Re: Riley's Helmet adjustment

[Guest guest]

Michele

Thanks for the therapy ball info. I will definetly check into that.

Well that makes me feel better that Riley isnt crawling yet either

and that he didnt roll over till later either. I also have my other

two children to compare Mya to and it drives me insane because both

of them rolled over by 4 months and were sitting up unsupported at 6

months and crawling soon after that. ANd they were almost identical

in motor development. But Mya is completely different. She is way

behind in the rolling and sitting and crawling yet she can play

patty cake and peek a boo clapping her own hands when I sing and

pulling the cover up over her face and yanking it down quickly

waiting for me to say peek a boo and then squeels all happily and she

can wave bye bye. ANd both and CHloe never did any of that till

later. So I guess they all develop differently. And maybe Myas just

perfectly happy and content to stay put and is in no hurry to get up

and get going. WHo knows as you can see I try to annalyze the

situation way too much. By the way we live near fayetteville , NC.

I cant imagine Mya being my first and having all of this hit me. But

then again I cant beleive I went all the way till my 3rd child to

even hear of tort or plagio! Thats really a shame. I wish I wouldve

been more aware. I had no idea why she wouldnt turn her head in the

other direction when she was just a month old or why she wouldnt lay

flat she had to be in her car seat or she would scream. I later found

out that it was hurting her neck. I just looked at her flat side and

just thought oh no big deal Im sure it will round on its own cause

thats what People told me. Im just so thankful a doc at her 4 month

visit sent me to see a specialist because if she hadnt I think I

still wouldve just said oh Im sure it will get better. I just didnt

realize that this was such a big problem. Its great you found someone

at gymboree who knew what you were going through. I was so self

concsious at first with myas band but now I have found myself

forgetting she even has it and then when some one asks me about it Im

like oh yeah. So that has brought some relief so I am not constantly

stressing when I go out.

I understand what you mean about having an ulterior motive when you

want to play with him. Cause I feel like that with Mya I fel like

everytime I go to play with her shes thinking oh no shes going to

hurt my neck again. And I hate feeling like that. She screams

something awful everytime we do the excercises and I just feel so

bad. We are military so our pt is at the army hospital. But Mya also

has a Early intervention specialist at the army hospital that is

there at every pt appointment. I am going to tell them we need to see

them more often untill this is completly resolved. I am so looking

forward to the day when all of this is behind us and Mya has a nice

round head and keeps her head straight not tilted and has full range

of motion. That will be a great day. Untill then I just need to take

it one day at a time and focus on the great blessings I have in my

life. CHloe and Mya!

WEll now Im rambling again. :-)

Christi mom to Mya

> > >

> > > Hi Everyone,

> > >

> > > Riley had his first helmet adjustment yesterday at the NOPCO in

> > Burlington and I can't be happier with the orthotist and the

> progress

> > he's made so far. The orthotist seemed so knowledgable and

really

> > took the time to explain everything to me. He also told me that

> the

> > only time he's ever seen the helmet not work was in a baby 12

> months

> > old with a 36mm discrepancy. His pediatrician kept saying it

would

> > round out on its own, so by the time he started the helmet it was

> too

> > late...his head growth had stopped and his head hardened so he

had

> to

> > have surgery. I am sooo thankful we are in the helmet while it

can

> > still do some work!!!

> > >

> > > On another subject, I'm so frustrated with my son's

tort...we're

> > stretching him religiously a few times a day, and some days he

> seems

> > fine, but others it is worse!! It is a relief that I don't need

to

> > constantly change his sleep position when I see him on his left

> side,

> > now that he's in a helmet, but I worry that once the helmet is

off

> > his head will reflatten on the left side if he doesn't start

> > repositioning himself! Any words of encouragement or reassurance

> > would be appreciated. Does the tort ever fully go away or will

he

> > always tilt his head a little when tired or sick? Will he always

> > prefer to sleep on his left side? Unfortunately, his good days

are

> > always the days the PT sees him, so he thinks he's making great

> > progress!

> > >

> > > There is always something new to worry about!

> > >

> > > Thanks,

> > >

> > > Michele (son Riley born 6/37/01, helmet 3/08/02)

> > >

> > >

> > >

> > > ---------------------------------

> > >