Re: Severe cognitive difficulties...please advise.

[Guest guest]

A good diet is more than few sweets and low carb.

Your penchant for chocolate may suggest a need for more Magnesium and.or the

antioxidants in chocolate rather than the sugar or the fats.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

I also get the impression that everyone is extremely careful about

their diet....I have to admit that I was very good at one time (no

sweets, rather low carb), but I've gotten into some very bad eating

habits, particularly with sweets, especially chocolate.

[Guest guest]

Yes, ImmunePro and RenewPro serving info is 5g, TrueWhey serving

info is 10g, so you have to x2 the info from Immune and Renew to

match up with TrueWhey. And the link for Renew was wrong, I did

Immune twice.

http://vitanetonline.com/forums/1/Thread/866

http://www.wellwisdom.com/a_immunoprorx.php

http://www.wellwisdom.com/a_renewpro.php

> > >

> > > http://vitanetonline.com/description/SN1909/vitamins/THE-

TRUE-

> WHEY/

> > >

> > > This is what I take for glutathione. There are other

products

> like

> > > ImmunePro, and RenewPro that are more expensive, but seem to

be

> > > basically the same thing.

> >

>

>

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested

in any treatment discussed here, please consult your doctor.

>

[Guest guest]

In a message dated 15/11/2006 18:24:23 GMT Standard Time,

mariska31@... writes:

I have been living in " Zombie Land " since 1989. As I am to zombie to

read a book/look into magazines, I listen to books. Tried a lot

things and I often feel very dumb as I dont' understand simple

discussions. It is exhausting to make phone calls.. Watching a little

tv is okay, and painting is working for me. FOr years I felt very bad

the week before, and during my menstruation. Now that we managed that

to turn around (nystatine), I feel so brainfogged when I am not

having my menstruation.having my menstruation.<WBR>.. It dri

travel anywhere in the world if there was a Doctor who could hep me

with this

*******Look into Amy Yakso , DAN , kane, Klinghardt and

curezone.com

Regards

CS

[Guest guest]

" Mariska " wrote:

>

> I have been living in " Zombie Land " since 1989. . I would travel

anywhere in the world if there was a Doctor who could hep me with this

>

I remember you.

Would travel to warm climates and feel better, only fall to apart when

you returned to damp nasty 'ol Holland.

Somewhat better in summer, and worse in winter.

Classic " moldie " complaints. Take the VCS test at:

www.chronicneurotoxins.com.

I know it sounds crazy - that this couldn't POSSIBLY apply to you.

Betcha a case of Heineken that it does!

-

[Guest guest]

,

I think I might have asked you this before, but what if a person, (such as

myself) passes the VCS test with just a couple of bloopers and not all that bad?

Should I continue to think I'm a moldie?

Edy

erikmoldwarrior <erikmoldwarrior@...> wrote:

" Mariska " wrote:

>

> I have been living in " Zombie Land " since 1989. . I would travel

anywhere in the world if there was a Doctor who could hep me with this

>

I remember you.

Would travel to warm climates and feel better, only fall to apart when

you returned to damp nasty 'ol Holland.

Somewhat better in summer, and worse in winter.

Classic " moldie " complaints. Take the VCS test at:

www.chronicneurotoxins.com.

I know it sounds crazy - that this couldn't POSSIBLY apply to you.

Betcha a case of Heineken that it does!

-

[Guest guest]

Edy Rayfield wrote:

>

> ,

I think I might have asked you this before, but what if a person,

(such as myself) passes the VCS test with just a couple of bloopers

and not all that bad? Should I continue to think I'm a moldie?

> Edy

The false negatives have been a confounder that lets some people

slip through the cracks. After the initial cytokine cascade that

depletes MSH, if the thalamus isn't wiped out and ACTH can rebuild,

it looks like the VCS can normalize.

But once you are " primed " , and constantly enduring elevated innate

immune responses from occult " subclinical " exposures that can keep

you worn down.

You can sue feel the big " mold hits " though - such as when a

weather front unleashes a vastly increased ambient mycotoxin load

from spore plumes.

