just around

the bend?--i would like some CMV423 now. If you want to piss away with

acyclovir (Valtrex, Famvir etc. go ahead, you may induce viral TK

resistance); these DON'T cross the BBB and don't work anyway (as posted

VGC effective vs EBV, 6a/6b--if you don't think you have that then what

do you think is your problem?).

Where would PWA's be without HAART?

Keep doing all your other stuff, but you just might want to consider

lying down a viral blockade...without that you can take whatever you

want, even nutri-switch RNA, no comment. Once you do this for 8 weeks,

you MIGHT be able to start thinking about neural repair/plasticity--

taking on other things that can activate RNAseL (Chlaymida pn.--common

in 50%+, mycoplasma/l-forms etc); GH impt for repair downstream-check

IGF-1, also push exercise envelope to tolerance as energy improves

(yes, GET would probably be helpful as it has been shown to be helpful

in plasticity as well, but only if one has the energy to do it and this

gives you that bump) Just my take on it all, so cheney quit chasing co-

infections? Anti-viral blockade and then its probably worth chasing

the others?

See the post on CFS_Yasko, " hope-shot " on new potent GSH precursors--

got somebody working on this.

***As they are finding 6b/ 6a also (they don't know yet) in cervical

samples, somebody needs to look for 6a (HHV-9 for Dr. Gallo) as this

likely goes retrograde via the hyposglossal nerve= encephalitis. Check

serial samples in CFIDS population...that would make it another STD,

CDC priority one? go check.

Sleep hint passed on to me (as promised)-- take the clonazepam 3 hrs

before sleep so it goes partially thru one half life, this will then

interfere less with delta. See that Klimas agrees with low dose

mirtazapine, remeron sol-tab as well. Try 15 mg--->7.5 mg. You need a

centrally acting anti-histamine...

Also, there is the " stair test " --everybody wants a test named after

them, just call it the stair test (it's very complicated test!

cost=$74.95...bargain price)

THE STAIR TEST

" There was a time when i had to pause to sit

down on the stairs.

i just couldn't make it...

so i just sat down and cried.

Then i crept them one at a time, drag-ged leg

Then i took them one by one,

Then happy day...i did the two-step,

Then i lept them 3x3, yipee. "

b.t.w. it looks like you don't want to be on isoprinosine if on

valcyte, iso was found to keep AZT de-phosphorylated...from what i

understand these need to be tri-phosphorylated (TP form) for activity.

and too bad, so sad an id doc told me vgc wasn't effective vs. any

dsDNA, herpes virus in '02 or we might have gotten here sooner, ah well.

BW

p.s. try the new 'google scholar' search, you can get it by googling

for it then add the search box to your google page...it is quite useful

tool.

louella--noted you are doing ginsenosides, saw the klimas comment that

only one form is helpful (others may be harmful?), sorry i don't know

which form.

[Guest guest]

I have been living in " Zombie Land " since 1989. As I am to zombie to

read a book/look into magazines, I listen to books. Tried a lot

things and I often feel very dumb as I dont' understand simple

discussions. It is exhausting to make phone calls.. Watching a little

tv is okay, and painting is working for me. FOr years I felt very bad

the week before, and during my menstruation. Now that we managed that

to turn around (nystatine), I feel so brainfogged when I am not

having my menstruation... It drives me crazy sometimes. I would

travel anywhere in the world if there was a Doctor who could hep me

with this

>

> I have had CFS since 1998, and over the last year also

> developed " silent thryoiditis " (on Levoxyl .05 mcg/day.

>

> My cognitive difficulties are so severe that I have trouble

> concentrating/understanding the posts on this board, (some are very

> technical).

>

> I have been on and off meds for anxiety/panic disorder/depression

> since my teens, but I could always exercise vigorously until after

a

> period of extreme stress in 1997 followed immediately by a virulent

> flu.

>

> My doctor says I now have ADD, or rather exhibit ADD behavior, but

> has

> confirmed that I did not have this disorder as a child or young

> adult.

> My understanding is that this condition does not begin in adulthood

> and I had no problems concentrating or studying for hours while in

> school.

>

> He is however, treating me with ADD meds. I had to stop taking

> Adderall because in combination with Levoxyl I started getting

> palpitations. Besides psychiatric meds (anxiety,depression, he

then

> retried Provigil, which helps me stay awake but does not help me

> focus. I also had an allergic reaction to it (edema) this time and

> am

> now off it temporarily.

>

> In short, I am a Zombie. I found the exhaustion hard enough, but

> this " Zombie Brain Syndrome " is the most distressing. I'm awake

> enough

> to know that I can't learn anything technical, and my short term

> memory is nothing to brag about.

>

> Only a relaxing nonfiction novel or TV show can hold my attention.

>

> I am going to a memory clinic for tests/MRIs, etc.

>

> Any advice/coping methods/therapies fellow sufferers can offer

would

> be most appreciated. Thanks in advance.

>