Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 Hi Christi, I was glad to read your post! How old is Mya? What a long trip for you to be making weekly! My dad lives in Sanford, which isn't too far from Fayetteville (I think!). Your daughter is lucky that you are so dedicated to her treatment! I would love to visit with you sometime when you come for an adjustment! My regular email is Bakerfour@... We are going to Winston-Salem for a follow-up CT and 3-d reconstruction on Tuesday which will hopefully rule out craniosynostosis for . If it does, we have pretty much decided to go with the DOC band and will be casted on Friday the 29th. Anyway, that is where things are with us. I hope Mya is adjusting well to her band. Look forward to hopefully meeting you sometime soon! Christy Mom to - 4 months - tort and plagio or cranio Jack, 2 years Kaitlyn, 7 years -- Re: Looking for members and help in Charlotte, NC Hi i am a little late with checking posts but I am inthe fayetteville area and have to travel to Charlotteweekly for my daughters DOC band adjustments. She hasonly been in her band for about 2 weeks and so far sogood. But I really am just new to this so not muchadvice as far as soft helmets.Christi mom to Mya (DOC band 3/6/02)--- christyandlauren28215 & lt;Bakerfour@...>wrote:> Hi to everyone!> My name is Christy and my daughter, is 4> months old. She has > congenital muscular torticollis, plagiocephaly and> we are in the > process of ruling out craniosynostosis. Her poor> head is almost > taking on an "s" shape if you view it from above. > The doctors at > this point feel this is being caused primarily from> the torticollis. > I am very frustrated at this point because we have> heard so many, > many differing opinions on treatment for . I> have three > questions:> > 1. What are members' experiences with the doc band?> > 2. Has anyone heard of this soft helmet? That is> being suggested by > a doctor in Winston-Salem who is a cranio facial> specialist. They do > not believe in applying pressure to the baby's head> as the doc band > does. The doc band sounds so great and I have heard> of wonderful > results, but I haven't read anything about the soft> helmet.> > 3. Is there anyone in the group in my area?? We> are active in the > torticollis and craniosynostosis groups and have> found wonderful > support locally from them, but would love to meet> some plagio parents > also!> > Thank you in advance for your replies!> Christy> Mom to 4 months> Jack 2 years> Kaitlyn 7 years> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Christy Hi. Mya will be 9 months old on the 27th. Yes Sanford is about an hour from me. That is where we went and bought our minivan. I hope the Ct goes well and that it rules out CS. Mya is doing well with her band. We were having a bit of trouble with a red spot that wasnt going away but at her last adjustment they fixed that so she is doing much better. I can already see progress and I am just so excited about it. I would love to meet up with you sometime. My regular email is Christiz75@... Good luck with the ct and the casting on friday Christi mom to Mya (DOC band 3/6/02) 7 yrs Chloe 4 yrs > > Hi to everyone! > > My name is Christy and my daughter, is 4 > > months old. She has > > congenital muscular torticollis, plagiocephaly and > > we are in the > > process of ruling out craniosynostosis. Her poor > > head is almost > > taking on an " s " shape if you view it from above. > > The doctors at > > this point feel this is being caused primarily from > > the torticollis. > > I am very frustrated at this point because we have > > heard so many, > > many differing opinions on treatment for . I > > have three > > questions: > > > > 1. What are members' experiences with the doc band? > > > > 2. Has anyone heard of this soft helmet? That is > > being suggested by > > a doctor in Winston-Salem who is a cranio facial > > specialist. They do > > not believe in applying pressure to the baby's head > > as the doc band > > does. The doc band sounds so great and I have heard > > of wonderful > > results, but I haven't read anything about the soft > > helmet. > > > > 3. Is there anyone in the group in my area?? We > > are active in the > > torticollis and craniosynostosis groups and have > > found wonderful > > support locally from them, but would love to meet > > some plagio parents > > also! > > > > Thank you in advance for your replies! > > Christy > > Mom to 4 months > > Jack 2 years > > Kaitlyn 7 years > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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