-

[Guest guest]

Thanks ,

I'm seeing a mold doc here in central CA that admires Shoemaker, but has a

couple of different opinions. His name is Marinkovich, you can google him, but

he did a MAST test on me and I'm looking for some input on this. At this point

he has me on Nizoral nose spray and boy has it caused some herxing. That would

indicate to me that I am killing mold. Am I correct in thinking this?

Mucho Thanks,

Edy

Re: Severe cognitive difficulties...please

advise.

Edy Rayfield wrote:

>

> ,

I think I might have asked you this before, but what if a person,

(such as myself) passes the VCS test with just a couple of bloopers

and not all that bad? Should I continue to think I'm a moldie?

> Edy

The false negatives have been a confounder that lets some people

slip through the cracks. After the initial cytokine cascade that

depletes MSH, if the thalamus isn't wiped out and ACTH can rebuild,

it looks like the VCS can normalize.

But once you are " primed " , and constantly enduring elevated innate

immune responses from occult " subclinical " exposures that can keep

you worn down.

You can sue feel the big " mold hits " though - such as when a

weather front unleashes a vastly increased ambient mycotoxin load

from spore plumes.

-

------------------------------------------------------------------------------

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Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006

[Guest guest]

" Edy Rayfield " wrote:

>

> Thanks ,

>

> I'm seeing a mold doc here in central CA that admires Shoemaker,

but has a couple of different opinions. His name is Marinkovich,

you can google him, but he did a MAST test on me and I'm looking for

some input on this. At this point he has me on Nizoral nose spray

and boy has it caused some herxing. That would indicate to me that

I am killing mold. Am I correct in thinking this?

> Mucho Thanks,

> Edy

Perhaps that, and stirring up Methicillin resistant Staph and Strep

bacteria besides.

I would say that the fact Dr Marinkovich did a MAST test suggests

that although he may admire Dr S. he hasn't altered his concepts

much since I saw him.

/message/59565

-

[Guest guest]

,

You know of him then? Am I barking up the wrong tree? Is this a good enough

jump off point? I only have so much financial leeway and not enough experience.

If I could pull it off would it be a better choice to see Dr. S?

Edy

Re: Severe cognitive difficulties...please

advise.

" Edy Rayfield " wrote:

>

> Thanks ,

>

> I'm seeing a mold doc here in central CA that admires Shoemaker,

but has a couple of different opinions. His name is Marinkovich,

you can google him, but he did a MAST test on me and I'm looking for

some input on this. At this point he has me on Nizoral nose spray

and boy has it caused some herxing. That would indicate to me that

I am killing mold. Am I correct in thinking this?

> Mucho Thanks,

> Edy

Perhaps that, and stirring up Methicillin resistant Staph and Strep

bacteria besides.

I would say that the fact Dr Marinkovich did a MAST test suggests

that although he may admire Dr S. he hasn't altered his concepts

much since I saw him.

/message/59565

-

------------------------------------------------------------------------------

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Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006

[Guest guest]

> >

> > I have been living in " Zombie Land " since 1989. . I would travel

> anywhere in the world if there was a Doctor who could hep me with

this

> >

>

>

> I remember you.

> Would travel to warm climates and feel better, only fall to apart

when

> you returned to damp nasty 'ol Holland.

> Somewhat better in summer, and worse in winter.

>

> Classic " moldie " complaints. Take the VCS test at:

>

> www.chronicneurotoxins.com.

>

> I know it sounds crazy - that this couldn't POSSIBLY apply to you.

>

> Betcha a case of Heineken that it does!

>

> -

Yes that is me! We moved to the US b/c of CFS. It is better to see

the sun more often, but the winters are too long and cold. ANd so we

have a new plan to move to Mexico.

In summer I do feel a little better and I start to function muy

better when the temperature is 32C or higher. Summers can be really

humid here as well. If I had mold problems wouldn't I feel even worse

these times?

I do have some sinus problems. I am not congested but always seem to

have pressure in that area. (that is how my CFS started)

And do many of you feel better when treated by a mold specialist?

Thank you for the responses.

[Guest guest]

" Edy Rayfield " <edyrayfield@...> wrote:

>

> ,

>

> You know of him then? Am I barking up the wrong tree? Is this a

good enough jump off point? I only have so much financial leeway

and not enough experience. If I could pull it off would it be a

better choice to see Dr. S?

