Re: Re: ish Dr. Claims to have Found Cure for ME (CFS)

[Guest guest]

I had been thinking about all you have said about this. The British experience

is understandable - Simon Wessley is fully in control there, and the

psychiatrist reigns supreme over this illness and its victims.

But the other experience with other sufferers - I think there are perhaps

reasons that have nothing whatsoever to do with your truthfulness or willingness

to be of service. Climbing mountains has virtually nothing in common with the

average sufferer's experience. Most people in this country don't even live

within view of a mountain. They didn't climb mountains, even when they were

well. You might as well tell them you walked on the moon.

If you mention camping and living outdoors, that too is outside many people's

reality - but is something people in some parts of the country would never even

consider anyway. North Georgia is a good example - it's a wet climate, and warm

in summer. You want to roll around in some fungus, camping out is definitely the

ticket! If the fungus doesn't get you, the copperheads will. A whole lot of

soldiers tried that about 140 years ago, and the tales of both the chronic and

outright fatal illnesses they picked up are nothing short of horrific. (Not all

of that happened in POW camps - not by a long shot.)

Then there's the " cut and run " idea. Sound advice, but people with families will

have a big problem with that. Make your children homeless, and the State will

take them away. And Granny isn't going to live in the car too successfully,

either. They'll start weighing the known (to them) risks against any possible

gains, and if they aren't quite at death's door yet, they're staying home.

Instead, just like you say, people will go out and buy these hugely expensive

dietary supplements and herbs based solely on a rumor from another patient,

because said patient can dust around the house now. Or they'll hire a psychic

healer over the internet. Or they'll take up yoga. They learned that A) they

have some kind of unknown infectious disease or else are crazy; nobody in

traditional medicine knows how to help them; C) They really just need to calm

down, or they'll get sicker (the whole Energy Envelope thing) and D) just like

we were saying here earlier - other people just don't get it at all. Not your

friends, not your family. They just don't.

So, the question doesn't come down to whether you know what you know, or whether

people want to be helped. It more likely comes down to what they can really hear

and understand. And the fact that they've been screwed over more times than they

can count. And they really are drowning. But if they can grab a bottle of

pricey vitamins easier than they can move outside and climb a mountain, they're

naturally going to grab for what's closest to them. I think it almost requires a

form of " stealth help " , you know?

There are many things that float. Some of 'em don't smell real great, but a

drowning man doesn't care about that.

Serena

www.freeboards.net/index.php?mforum=sickgovernmentb

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[Guest guest]

Oh - . Didn't mean to sound negative, though I probably did. You get max

props from me for having hung in and tried so hard for so long despite all.

Actually, I was just trying to noodle why they didn't seem to be getting your

message and trying to think of some other kind of approach that might get it

done. Still pondering...

Serena

www.freeboards.net/index.php?mforum=sickgovernmentb

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[Guest guest]

:

What did you do to make suck wonderfulprogress? Avoiding eposure and

what else? Thanks Elie