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Greetings Group,

My name is and my daughter Jane (8 months) has Plagio and

Torticollis. We live in University Heights, Ohio (suburb of Cleveland)

My story is pretty typical...

* I noticed she always looked in same direction and took her to Ped

at six weeks. Was diagnosed with TORT and Plagio..but PED acted like

it was no big deal. Referred me to PT - Karmel Ross.

* She had flat spot behind right ear..with forehead bossing and one

cheek way fuller than the other and one eye fuller than other. Still

seemed pretty mild though.

* PT began in OCT.

* in DEC PT recommended we BAND..but PED did not think we should and

referred us to Neurosurgeon who also recommend we NOT band but gave

us script. Said to try REPOSITION ONLY ( " but the choice is up to

you " - ever hear that one before group??? HA HA) He was concerned

about banding because Jane has a large Hemangioma (birthmark) on her

forehead and not sure if I could band

* Cranial Tech and a Dermatologist said it was OK to band with the

Hemangioma

* AGONISED FOR THREE MONTHS AS TO WHETHER REPOSITIONING WAS WORKING!

* sumbitted DOC band perscription to United Healthcare and promptly

DENIED. I am fighting appeal!

* ANTROPOMETRIC DATA getting worse she started at 12 mm off and now

16 mm cranial vault with 6 mm facial assymetry. Decided to see

Cranial Plastic Surgeon.

* Waited 6 weeks to get into Cranial PLastic Surgeon..and then the

day before appointment HE CANCELLED! Could not get in again for

another six weeks.

* Decided I could not wait and Casted the next Saturday.

* Jane received her DOC BAND on Monday

* Found this GROUP (Hurrah!)

I look foreward to having such a great research at my finger tips.

Will post some specific questions I have in aonther post!

Thanks for listening!

and Jane (DOB 7/5/01 DOC BAND 3/18/2002)