>

> Edy

I don't want to " diss " Dr. M as he seemed like a really ethical and

caring doctor, but his concepts were simply inadequate to address my

situation, and he showed a peculiar lack of interest in helping me

research or pursue more aggressive or innovative treatments.

Dr S. has done both.

But if Dr M has made progress since then and has ordered Dr S's

tests for you, then perhaps things have changed.

-

[Guest guest]

,

He's ordered no such tests. In fact I went with a list, but didn't feel it was

appropriate to bring it up. I have a doc here in my town that will order

anything I need or want, but of course has no way of interpreting. Dr. S's

office won't work with me directly unless I make the trek out there at least

once. But they will work with another doc without the trip. I understand

completely about dissing someone as caring as I believe Dr. M to be, but my life

is on the line and I can't and won't waste anymore time running down the wrong

path. May I ask what you think about Dr. K in WA? He addresses mold along with

lyme which is a major issue for me. I hope I'm not asking too much, I need info

from somewhere. BC me if you want.

Thanks, Edy

Re: Severe cognitive difficulties...please

advise.

" Edy Rayfield " <edyrayfield@...> wrote:

>

> ,

>

> You know of him then? Am I barking up the wrong tree? Is this a

good enough jump off point? I only have so much financial leeway

and not enough experience. If I could pull it off would it be a

better choice to see Dr. S?

>

> Edy

I don't want to " diss " Dr. M as he seemed like a really ethical and

caring doctor, but his concepts were simply inadequate to address my

situation, and he showed a peculiar lack of interest in helping me

research or pursue more aggressive or innovative treatments.

Dr S. has done both.

But if Dr M has made progress since then and has ordered Dr S's

tests for you, then perhaps things have changed.

-

------------------------------------------------------------------------------

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Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006

[Guest guest]

I believe herxheimer reactions are limited to the killing of bacteria, which

mold is not.

Adrienne

Re: Severe cognitive difficulties...please

advise.

Edy Rayfield wrote:

>

> ,

I think I might have asked you this before, but what if a person,

(such as myself) passes the VCS test with just a couple of bloopers

and not all that bad? Should I continue to think I'm a moldie?

> Edy

The false negatives have been a confounder that lets some people

slip through the cracks. After the initial cytokine cascade that

depletes MSH, if the thalamus isn't wiped out and ACTH can rebuild,

it looks like the VCS can normalize.

But once you are " primed " , and constantly enduring elevated innate

immune responses from occult " subclinical " exposures that can keep

you worn down.

You can sue feel the big " mold hits " though - such as when a

weather front unleashes a vastly increased ambient mycotoxin load

from spore plumes.

-

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006

[Guest guest]

" Edy Rayfield " wrote:

> ,

but my life is on the line and I can't and won't waste anymore time

running down the wrong path.

> Thanks, Edy

That's where I was when I " lost it " in Dr s office and

started screaming " Are you ever going to help me with the MOLD?, Just

tell me YES OR NO??? "

I wanted to live, to breathe, to be able to predict when I could

stand up, to have one moment free of shrieking pain, and I did it!

I can't tell you how difficult it was, so much easier to just show you.

It was a totally wild leap at this weird concept, like a vague feeling

that mold was affecting me MORE THAN IT FELT LIKE IT WAS.

But years of experience have shown me that I cannot explain this

through messages. I have to literally drag someone in and out of mold

exposures, time after time, before it starts to sink in just how

desperately this stuff must be avoided.

I can tell you this! Truckee HS, where " CFS began " is still one of

those places. You can go there and watch your veins go wild.

It does't feel like all that much - certainly a " strong willed person "

could tough it out.

NO, this response doesn't care.

If you're a " moldie " , it will eat you alive, piece by piece, bit by

bit, until you're nothing but a groveling pathetic miserable lump of

flesh.

-

[Guest guest]

Perhaps there is som sort of agreement (or 'conspiracy'?) to avoid going

down the mold path. There certainly is a lot of pressure on them in some

way. maybe its just that when they hear 'mold' they think 'lawsuit' and they

just don't have the time to testify - in anything for any reason, being so

pressed for time these days.

