Re: Re: friends understanding

[Guest guest]

My friends are allso gone. They dont want to deal with me. I was living with

my boyfriend when I first got sick and he kicked me out. Said he couldnt

handle it. We have to live so differently. Even my Dad doesnt get it.

This site is a wonderfull site. There are many on here that I consider my

friends.

Janet

[Guest guest]

MY FAMILY DOESN'T " GET IT " EITHER, JANET-- & I'VE ALSO LOST FRIENDS. BUT, WHEN

THE PEOPLE WHO ARE SUPPOSED TO BE YOUR " FAMILY " DOESN'T SUPPORT YOU, THAT

HURTS.... & I THINK ITS UNFORGIVEABLE.

TAKE CARE,

V.

Re: [] Re: friends understanding

My friends are allso gone. They dont want to deal with me. I was living with

my boyfriend when I first got sick and he kicked me out. Said he couldnt

handle it. We have to live so differently. Even my Dad doesnt get it.

This site is a wonderfull site. There are many on here that I consider my

friends.

Janet

[Guest guest]

I've just about given up on bothering to explain, too. Most people only see me

on my very best days, and simply will not believe that the rest of my days are

spent in bed or sitting in a chair. I'll say one thing for this mess - you find

out right quick who your real friends are. I try to treat that as the very

valuable information it is. I have far too little " up time " to be wasting it on

people who neither deserve or appreciate it.

OTOH - the few people who do 'get it' are very, very valued by me.

Serena

www.freeboards.net/index.php?mforum=sickgovernmentb

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[Guest guest]

Exactly.

barb1283 <barb1283@...> wrote:...or just believe you because you said

so...those are rare and

valuable. I have a couple of people like that but I lost alot of

friends also when I wasn't fun to be with anymore. Some hung in

longer than others but basically the statement, smile and the world

smiles with you has a lot more meaning to me than it first did, cry

and you cry alone goes too. It used to mean don't be a whiner or

complainer or crybaby but now it means when you aren't fun anymore,

you will find not too many people care, they just go on to another

more fun person to be with. Those people who do are your 'real'

friends. No other way to find out. The only upside but better than

no upside, right?

> I've just about given up on bothering to explain, too. Most people

only see me on my very best days, and simply will not believe that

the rest of my days are spent in bed or sitting in a chair. I'll say

one thing for this mess - you find out right quick who your real

friends are. I try to treat that as the very valuable information it

is. I have far too little " up time " to be wasting it on people who

neither deserve or appreciate it.

>

> OTOH - the few people who do 'get it' are very, very valued by me.

>

>

> Serena

> www.freeboards.net/index.php?mforum=sickgovernmentb

>

>

FAIR USE NOTICE:

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[Guest guest]

Hey all,

Here is how I choose to see it: We did not lose any friends. We were put in

a situation that allowed us to identify who are true friends really are.

And....as a added bonus, some who were unkind as we started down this path have

been disassociated with by many of our true friends. Seems really good

people don't care for those who make fun of the ill and distressed!! I am

always

friendly and make them talk to me when I see people who were naysayers.

Makes 'em real unconfortable. lol

Sharon

[Guest guest]

Because I was sick for a couple of years and then " weller " for a few years

before this last go-round, I found out you really DO change some of your

perspective permanently. I had no patience whatsoever for corporate b.s., where

before I had been a real " company girl " . I probably got pretty bratty, because I

also didn't have much desire any longer to please people by pretending to be any

different than whatever I am. If I was pretty blunt before, now I'm right in

your face if I really think something needs saying.

So, yeah. People don't always like that. But you know, we found out life wasn't

a television commercial, and the guys you once trusted aren't always " just like

a good neighbor " . A lot of people don't want to have that kind of information,

much less have to live it day in and day out. I don't really blame them or

anything. They drew a different hand in life. Or at least, they think they did.

So far. I hope they're right. But I can't apologize much for doing whatever I

have to do to survive the hand I was dealt, either. I think my personal fave is

people who caution against getting angry. And they lower their voices like

" anger " is a dirty word. Sheesh! That one just totally cracks me up. I always

wonder what they think we have that capability for in the first place? Cuz if

this ain't it, then boy I dunno what is. I find it highly useful to get fairly

enraged - like when I need to pumped up so I can get out of bed! ; )

barb1283 <barb1283@...> wrote:

My family didn't get it either. Neither did they h...

