Re: New UK member

[Guest guest]

Hello

Jan contact chris blecher he treated all our plagio babies in the uk. His

e-mail adress is: Joerg.C.Blecher@...

He is brill. He saw my son Boo over a year ago, he comes to Kings College

hosp and the art academy.

Where do u live.?

Love Ann and Boo (UK)

[Guest guest]

Hi Jan

I lived in the UK when i noticed that my son's head had gone a funny shape

and that his ears had misaligned. i Saw a paediatrician at Winchester

hospital to be told that it would " right itself " but could take up to 2

years.I told him that i had done some research on the internet and i

mentioned the DOCBAND - he just grinned and said that they don't do anything

but not to worry! I was at that time moving to Canada where would you

believe it they do the DOCBAND i saw Dr nson at the childrens hospital

in Calgary where he told me Dylan was a very severe case and normal growth

would not put it right without the DOCBAND he would be " grossly deformed "

those were his actual words. Sorry i don't want to scare you, just don't be

fobbed off. I was lucky that i moved somewhere where i was given the help.

Please keep us informed as to how you get on. Best of luck my heart goes out

to you.

Kerry

Mommy of Marcus (3) and Dylan (1)

>From: " jan2005uk " <gerjan@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: New UK member

>Date: Wed, 27 Mar 2002 20:36:39 -0000

>

>Hi, my name is Jan and I have a 13 week old daughter, whom I

>believe has positional plagiocephaly. I noticed almost since birth

>that she preferred to sleep with her head to her right. Unfortunatley

>I did not realise that this could lead to a flat spot (well actually

>more than just a spot, its the whole side of her head, also her ear

>is now jutting out on that side) which she now most definately has. I

>am currently trying to re-position her when she sleeps but am finding

>this difficult.

>

>What I could really do with is some info from anyone in the UK as to

>what treatnment they have had/where etc. I have an appointment with

>my GP to discuss the problem but I am concerned he may fob me off

>with " she will grow out of it... " so I would like to be well

>informed before I see him if you see what I mean.

>

>Also has anyone found any of the 'sleep positioners'sold in the USA

>anywhere in the UK or had any success with anything to get their

>child to sleep with their head on the opposite side to the flat side.

>I have tried a rolled up towel under her shoulder but am worried

>about her being smothered by it.

>

>Looking forwrad to hearing from you.

>

>Many Thanks

>

>Jan

>

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