A 'CFS' or 'Fibromyalgia' (whatever that is) is nice and comfortable for

them in that it avoids placing the blame for the disease on anything of

anybody... it doesn't force people to confront their living or work

situations and move or leave the way mold does..

Nomatter how incredibly toxic a person's home is, even if they prove it,

public agencies are reluctant to get involved in a situation, even if you

rent. If you had any other chemical where the concentrations were as high as

they can get with say, stachbotrys and the poisons had similar levels of

toxicity, the guys with moon suits would be there.. but when they hear mold,

their eyes just glaze over and their brains turn off..

Its TOO BIG of a problem...

[Guest guest]

As Dr. M said...mold is what breaks down a compost heap or eats leaf piles up

into dirt. Mold is literally trying to compost your body and it doesn't feel

good at all!!!!

erikmoldwarrior <erikmoldwarrior@...> wrote: " Edy Rayfield "

wrote:

> ,

but my life is on the line and I can't and won't waste anymore time

running down the wrong path.

> Thanks, Edy

That's where I was when I " lost it " in Dr s office and

started screaming " Are you ever going to help me with the MOLD?, Just

tell me YES OR NO??? "

I wanted to live, to breathe, to be able to predict when I could

stand up, to have one moment free of shrieking pain, and I did it!

I can't tell you how difficult it was, so much easier to just show you.

It was a totally wild leap at this weird concept, like a vague feeling

that mold was affecting me MORE THAN IT FELT LIKE IT WAS.

But years of experience have shown me that I cannot explain this

through messages. I have to literally drag someone in and out of mold

exposures, time after time, before it starts to sink in just how

desperately this stuff must be avoided.

I can tell you this! Truckee HS, where " CFS began " is still one of

those places. You can go there and watch your veins go wild.

It does't feel like all that much - certainly a " strong willed person "

could tough it out.

NO, this response doesn't care.

If you're a " moldie " , it will eat you alive, piece by piece, bit by

bit, until you're nothing but a groveling pathetic miserable lump of

flesh.

-

[Guest guest]

Edy Rayfield wrote:

>

> As Dr. M said...mold is what breaks down a compost heap or eats

leaf piles up into dirt. Mold is literally trying to compost your

body and it doesn't feel good at all!!!!

>

Hmmm. Sounds like he didn't even read the book.

This is not the proper " conceptual framework " that needs to be

created.

While that saprophytic action is certainly a component, it is the

release of specific toxins - secondary metabolites, you know, the

biotoxin " antibiotics " that are of concern to a " moldie " .

And as soon as you forget about " mold trying to eat me " , the next

thing you have to forget is the " Dose makes the poison " concept.

Not always! Not when it's a " genotoxin " which reconfigures

immunological activity through sheer duration of the inflammatory

response. See Dr Shoemakers Chapt. in Mold Warriors, " It's The

Inflammation, Stupid " , which is a sly reference to the tug of war

between " pathogen vs. terrain " conceptualists, in which the " Bug

People " retook the fore using the battle cry

" It's the GERMS, Stupid " .

-

(I got the mold group pissed off at me for quoting this, and

someone responded " Who you calling stupid, mr. smart azz " )

[Guest guest]

No he didn't read the book and I had it in hand when I arrived for my

appointment. I mentioned cholostramine and he doesn't use it. I see now that

Dr. S is calling his clinic the Chronic Fatigue Clinic. I know there's only a

handful of docs in the country that can understand and have a plan of action for

those of us that are the hardest core cases. But don't you think that by

changing the terraine it does give the bugs a chance to go for it? I certainly

feel invaded. I'm going to ask again. If you only had X amount of finances and

had to make the most of them who would you choose? This is not to diss anyone.

Just who? For me it's a toss up between Dr. K and Dr. S. But what I don't know

or understand is a lot. Hence, I'm asking, you and the group. If any of

you could choose someone to be your guide money no object, where? Who?

