Re: Wondering what our next step should be

March 26, 2002

Hi & welcome to our group!

Did your daughter ever receive any type of physical therapy to

correct her head tilt (torticollis)?

The mirror is a very good tool to use when looking for any

assymetries.....so many of us notice our children's flatness and/or

assymetries much clearer while looking in the mirror.

Regression of the head after a child graduates is quite rare,

although we have had a few members whose child has regressed post

graduation. It is much more common in younger children because their

head is still quite malleable. In children over 1, the risks of

regressing greatly diminish.

Good luck with your Dr.......do you have any photographs of your

daughter around the time she graduated? Especially of her head? If

so, I would take a close look at those and compare those to her head

shape now. Pictures can really help.

Let us know what your Dr. says. Best of luck! Welcome again.

Debbie Abby's mom DOCGrad

MI

> Hello - Sure hope you can give some good advise. Around 3 months

we

> noticed a tilt to the right as well as a flat stop on the right

side

> of our daughters head. She was fit with a helmet at the Mayo

Clinic

> in Rochester, MN when she was 4 months old. Has been out of a

helmet

> since January. Great results, not perfect. She is now 14 months

> old, and I am still noticing a tilt (good ROM) and that the right

> side of her face is slightly more predominant than the left (You

> notice it most when she is looking in the mirror. We have an

> appointment with her doctor again next week. I'm wondering if

anyone

> has had their child graduate from their helmet (Please note, this

is

> not a DOC band, Mayo has an OT who makes these cute little custom

fit

> helmets. Reminds me of a bike helmet) and then started again. Or

if

> you can recommend treatment for the facial problems I'm noticing.

> Her forehead and cheek are a little more predominant on the right

> side. I just don't want to miss our window of opportunity to

correct

> this before it is to late. I'm looking for any good advise,

> suggestions, experiences, etc... so I am prepared for our next

> visit. Not sure if I will be satisfied with the doctors response

if

> he tells us everything looks OK. I'm just being a concerned mom.

> Thanks

March 26, 2002

I assume your daughter has torticollis. Is she in therapy for

this? I would think that if tort wasn't resolved, the tilt would

cause the head to be in the same spot.

I'm sure one of the DOC Grad momma will chime in here. You will

probably be hearing from who is the tort police.

Dane's mom (DOC Band 2/14)