Serena

www.freeboards.net/index.php?mforum=sickgovernmentb

---------------------------------

Stay connected, organized, and protected. Take the tour

[Guest guest]

I couldn't agree more about how people treat us. People just don't

understand & don't want to understand. If it doesn't affect them then they

don't have

time for you. Most people don't even ask me anymore how I am. Others who are

sick, where I worked, just don't want to hear it. They believe their Drs.

who are telling them they have scabies, Lupus, Lyme, CFS, or a virus that will

eventually go away!

Going out is very hard to do, I can't be anywhere near smoke & most of the

time I just don't have the energy or the right frame of mind. I left a

restaurant one night & almost everyone thought I was over reacting. One friend

is

even a head nurse at a big hospital who thinks I should go see a

Rheumatologist. It just makes me want to scream!!!!!!!

I feel safe at home so that's were I like to stay. My whole outlook on

life has completely changed, I just want to stay healthy and be with my family.

Nothing else seems to matter, except, of course, I'd like a job in a clean

building. I'm begining to wonder if a mold free building exists!

All the nonbelievers will remember us someday when this illness is finally

recognized. I just pray it is soon so we won't have to suffer anymore abuse!

When all the others finally realize what they have I'll just tell them, " it

can't be mold making you sick, it must be a virus! "

Most of the time I feel like a leper & thought maybe I should start wearing

a bell around my neck! Then they could just go the opposite direction when

they hear me coming.

I still talk to anyone who will listen about the severity of mold. I just

wish I had enough money to buy the world a copy of Dr. Shoemaker's Mold

Warriors!!

At least we have each others support & friendship!! Remember you can count

your friends on one hand and still have a lot left over!!! Those are the ones

that will stick by you.

Maybe voodoo dolls would be a help!

S

[Guest guest]

LOL! I'll have to come up with a clever retort. I've always detested

that question and the ridiculous answer to it.

Barth

TOXIC MOLD SURVEY: www.presenting.net/sbs/sbssurvey.html

---

t> & Everyone,

t> You're right, we've all lost friends and family is only there when

t> they want to be and they say they understand when they really don't.

t> Simple answer when you are asked how you are feeling: You really

t> don't want the truth, so I'm FINE.

t> KC

t>

>> , we've all lost friends through our ordeal. For one thing, I

>> don't have the energy or will to socialize anymore. Loss of job

>> presented me with lack of entertainment funds, so friends stopped

>> asking me to go places. Then, as you say, you lose friends who just

>> don't believe you or can't comprehend the severity of it all. I

t> wish

>> people wouldn't ask the generic " how are you's " , because they

t> probably

>> get tired of hearing me say " tired " .

>>

>> Barth

>>

>> TOXIC MOLD SURVEY: www.presenting.net/sbs/sbssurvey.html

>>

>> ---

>>

>> KD> Barb1283

>> KD> hey, all I do is have my house cleaned (if I stay while its

t> cleaned I am sick all week), and talk about mycotoxins- some of my

t> best friends think I should see a hypnotherapist . The worst part of

>> KD> this illness is the ridicule you have to put up with. I for

t> one am tired of explaining myself to unbelieving people. This site

t> is the only place I feel safe and learn stuff too. Feel better

>> KD>

>>

>> KD> From: " barb1283 " <barb1283@y...>

>>

>> KD> ,

>> KD> I think my cancer is mycotoxin associated for many reason and

t> that

>> KD> is why I am working so hard on this! All this came about

t> after

>> KD> taking a medicine that suppressed my immune system. I got

t> sick and

>> KD> felt worse when I was at home, not when I was out. Then I

t> realized

>> KD> I had mold in house and I tried so many ways and times to be

t> tested

>> KD> for fungal infection in 2004 or even just Candidas to no

t> avail. Now

>> KD> my Candidas is obvious but I had to wait about a year for a

t> doctor

>> KD> to see that and test me.

>> KD> Friends don't understand why all I can talk about is mold and

>> KD> cleaning my house and never talk about my cancer surgery just

t> last

>> KD> October! So, I only make sense to people here or at least I

t> *hope I

>> KD> make sense here anyway!!!

>>

>>

>> KD>

[Guest guest]

OMG! How hysterical. I just read that to my parents. Hahahaha. After 6

years of being fatigued, my Mom still asks " Why do you sleep so much? "

Your sister's story sort of parallels mine, so that was funny too.