Edy

erikmoldwarrior <erikmoldwarrior@...> wrote:

Edy Rayfield wrote:

>

> As Dr. M said...mold is what breaks down a compost heap or eats

leaf piles up into dirt. Mold is literally trying to compost your

body and it doesn't feel good at all!!!!

>

Hmmm. Sounds like he didn't even read the book.

This is not the proper " conceptual framework " that needs to be

created.

While that saprophytic action is certainly a component, it is the

release of specific toxins - secondary metabolites, you know, the

biotoxin " antibiotics " that are of concern to a " moldie " .

And as soon as you forget about " mold trying to eat me " , the next

thing you have to forget is the " Dose makes the poison " concept.

Not always! Not when it's a " genotoxin " which reconfigures

immunological activity through sheer duration of the inflammatory

response. See Dr Shoemakers Chapt. in Mold Warriors, " It's The

Inflammation, Stupid " , which is a sly reference to the tug of war

between " pathogen vs. terrain " conceptualists, in which the " Bug

People " retook the fore using the battle cry

" It's the GERMS, Stupid " .

-

(I got the mold group pissed off at me for quoting this, and

someone responded " Who you calling stupid, mr. smart azz " )

[Guest guest]

This is a pretty good description of some of the tests Dr. Shoemaker gives

patients that he included in a report that he gave St. Bernard's Parish in

Louisiana after he went down there to treat people who had been floored by

mold llness in the wake of Katrina.

Its a good medical description of some of his tests in a short format..

The PDF of this report is on the web if you look for it ...it has a lot more

information..

Again, I did not write this, and its just the descriptions of some tests..

I got this from the appendix of a toxin report Dr. Shoemaker did for St.

Bernard's Parish, LA..

_________________________cut here__________

Appendix A to RCS Letter February 22, 2006

Vision Tests & Analyses

All subjects who normally wore corrective lenses for near-point viewing were

asked to wear

them during vision testing. The visual acuity and VCS tests were

administered monocularly

to each eye; an eye occluder was held over one eye while the other eye was

tested. All

vision tests were administered under illumination from a " daylight "

illuminator (fluorescent

source with a correlated color temperature of approximately = 6500E K; color

rendering

index > 90; intensity = 1150 lux; luminance approximately 70 foot-lamberts)

in a clinical

unit with normal background lighting. A light meter was used to insure that

luminance

remained constant throughout the test sessions. A test card holder,

consisting of a face rest

placed just under the cheek bones or chin as comfort provided, and connected

by a calibrated

rod to a card holder on the distal end, was used to position the acuity and

VCS test cards at a

constant distance, previously standardized, from the eyes (acuity - 36 cm

(14 inches);

contrast sensitivity - 46 cm (18 inches)).

Near Visual Acuity

The acuity test card (MIS Pocket Vision Guide, © 1997 MIS, Inc.) contained

10 rows of

numbers in which the size of the numbers progressed from a larger size in

the top row to a

smaller size in the bottom row. Participants were asked to first read the

numbers in a middle

row. Testing proceeded to the next lower row if all numbers were correctly

identified or to

the next higher row if an error occurred. The Snellen visual acuity of the

row (20/20 or

20/30, for example) with the smallest numbers each identified correctly was

recorded as the

visual acuity score. Two-tailed Student t-tests 0.05 were performed, using

the mean score of

each participant's two eyes, to determine if scores differed significantly

between cohorts.

Contrast Sensitivity (VCS)

The contrast sensitivity test card (Functional Acuity contrast Test, (FACT),

Stereo Optical

Co., Chicago, IL, a Gerber-Coburn Co.) contained a matrix (5 x 9) of circles

filled with

sinusoidal gratings (dark and light bars). Spatial frequency (1.5, 3, 6, 12

and 18 cycles/degree

of visual arc) increased from top to bottom, and contrast decreased from

left to right in steps

of approximately 0.15 log units. The grating bars were oriented either

vertically, or tilted 15

degrees to the left or right. As the investigator called out each circle

from left to right, row by

row, subjects responded by saying either: vertical, left, right or blank.

Participants were

encouraged to name an orientation if they had any indication that the bars

could be seen.

Participants were given the option to point in the direction to which the

top of the grating was

tilted if they felt any difficulty in verbalizing the orientation; none

needed this assistance.

