Re: Confused

[Guest guest]

Hi-

I'm going to begin the treatment for my 14.5 month old daugther. You

should continue to pursue, I wish I had the support and understanding

that you do at the earlier age of your child. My daughter is

considered mild to moderate, she now has a slant on the back side of

her head, it's not JUST a small spot. Move forward- you'll be glad

that you did! Looking back now- I wish I had the information!!!

> > > Hi All,

> > >

> > > Well the latest update on Annika is that insurance

> > > denied the band, based on the first neurosurgeon's

> > > opinion that it was not medically necessary.

> > Annika

> > > is now 10 months old with moderate plagio (no

> > tort),

> > > no facial assymetry and minor ear misalignment.

> > >

> > > We talked to a local orthotist who does the

> > Starband,

> > > and she did not recommend the band. We also talked

> > to

> > > Cranial Tech who said that she could " benefit from

> > the

> > > band. " So we decided to get a second opinion - a

> > well

> > > respected pediatric neurosurgeon in our area who

> > sees

> > > dozens of these cases each week. He told us that

> > he

> > > did not recommend the band and that she would

> > continue

> > > to round out over time. She has a 5-6 mm

> > difference

> > > between the longest and shortest points, but a 22

> > > degree arc (whatever that means).

> > >

> > > So now we are really confused! We have four

> > > professionals telling us not to do the band and CT

> > > saying yes. At some point we feel like we have to

> > > trust the professionals. We are taking pictures

> > and

> > > have decided to monitor the progress for the next

> > > month. In the interim, I am going to appeal the

> > > denial.

> > >

> > > The thing is that the flat spot is not noticeable

> > to

> > > anyone other than us unless we tell them about it.

> >

> > > She has a lot of hair which hides it until her

> > hair is

> > > wet.

> > > Anyway, I am rambling now. I just thought I would

> > give

> > > a status and see if anyone has had a similar

> > > experience or diagnosis.

> > >

> > > Thanks,

> > > Tami (mom to Annika)

> > >

> > > __________________________________________________

> > >