Re: new to list - from raleigh, nc

[Guest guest]

Hi Amy & welcome to our group

We are glad you have found us! I'll answer your questions below:

> 1. has anyone else had success with craniosacral therapy? the woman

we

> are seeing does not take insurance and needs to see emma every

week.

> of course, i will do anything i can, but it would be reassuring to

> hear of some success stories.

A) I personally have no experience with craniosacral therapy, but we

have had several members who have or are currently using it. I'll

search the archives to see what I can find out - but I'm sure some of

the members will reply to your question.

> 2. are there other people on this list from raleigh, nc? anyone who

> works for the state (as i do) who has had experience with the state

> health plan and whether or not it will cover the doc band? does the

> doc band treatment need a referral from her pediatrician, or can

that

> come from the neurosurgeon?

A) I live in MI, I think I've heard of other members from NC. To

receive a DOCband you need a prescription from a Dr., either a ped.

or a specialist is fine.

> 3. shouldn't someone have warned me about plagio when emma was

> diagnosed with torticollis?? her pediatrician or PT? i had really

> never heard of it, and now that i'm doing some research, it seems

that

> torticollis often leads to plagio. i can't help but feel angry that

i

> did nothing to prevent this from happening.

A) Tort. is a leading contributer to plagio. I think your ped. or

phys. therapist should have warned you about this possibly leading to

plagio. But, unfortunately, that's not all that uncommon not to be

fore-warned.

> 4. has anyone used an osteopath to treat plagio?

A) Yep, several members have - hopefully they'll chime in & give you

their personal stories!

Good luck with the specialist. We look forward to hearing more from

you - please let us know how your appt goes. Welcome again.

Debbie abby's mom DOCGrad

MI

[Guest guest]

Amy-

My son Dane is 2 weeks older than Emma (9/10).

He has been in pt for his tort starting at 2 months. Then we

switched to another therapist when he was 4 months. I guess he has

been getting craniosacral therapy all along from her and I didn't

realize it! I took him to get his DOC Band adjusted on Saturday and

I got a pamphlet on craniosacral therapy while he was getting his

head played with. Gee, I guess I haven't been paying attention very

well! I thought she was just stretching his mucles by playing with

his head. I was never good in biology! Anyhow, when she does this,

he always calms down. He gets a little po'd during therapy.

There was a website on the pamphlet, but I can't find the stinking

thing.

Dane's mom (DOC Band 2/14/02)

[Guest guest]

My son who is now 15 mo. has been in his DOCband (#1 and #2)

since 9.5 months. I started craniosacral therapy 2x per month in

addition to regular weekly PT at 7 mo. I also take to a

osteopath who specializes in cranial manipulation once a month since

he was 10 mo. From 7 to 9 months I really didn't see any difference

in his head shape. I did see a dramatic change after starting

DOCband treatment. I did find the craniosacral and osteopath very

beneficial in regards to the torticollis. I plan to continue one or

both of these after graduates from his band. The osteopath told

me I wouldn't see any changes in his head shape from his treatment

until was older. I didn't want to take the wait and see

approach and decided to band as well as continue with the osteopath

and cs therapy. I did speak with 's orthotist about the benefits

of craniosacral therapy helping his progress in the band. She stated

that relaxing all the muscles would definitely help the band do its

job better. Right now 6 mo. into treatment his ears are just about

aligned, his facial asymmetry (eyes and cheek) isn't even noticeable

anymore, and his head is looking terrific. He looks NORMAL, which is

a great thing to say and he still has 3 more months in his band to

fine tune things. Hope this helps.

Candy, mom to (DOCband #1, 10/5/01, #2, 2/25/02)

land

> hi. my name is amy and i'm a mom to 6 month old emma. emma was

> diagnosed with torticollis when she was about 5 weeks old, when i

> noticed a lump on her neck. at her 3 month pediatrician's visit, i

> mentioned that the right side of her head was looking a little

flat.

> at her 4 month pediatrician's visit, i mentioned it again. the dr.

> said he would call me with the name of someone to take her to see.