The contrast sensitivity score for each row (spatial frequency) was recorded

as the contrast of

the last test patch correctly identified on that row following verification

by repeated testing of

that patch and the subsequent patch. The procedure was repeated for each row

in descending

order. The a priori criterion for the inclusion of data in analyses was that

the eye has a visual

acuity (Snellen Distance Equivalent Score) of 20:50 or better, in order to

avoid confounding

of the VCS results by excessive optical-refraction error. All eyes include

in data analyses met

the visual acuity criterion.

Data Analysis:

The units of analysis for the VCS test were the mean scores of the

participant's two eyes at

each spatial frequency. Standard error of the mean was calculated for each

group of

measurements. The VCS data were analyzed using multivariate analyses of

variance

(MANOVA, with the Wilks' lambda statistic) procedures suitable for repeated

measures with

+ = 0.05. The factors in the model were group and spatial frequency. A

factor for gender

was not included since there aren't any gender differences in susceptibility

to biotoxininduced

effects shown as yet, and no gender differences in VCS have been reported.

Results

that showed a significant group-by-spatial frequency interaction were

further analyzed in the

step-down, two-tailed Student t-tests (+ = 0.05), the equivalent of a

univariate ANOVA to

determine which spatial frequencies accounted for the overall effect.

Laboratory Tests:

LabCorp, Inc., Quest Diagnostics, and Specialty Laboratories, Inc., each

CLIA approved,

high complexity, national laboratory facilities.

MSH: alpha melanocyte stimulating hormone (MSH) is a 13 amino acid compound

formed

in the ventromedial nucleus (VMN) of the hypothalamus, solitary nucleus and

arcuate

nucleus by cleavage of proopiomelanocortin (POMC) to yield beta-endorphin

and MSH.

MSH exerts inductive regulatory effects on production of hypothalamic

endorphins and

melatonin. MSH has multiple anti-inflammatory and neurohormonal regulatory

functions,

exerting regulatory control on peripheral cytokine release as well as on

both anterior and

posterior pituitary function. Deficiency of MSH, commonly seen in

biotoxin-associated

illnesses, is associated with impairment of multiple regulatory functions

and dysregulation of

pituitary hormone release. Symptoms associated with MSH deficiency include

chronic

fatigue and chronic, unusual pain syndromes. Normal values of MSH in

commercial labs

(Esoterix and LabCorp) are 35-81 pg/ml.

Leptin: leptin is a 146 amino acid adipocytokine produced by fat cells in

response to rising

levels of fatty acids. Leptin has peripheral metabolic effects, promoting

storage of fatty

acids, as well as central effects in the hypothalamus. Following binding by

leptin to a long

isoform of the leptin receptor in the VMN, a primordial gp-130 cytokine

receptor, a JAK

signal causes transcription of the gene for POMC, which is in turned cleaved

to make MSH.

Peripheral cytokine responses can cause phosphorylation of a serine moiety

(instead of

threonine) on the leptin receptor, creating leptin resistance and relative

deficiency of MSH

production. Normal values in commercial labs show differences between males

(5-8 ng/ml)

and females (8-18 ng/ml), with levels of leptin correlated with BMI.

ADH/osmolality: abnormalities in ADH/osmolality are recorded as absolute if

ADH is < 1.3

or > 8 pg/ml; or if osmolality is >295 or <275 mOsm/kg. Abnormalities are

recorded as

relative if simultaneous osmolality is 292-295 and ADH < 2.3; or if osmo is

275-278 and

ADH> 4.0. Symptoms associated with dysregulation of ADH include dehydration,

frequent

urination, with urine showing low specific gravity; excessive thirst and

sensitivity to static

electrical shocks; as well as edema and rapid weight gain due to fluid

retention during initial

correction of ADH deficits.

ACTH/cortisol: abnormalities in ACTH/cortisol are absolute if AM cortisol >

19 ug/ml or <

8 ug/ml; or if AMACTH is >60 pg/ml or < 10 pg/ml. Abnormalities are recorded

as

dysregulation if simultaneous cortisol is > 15 and ACTH is > 15, or if

cortisol is < 8 and

ACTH <40. Early in the illness, as MSH begins to fall, high ACTH is

associated with few

symptoms; amarked increase in symptoms is associated with a fall in ACTH.

