Re: Argument with my GP-MCS

[Guest guest]

,

So true. And surely this so called Dr has net hookup.

I get articles from various medical sites all the time

about MCS, CFS, CFIDS, Fibro, MS, RA. And am an oldie

from the medical profession, who suffers from all this

stuff. And though virtually home bound, still take on

line courses for credits. All of these supposed

individual maladies are in fact ONE! Are so many

articles on MCS put out by JAMA, the AMA, etc. I sure

wouldn't say this so called Dr is a Dr. MCS is

getting worse because of synthetic organic chemicals.

I can hardley believe a supposed Dr would be so

ignorant.

___________________________________________

http://www.coalitionagainsttoxins.com/WhatisMCS.htm

Symptoms of Multiple Chemical Sensitivity

asthma or other breathing problems

autoimmune disorders

behavioral problems

bloating or other intestinal problems

cardiovascular irregularities

disorientation or becoming " lost "

dizziness

paralysis

fatigue and depression

flu-like symptoms

food allergies and intolerances

headaches

increased sensitivity to odors

inflammation

irritability

learning disabilities

mental confusion

muscle weakness and joint pains

numbness and tingling in limbs

body pain

persistent infections, especially yeast

persistent skin rashes and sores

seizure disorders

short or long term memory loss

visual disturbance

___________________________

No Safe Haven

People With Multiple Chemical Sensitivity Are Becoming

the New Homeless

Though it's only recently begun to make headlines,

multiple chemical sensitivity (MCS) is not new: People

have been reporting the symptoms of it on an

increasing arc for the last 50 years, as our society

has become more and more synthetic. Between 1940 and

1980, the production of synthetic organic chemicals

increased from less than 10 billion pounds per year to

more than 350 billion. In some ways, MCS is an allergy

to modern life--a physical reaction to the common

chemicals, ranging from detergents, pesticides,

solvents and perfumes to foods and pharmaceuticals,

that permeate our everyday existence. Less than one

percent of the 1,000 new chemicals added each year

have been tested for toxicity.

No longer rare, MCS affects as much as 30 percent of

Americans, with symptoms that range from the mild

(headaches, fatigue) to the severe (chest pains,

depression, shortness of breath). Despite its growing

ubiquity, however, MCS is rarely taken seriously. As

's Environment and Health Weekly explains it,

" Because MCS does not fit any of the three

currently-accepted mechanisms of disease--infectious,

immune system, or cancer--traditional medicine has not

known how to explain MCS, and so has often labeled it

'psychogenic'--originating in the patient's mind. This

has left MCS sufferers in limbo. Told they are crazy,

or imagining their disease, or making it up, they find

themselves passed from physician to physician without

any satisfactory answers and often without relief from

their very real distress. "

--- " Page, " <pageang@...> wrote:

> Sometimes I think about us all sending a page about

> our bios - to someone like her - strength in

> numbers... An article in New Design Mag last summer

> said there are 5 million with MCS - more than with

> MS no? Does she believe in that?

>

> [] Argument with my GP

> Up in Canada I think it's written in blood that

> once a person's on disability doctor's shouldn't

> listen to them!

>

> Honestly every time I see this woman, before I

> really

> get into why I'am seeing her she pisses me off with

> I don't believe that, I don't believe this ....

>

> Today I brought along the old bread to show her

> what happens when I eat bread a few days old,

the hair goes staticky, the moss growth appears

on > my skin below my lips, I start sratching

with 2-5 minutes .... and I

> bought along a lot of stuff about MCS, Organic

> Foods,

> Leaky Gut, Yeast Overgrowth, and she says she

> doesn't

> believe any of that, so the adrenelen goes up and

> my

> fight hormone almost takes over and I needlessly

> forget what else I'am supposed to mention, even

> though

> it may be written down in front of her she won't

> read

> it!

>

> Then she ask me what's MCS??

>

> She doesn't know half of what my reactions are, but

> she wouldn't believe me anyway!

