- Some Questions

[Guest guest]

Hi ,

A little background first.

Because of you and S. on this list I did most of the tests

Dr. S. uses and sent the results to him for analysis. I found I do

have the " dreaded " mold gene and the CFS gene. So, thank you for

harping on this subject. Growing up I never had problems with mold -

but, the exposures were not long nor severe. My problems started

after a car accident and extreme mold exposure over a period of time.

In his letter Dr. S. said I couldn't take the cholestyramine

until my leptin was in balance.

So...I was wondering:

1. Have you taken cholestyramine after your " hits " ? If not, do

you use anything - or just wait it out to feel better?

2. I guess there is a small percentage of us who have had the

HLA genetic test for mold - but, do you know of anyone diagnosed

with CFS who has had the test and been negative for the mold gene?

3. One of my docs wants me to take allergy mold drops - with

the mold gene this doesn't make sense to me. Do you have any

thoughts on the subject? (At his request, I sent my test results to

Dr. Schaller but, we never connected and I didn't get his input)

4. Do you think that ALL CFS people have a mold problem?

Thanks ahesd of time for your response, . I've had my house

and heating system done over - but, it's not perfect and the mold

outdoors is still there.

PS - I didn't realize you were booted from the list.

That group was not what I needed so I don't check in often. They

lost a good source of information.