Finding

simultaneous high cortisol and high ACTH may prompt consideration of ACTH

secreting

tumors, but the reality is that the dysregulation usually corrects with

therapy.

Androgens: total testosterone, androstenedione and DHEA-S provide

measurements

regarding the effectiveness of gonadotrophin secretion as influenced

adversely by MSH

deficiency. Normal ranges of these hormones in males are 75-205 ng/ml for

androstenedione, 350-1030 ng/ml for testosterone and 70-218 ug/ml for

DHEA-S. Normal

values for pre-menopausal women are 60-245, 10-55 and 48-247, respectively.

Postmenopausal

normal ranges are 30-120, 7-40 and 48-247, respectively.

HLA DR by PCR: LabCorp offers a standard HLA DR typing assay of 10 alleles

using a

PCR sequence specific chain reaction technique. As opposed to serologic

assays for the

HLA DR genotypes, the PCR gives far greater specificity in distinguishing

individual allele

polymorphisms. Linkage disequilibrium is strong in these genotypes, with

multiple

associations made to inflammatory and autoimmune disease. These genes are

part of the

human major histocompatibility complex (MHC), also called the HLA complex,

located on

the short arm of chromosome 6. Relative risk was calculated, susceptible

genotypes

identified, compared within each group to location and exposure.

MMP9: matrix metalloproteinase 9 (gelatinase is an extracellular

zinc-dependent enzyme

produced by cytokine-stimulated neutrophils and macrophages. MMP9 is

involved in

degradation of extracellular matrix; it has been implicated in the

pathogenesis COPD by

destruction of lung elastin, in rheumatoid arthritis, atherosclerosis,

cardiomyopathy, and

abdominal aortic aneurysm. Cytokines that stimulate MMP9 production include

IL-1, IL-2,

TNF, IL-1B, interferons alpha and gamma. MMP9 is felt to play a role in

central nervous

system disease including demyelination, by generation of myelin peptides, as

it can break

down myelin basic protein. MMP9 " delivers " inflammatory elements out of

blood into

subintimal spaces, where further delivery into solid organs (brain, lung,

muscle, peripheral

nerve and joint) is initiated. Normal ranges of MMP9 have a mean of 150,

with range of 85-

322 ng/ml.

C3a and C4a: Split products of complement activation, often called

anaphylatoxins. Each

activates inflammatory responses, with spillover of effect from innate

immune response to

acquired immune responses and hematologic parameters. These short-lived

products are remanufactured

rapidly, such that an initial rise of plasma levels is seen within 12 hours

of

exposure and sustained elevation is seen until definitive therapy is

initiated. The components

increase vascular permeability, release inflammatory elements from

macrophages,

neutrophils and monocytes, stimulate smooth muscle spasm in small blood

vessels and

disrupt normal apoptosis.

Anticardiolipins IgA, IgM and IgG: autoantibodies often identified in

collagen vascular

diseases such as lupus and scleroderma; often called anti-phospholipids.

These antibodies in

high titers are associated with increased intravascular coagulation

requiring treatment with

heparin and coumadin. Lower levels titers are associated with

hypercoagulability. An

increased risk of spontaneous fetal loss in the first trimester of pregnancy

is not uncommonly

seen in women with presence of cardiolipin antibodies. This problem does not

have the same

" dose-response " relationship seen with levels of autoantibodies and illness

as does the antiphospholipid

syndrome. Anticardiolipins are found in over 33% of children with biotoxin

associated illnesses.

Antigliadin IgA and IgG: Antibodies thought at one time to be specific for

celiac disease.

With the advent of testing for IgA antibodies to tissue transglutaminase

(TTG-IgA), gliadin

antibodies are most often seen in patients with low levels of MSH. Ingestion

of gliadin, the

22-amino acid protein found in gluten (found in wheat, oats, barley and rye;

often added to

processed foods) will initiate a release of pro-inflammatory cytokines in

the tissues lining the

intestinal tract. This cytokine effect will often cause symptoms within 30

minutes of

ingestion that mimic attention deficit disorder, often leading to an

incorrect diagnosis.

