Re: Brain Dysfunction (dysautonomia)

[Guest guest]

Serena,

What symptoms of dysautonomia do you have, and what is the clinic in

Birmingham, AL that specializes in this? What are you doing about

the toxins, taking the CSM or what? Thanks!

--- In , SERENA EDWARDS <pushcrash@y...>

wrote:

> It's really only a guess, but I'd bet on a combination of

insufficient blood supply - and moreover, a blood supply that can

change radically for no perfectly good reason anyone knows about yet.

and toxins crossing the blood/brain barrier. My own plan of attack is

to do what I can about the toxins first. I see that as being most

important because...well...who wants to be poisoned? After what I've

seen and heard about the effects of these, I want them gone just as

soon as possible! And that path leads to Shoemaker's door.

>

> Then we'll see what remains of the neurological damage. I've

noticed people with dysautonomia also complain of many of the same

cognitive problems, and like the toxins, many people with this range

of illnesses complain of dysautonomia. So if it doesn't clear up as

the toxins go, there's a clinic in Birmingham Alabama devoted

specifically to that problem. It's my very good luck to only be a

couple hours drive away.

>

> These are just the most promising of the ideas I've investigated.

There are a few others, but they seem to dwell on individual symptoms

and that approach hasn't paid off really well in the past. We know

unrestorative sleep is part of the issue. But one doc will literally

hand me sleeping pills just as another hands me Provigil to stay

awake during the day. While I'm grateful that they are listening and

trying to help, it worries me that each only sees part of the problem

(and that may be due in part to my having trouble explaining things

clearly). Any of them will hand me antidepressants at the drop of a

hat, but I'm choosing not to go that way again. I always like The

Blind Men and the Elephant, just didn't plan on growing up to be the

elephant in question. : ) I'd rather take a broader approach. Toxins

seem like the most logical thing to fix first, since they are what

started it all.

>

> The very best people are out there working the parts if this they

specialize in, so I think the treatment thing is probably just like

the theory thing. We'll have to roll our own.

>

> What ideas have you tried so far? And is any of it working for you?

>

>

>

>

> Serena

> www.freeboards.net/index.php?mforum=sickgovernmentb

>

>

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[Guest guest]

Try:

http://www.mvprolapse.com/

The most bothersome symptom right now is the swelling in my calves and feet when

I remain upright for any length of time. Heart palpitations, dizziness,

weakness, fatigue, brain fog, chills and sweating profusely while at rest,

either sleeping endlessly or not at all - all come and go. At its very worst,

there were panic attacks and choking. Drinking better than 2 gallons of liquids

every day has been " normal " for years now, yet I remain endlessly thirsty. So,

you know. Pick one. I'd be surprised if I wasn't fatigued, with all that going

on.

Just my own opinion - I don't accept the term " dysautonomia " , in and of itself,

as a valid cause or explanation for the illness. I know what happened to me. I

was poisoned by mycotoxins, plain and simple. Dysautonomia is just a way of

grouping symptoms together, and these people in Birmingham have taken a special

interest in working with those symptoms as a group. It has one distinct

advantage, though. " Dysautonomia " is not treated as a psychological phenomenon.

It's treated as a medical condition. But boy, if you call it by " Chronic Fatigue

Syndrome " or " Fibromylagia " , or any of those other names, look out. The

psychologizers come out of the woodwork like nobody's business!

I found no evidence that the dysautonomia people have any real grasp of

mycotoxins and what they can do, though. From what I have been able to find out

so far, I strongly suspect the two practices may have a lot to offer one

another. But that remains to be seen.

Off to bed again,

Serena

shakerz25 <shakerz25@...> wrote:

Serena,

What symptoms of dysautonomia do you have, and what is the clinic in

Birmingham, AL that specializes in this? What are you doing about

the toxins, taking the CSM or what? Thanks!

Serena

www.freeboards.net/index.php?mforum=sickgovernmentb

__________________________________________________

[Guest guest]

Serena,

I have not heard of this term but I wonder if I have that. I have

described my symptoms to others of trouble with my autonomic nervous

symptoms (pre cancer I'm talking). I had two very unusual episodes

and since both of them were bizarre to me, as I had never heard of

anyone else having it. I looked to see if there was a similarilty

between them and realized they were both were a major screw up of an

autonomic nervous system function. One while I was on a trip and

got so nervous about something that happened I could not pee AT

ALL! I had to go to an emergency clinic twice and be drained and

then I left for home since I figured it started there and sure

enough when I got home it cleared up but it ruined trip that I

wanted to be on. I didn't want the incident that made me nervous

but my symptom certainly seemed to be an overreaction. Even now if

I feel the least little resistence to peeing, I get very nervous

remembering that time. Then a year after that another stressful

incident and I couldn't sleep.. AT ALL. This lasted so long, I had

to quit a very good job and really still suffering from it although

I sleep about 4 hours a night now. My father had narcolepsy which

could be considered also a screw up of autonomic nervous system in

sleep area only of a different type. I've had a lifetime quest of

trying to solve this that has left me only being able to work

parttime. When this happened it was like having my life blow up in

my face. Again this seemed like an overreaction as the 'trigger'

did not seem to warrants such an effect on me physically.

Then a few years ago, some clown of a doctor put me on an

antidepressant after I told him they always make me feel sick and

never help. I took it since I knew not taking anything didn't work

so might as well try it if it was only thing he was willing to give

me. However, it had a side affect of suppressing my immune system

and NOW I'm sick with CFS, mysterious sore throat and all. I think

medicine suppressed my immune system and mold I had around the house

got to me at that time and is basis of all my illnesses this year

and I have quite a few including very early stage cancer found on a

cyst (apparently gone after surgery), high EBV numbers and under a

test by Dr Show staph infection in my nose, Candidas. My doctor

said no use testing for specific illnesses, you are probably have

alot of them as your immune system is shot - low NK cell numbers,

extremely low DHEA which is supposed to be marker of weak immune

system. My DHEA levels are those of a 95 year old woman (almost

dead?) on each test they are taken. Anyway, if I didn't have the

sleep trouble, I wouldn't have been so vulnerable. However reading

that I do on autonomic system, I don't see any solutions mentioned

for dysautomic problems.

I hope noone minds me going on about my own specifics occasionally.

I'm so exasperated. Noone else would understand what this means,

including most of my doctors. One doctor understands one thing and

another, a different thing, etc. So I have patchwork of bits and

pieces of understanding.

Barb

> --- In , SERENA EDWARDS

<pushcrash@y...>

>> >

> > Then we'll see what remains of the neurological damage. I've

> noticed people with dysautonomia also complain of many of the same

> cognitive problems, and like the toxins, many people with this

range

> of illnesses complain of dysautonomia. So if it doesn't clear up

as

> the toxins go, there's a clinic in Birmingham Alabama devoted

> specifically to that problem. It's my very good luck to only be a

> couple hours drive away.

[Guest guest]

Serena,

What is name of Clinic you mentioned? I'd like to make a note of it

for future reference.

Thanks

--- In , SERENA EDWARDS <pushcrash@y...>

wrote:

> I really don't know, barb. That's the problem with these things.