Barth

TOXIC MOLD SURVEY: www.presenting.net/sbs/sbssurvey.html

---

e> Well Hey!

e> Then you oughtta like THIS story!

e> Thanksgiving dinner of 1997 I told my family that I would no longer

e> accept any of their BS about my " crazy mold theory " and that mold

e> was affecting me in exactly the way I described and anyone who said

e> differently was low life lying no-good vermin scumbag from Hell.

e> That was good enough to shut most of 'em up but my sister decided to

e> be the " scumbag from Hell " and said " So you are saying that all the

e> doctors are wrong and YOU are right! "

e> To which I responded " Yes. That is exactly what I am saying " .

e> And she said " Well, You're an arrogant bastard " .

e> What could I possibly say to that except F**K Y*U!

e> Which I did.

e> And we haven't really spoken much since.

e> You see, I had been refusing to go to her house since it was

e> knocking me flat, and that's what got the conversation turned

e> to " 's little obsession " .

e> And in 2000 my Mom called to tell me that my sister had been getting

e> really sick and had her house tested for mold and found that " What

e> do you call it? Stich, Stick, Stocky - something? " and had to have

e> it remediated.

e> Of course, my dear sister never called me to grovel and beg

e> forgiveness for being such a B from H while I was fighting for my

e> life. Not one word. Never an acknowledgement of " 's Crazy Mold

e> Nonsense " being reality. Not even an indication that she had ever

e> heard the word before and certainly couldn't remember it though I

e> had made STACHYBOTRYS quite clear.

e> So despite the despicable behaviors of " friends " and family who are

e> perfectly willing to watch you die and call you a liar the whole

e> time, at least you find out who your true friends are and

e> occasionally even a little bit of justice will be visited upon them.

e> I didn't put the mold there - I swear.

e> But I should have!

e> -

e> FAIR USE NOTICE:

e>

[Guest guest]

" I just

wish I had enough money to buy the world a copy of Dr. Shoemaker's Mold

Warriors!! "

I HEARD that!

Funny 'bout the lepers. I was just pondering that one earlier this evening. Not

my own religious preference, but I was educated by Christians. One of my very

favorite bible stories - Even Christ freaked out when left alone amongst the

lepers for too long. It's a great story about human limitations. I try to

remember that one when I get in over my head. (But these days, I wonder why

nobody bothered to mention how the lepers felt about the whole thing, since they

had to stay there ALL the time... ; )

ssr3351@... wrote:

Serena

www.freeboards.net/index.php?mforum=sickgovernmentb

---------------------------------

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[Guest guest]

<Maybe voodoo dolls would be a help!>

I have wanted those a couple of times. Well, more than a couple. LOL

I have been so busy this past 2 weeks working, but I couldn't resist a reply

to this conversation.

I can't add much, except I agree with all of you. Have had the same

experiences, and the same feelings. Lost friends. Wanted to smack my uncle,

who basically at a family party said I was nutz. (who by the way is sick,

and has mold in his home-he'll find out the hard way, then we'll see who is

nutz) My very best friend I lost, who is also sick along with her whole

family, doctor can't tell her why. But, I can. (I have seen the mold

growing all over her home, she'd rather not know)

Funny for me though, my friends and family- if they found out they were

exposed to mold, and found it in their homes-would call me crying, upset,

wanting to know what to do. Truthfully, I am not sure I would help. I

know it sounds harsh, but at this point I feel they should learn the hard

way. See what it is like to lose everything you have, see what it is like

going to ten million doctors (who can't tell you what is wrong), ruin your

credit, almost loose your children, loose your home, loose your cars, loose

all of your possessions, not be able to work because you are sooo sick and

tired. Try to do it all yourself. Let's just see how fun it is, and how

nutz you are. Can you do it, and come out like I have? Then I can spread

the rumor they are nutz, and just wanted a new home and all new possessions

(like I couldn't have done that a different way). I mean, could they have

not even gotten my kids a book. Or, couldn't you have helped with food, or

help us move 5 times in one year, or anything else? Not even a phone call

when the kids were in the hospital multiple times. We'll see who's nutz in

the end.

WOW!!!! that felt great. THANX for letting me get that out.