Antigliadin antibodies are found in over 58% of children with

biotoxin-associated illnesses.

Vasoactive intestinal polypeptide (VIP): neuroregulatory hormone with

receptors in

suprachiasmatic nucleus of hypothalamus. This hormone/cytokine regulates

peripheral

cytokine responses, pulmonary artery pressures and inflammatory responses

throughout the

body. Deficiency is commonly seen in mold illness patients, particularly

those with dyspnea

on exertion.

[Guest guest]

Edy Rayfield wrote:

Hence, I'm asking, you and the group. If any of you could

choose someone to be your guide money no object, where? Who?

> Edy

When I was down to the point that Dr said " You are at a

point where most people with CFS commit suicide " , I only had one

thing left to try, and it paid off, despite everyone telling me I

was wrong.

I thought that this might be of some slight interest to one or two

people on this planet.

But it wasn't. Nobody cared, nobody thought a thing about it.

" Mold? That's impossible " .

Nobody would even talk to me about it, whether I paid them or not.

Not until Dr S. heard my story and took his own time to contact me

and listen to what I had to say.

He was the only doctor, researcher or anyone, for that matter, to

think it was a significant clue that a " Holmes et al CFS group "

survivor would be out climbing mountains as a direct result of

mycotoxin avoidance.

Dr. S.!

Nobody else compares.

-

[Guest guest]

In a message dated 18/11/2006 07:08:02 GMT Standard Time,

erikmoldwarrior@... writes:

Edy Rayfield wrote:

Hence, I'm asking, you and the group. If any of you could

choose someone to be your guide money no object, where? Who?

> Edy

When I was down to the point that Dr said " You are at a

point where most people with CFS commit suicide " , I only had one

thing left to try, and it paid off, despite everyone telling me I

was wrong.

I thought that this might be of some slight interest to one or two

people on this planet.

But it wasn't. Nobody cared, nobody thought a thing about it.

" Mold? That's impossible " .

Nobody would even talk to me about it, whether I paid them or not.

Not until Dr S. heard my story and took his own time to contact me

and listen to what I had to say.

He was the only doctor, researcher or anyone, for that matter, to

think it was a significant clue that a " Holmes et al CFS group "

survivor would be out climbing mountains as a direct result of

mycotoxin avoidance.

Dr. S.!

Nobody else compares.

-

*********Hi

Can you share your regime with all of us and tell us about your current

health?

What are you doing interms of heavy metals and raising glutathione?

Regards

CS

[Guest guest]

My books on composting says it is bacteria and enzymes that cause the

decomposition of vegetable matter, turning it into compost.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

Posted by: " Edy Rayfield " _edyrayfield@... _

(mailto:edyrayfield@...?Subject=

Re:%20Severe%20cognitive%20difficulties...please%

20advise.) _edithio2005 _ (edithio2005)

Fri Nov 17, 2006 7:52 am (PST)

As Dr. M said...mold is what breaks down a compost heap or eats leaf piles

up into dirt. Mold is literally trying to compost your body and it doesn't

feel good at all!!!!

[Guest guest]

Hi

> Can you share your regime with all of us and tell us about your

current health?

>

> What are you doing interms of heavy metals and raising glutathione?

>

> Regards

> CS

I abandoned all other therapies in favor of avoidance alone.

The concept is ridiculously simple but the devil is in the doing.

I guess it's just like asking me how to launch a Hang Glider. I can

tell you easily enough - Nose into the wind, level the wings, grab

the control bar and run like Hell.

There. Are you ready to go?

Well, when I say I " avoid mycotoxins " , it is actually an

acrid " sensation " that I learned to associate with specific molds.

When I perceive it, I do " whatever it takes " to evacuate the area

and decontaminate.

It's a matter of practicing " detection " and taking action before

the inflammatory response goes wild.

The problem is that this is an incredible pain in the butt to

accomplish, something I solved by taking my decontamination facility

around with me in the form of an RV.

I'm just amazed this had as much effect as it does, and that this

particular clue is not receiving the research it deserves.

-