> after 3 weeks of calling his office, i was given the name of a

> craniosacral therapist. while i was waiting to hear back from the

dr.,

> i called and made an appointment with a pediatric neurosurgeon at

Duke

> (i live in raleigh, nc) that emma's PT recommended. our appt. is

next

> wednesday, march 27. emma's right side is completely flat, her

right

> ear is much more forward than her left, and the right side of her

> forehead is higher than the left. from what i've read on the web,

this

> is plagio.

>

> i have a few questions.

> 1. has anyone else had success with craniosacral therapy? the woman

we

> are seeing does not take insurance and needs to see emma every

week.

> of course, i will do anything i can, but it would be reassuring to

> hear of some success stories.

> 2. are there other people on this list from raleigh, nc? anyone who

> works for the state (as i do) who has had experience with the state

> health plan and whether or not it will cover the doc band? does the

> doc band treatment need a referral from her pediatrician, or can

that

> come from the neurosurgeon?

> 3. shouldn't someone have warned me about plagio when emma was

> diagnosed with torticollis?? her pediatrician or PT? i had really

> never heard of it, and now that i'm doing some research, it seems

that

> torticollis often leads to plagio. i can't help but feel angry that

i

> did nothing to prevent this from happening.

> 4. has anyone used an osteopath to treat plagio?

>

> as you can tell, i'm full of questions. emma is my first child.

there

> is so much to learn about being a mother - and now there's even

more!

>

> thanks.

> amy

> mom to emma (born 9/24/01)

[Guest guest]

thanks candy, debbie, kristen, cindy, and rachel for your welcoming

messages and responses to my questions. i am interested in finding an

osteopath and pursuing that treatment as well as hopefully the doc

band. we'll see what the neurosurgeon says on wednesday! meanwhile,

i'll continue emma with the PT and craniosacral therapy.

i welcome any other comments or information, and would still be

interested in hearing from someone on the nc state health plan about

insurance coverage.

i am learning alot from this list. thank you.

amy

mom to emma (born 9/24/01)

> > hi. my name is amy and i'm a mom to 6 month old emma. emma was

> > diagnosed with torticollis when she was about 5 weeks old, when i

> > noticed a lump on her neck. at her 3 month pediatrician's visit, i

> > mentioned that the right side of her head was looking a little

> flat.

> > at her 4 month pediatrician's visit, i mentioned it again. the dr.

> > said he would call me with the name of someone to take her to see.

> > after 3 weeks of calling his office, i was given the name of a

> > craniosacral therapist. while i was waiting to hear back from the

> dr.,

> > i called and made an appointment with a pediatric neurosurgeon at

> Duke

> > (i live in raleigh, nc) that emma's PT recommended. our appt. is

> next

> > wednesday, march 27. emma's right side is completely flat, her

> right

> > ear is much more forward than her left, and the right side of her

> > forehead is higher than the left. from what i've read on the web,

> this

> > is plagio.

> >

> > i have a few questions.

> > 1. has anyone else had success with craniosacral therapy? the

woman

> we

> > are seeing does not take insurance and needs to see emma every

> week.

> > of course, i will do anything i can, but it would be reassuring to

> > hear of some success stories.

> > 2. are there other people on this list from raleigh, nc? anyone

who

> > works for the state (as i do) who has had experience with the

state

> > health plan and whether or not it will cover the doc band? does

the

> > doc band treatment need a referral from her pediatrician, or can

> that

> > come from the neurosurgeon?

> > 3. shouldn't someone have warned me about plagio when emma was

> > diagnosed with torticollis?? her pediatrician or PT? i had really

> > never heard of it, and now that i'm doing some research, it seems

> that

> > torticollis often leads to plagio. i can't help but feel angry

that

> i

> > did nothing to prevent this from happening.

> > 4. has anyone used an osteopath to treat plagio?

> >

> > as you can tell, i'm full of questions. emma is my first child.

> there

> > is so much to learn about being a mother - and now there's even

> more!

> >

> > thanks.

> > amy

> > mom to emma (born 9/24/01)