I feel for everyone of you. Serena, Barb, , KC, Sharon, , ,

Me, the kids, everyone else who I didn't mention. We may have lost family

and friends, but I look at it this way. My parents are my hugest

supporters. I have gotten new friends who understand thru the forum. I

have support. If I am having a bad day, KC and Sharon and some others will

let me babble and complain until I feel better. They all make me feel I am

not alone, as many days I do. I don't go out much either. But, I have

gotten new friends who are awesome. It's like therapy being here. When

some of you call me or write because you need help, you are always thankful

for my help and for my listening. I should tell you, it helps me too. My

daughter even gets help here. Sharon and KC have been so nice to her. She

prays for them every night. She knows she is not alone. Bless you both,

for your love and support.

Thank you EVERYONE for your support and postings, I read them all, not that

I can remember all of them. hehehe

Also, after this week I will e-mail back all of you have sent me e-mails.

My work will slow down. Then I'll have time to spend writing you.

Bless all of you.

[Guest guest]

BOY DOES THAT SOUND FAMILIAR, ERIK!!

THANKS FOR THE GRIN, THO.

V.

[] Re: friends understanding

Well Hey!

Then you oughtta like THIS story!

Thanksgiving dinner of 1997 I told my family that I would no longer

accept any of their BS about my " crazy mold theory " and that mold

was affecting me in exactly the way I described and anyone who said

differently was low life lying no-good vermin scumbag from Hell.

That was good enough to shut most of 'em up but my sister decided to

be the " scumbag from Hell " and said " So you are saying that all the

doctors are wrong and YOU are right! "

To which I responded " Yes. That is exactly what I am saying " .

And she said " Well, You're an arrogant bastard " .

What could I possibly say to that except F**K Y*U!

Which I did.

And we haven't really spoken much since.

You see, I had been refusing to go to her house since it was

knocking me flat, and that's what got the conversation turned

to " 's little obsession " .

And in 2000 my Mom called to tell me that my sister had been getting

really sick and had her house tested for mold and found that " What

do you call it? Stich, Stick, Stocky - something? " and had to have

it remediated.

Of course, my dear sister never called me to grovel and beg

forgiveness for being such a B from H while I was fighting for my

life. Not one word. Never an acknowledgement of " 's Crazy Mold

Nonsense " being reality. Not even an indication that she had ever

heard the word before and certainly couldn't remember it though I

had made STACHYBOTRYS quite clear.

So despite the despicable behaviors of " friends " and family who are

perfectly willing to watch you die and call you a liar the whole

time, at least you find out who your true friends are and

occasionally even a little bit of justice will be visited upon them.

I didn't put the mold there - I swear.

But I should have!

-

FAIR USE NOTICE:

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[Guest guest]

are you from nj?

erik_johnson_96140 <erikj6@...> wrote:Well Hey!

Then you oughtta like THIS story!

Thanksgiving dinner of 1997 I told my family that I would no longer

accept any of their BS about my " crazy mold theory " and that mold

was affecting me in exactly the way I described and anyone who said

differently was low life lying no-good vermin scumbag from Hell.

That was good enough to shut most of 'em up but my sister decided to

be the " scumbag from Hell " and said " So you are saying that all the

doctors are wrong and YOU are right! "

To which I responded " Yes. That is exactly what I am saying " .

And she said " Well, You're an arrogant bastard " .

What could I possibly say to that except F**K Y*U!

Which I did.

And we haven't really spoken much since.

You see, I had been refusing to go to her house since it was

knocking me flat, and that's what got the conversation turned

to " 's little obsession " .

And in 2000 my Mom called to tell me that my sister had been getting

really sick and had her house tested for mold and found that " What

do you call it? Stich, Stick, Stocky - something? " and had to have

it remediated.

Of course, my dear sister never called me to grovel and beg

forgiveness for being such a B from H while I was fighting for my

life. Not one word. Never an acknowledgement of " 's Crazy Mold

Nonsense " being reality. Not even an indication that she had ever

heard the word before and certainly couldn't remember it though I

had made STACHYBOTRYS quite clear.

So despite the despicable behaviors of " friends " and family who are

perfectly willing to watch you die and call you a liar the whole

time, at least you find out who your true friends are and

occasionally even a little bit of justice will be visited upon them.

I didn't put the mold there - I swear.

But I should have!

-

FAIR USE NOTICE:

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