> Sniff! (Janice)

> But when you need a GP for ODSP forms, and you

> can't find one that listen's what do you do???

__________________________________

Stay connected, organized, and protected. Take the tour:

http://tour.mail./mailtour.html

[Guest guest]

I can hardley believe a supposed Dr would be so

ignorant.

My Opinion on this is the Dr has just become legal Drug dealers they are not

ignorant it's has become all about Money.

Peace

Elvira

------------------------------------------------------------------------------

[Guest guest]

> My Opinion on this is the Dr has just become legal Drug dealers they are not

ignorant

it's has become all about Money.

>

Well, there is the money, but it seems to me there is an almost religious belief

system

about what symptoms are or are not " real " .

I never had the problem of believability with the old time doctors- they

understood that

there were simply some things that we hadn't figured out yet, with the human

body being

one of the most complicated systems of life yet.

And then there is the heavyweight bad guys out to get the ones who practice real

medicine, and are dedicated to the science of it. Some docs here have had their

liscense

pulled for it. That is just UNAMERICAN!

This is, after all the land of the free........so we are told, anyway. At least

it is alot freer if

you have alot of money. oh well.....

[Guest guest]

> Well, there is the money, but it seems to me there is an almost

religious belief system

> about what symptoms are or are not " real " .

Prof. Leonard tested medical students response to names of

varying " severity " for the same condition:

Chronic Fatigue Syndrome.

Nightingales disease.

Myaligic Encephalomyelitis.

and found that the majority of medical students correlated the

severity and prognosis to the illness name rather than the symptoms.

Prof. used this as an argument for the necessity to change CFS

to ME in order to sway doctors into accepting that the illness is real.

But the way I see it, allowing a doctor to assess illness severity

according to how the name impresses him is like accepting that it is

legitimate for a jury to decide your innocence or guilt according to

how much you resemble a criminal.

I see this study of Prof. s as calling for the necessity to test

the diagnostic skills of medical students to determine if they are

suggestible individuals who are subjectively pursuaded by irrelevant

factors such as whether the name sounds scary enough to be serious.

-

[Guest guest]

> But the way I see it, allowing a doctor to assess illness severity

> according to how the name impresses him is like accepting that it is

> legitimate for a jury to decide your innocence or guilt according to

> how much you resemble a criminal.

LOL- yeah, really.

I have a girlfriend that was a practicing chiro for years, and didn't recognise

the symptoms

of chronic fatigue in another friend, until the name was mentioned- then it all

fell into

place for her. Boy was she surprised and embarrassed- it is common for allopaths

to do

that, but for her! She thought she would be beyond that, but it still happened

to her.

We all love our tests, and try to make them objective, but it is not too easy

with these

bodies. Hopefully the new docs will learn better.

[Guest guest]

I do think that name CFS is not good name for illness because many

serious illnesses present with severe fatigue and also alot of

people can relate to feeling fatigued 'chronically' who

aren't " sick " but just overworked or stressed so I think it isn't a

good description of illness. I know when I first heard the

name 'chronic fatigue', I said " I have THAT " , years ago before I did

have it. But person I was with said " I do too " (but she definately

doesn't - lots of energy). Everyone thinks they are tired, or more

tired than they'd like to be if they are busy. I know this past

year when I developed chronic sore throat 24/7 and started getting

muscle and joint pains and weakness when 'someone' said it sounds

like CFS I looked up symptoms and for FIRST time became a 'believer'

that it existed. Before that I did wonder. It sounded so general

and I was chronically fatigued with chronic and severe insomnia

without the other CFS symptoms.

>

> Prof. used this as an argument for the necessity to change

CFS

> to ME in order to sway doctors into accepting that the illness is

real.

>

> But the way I see it, allowing a doctor to assess illness severity

> according to how the name impresses him is like accepting that it

is

> legitimate for a jury to decide your innocence or guilt according

to

>