Re: Dr. Shoemaker's medicine

[Guest guest]

--- In , " ldelp84227 " <ldelp84227@a...>

wrote:

> I know quite a few are taking Dr. Shoemaker's medicine, is anyone

> improving yet? And how long do you have to take it? Seems like some

> have been on it for a while. Just wondering. Thanks,

Well, Me.

20 months ago, I could barely walk to the grocery store, and had all

the other debilitating symptoms everyone here reports. Last week, I

ran six miles on a trail at 8,000' elevation in Rocky Mountain

National Park.

I've been using Cholestyramine for about seven months now. However, I

could engage in the level of activity mentioned above last year before

being on the drug, when I had been practicing extreme avoidance for

months and living outdoors with scrupulously clean equipment.

Unfortunately, I would relapse with any recurring exposure.

The difference is that now with the CSM, I can live indoors with

dramatically reduced symptoms. I am aware of indoor envoronments that

are more and less optimal, however. I am searching for a functionally

optimal environment for the winter. Affected persons need to practice

avoidance as well as pursue drug therapy -- Dr. Shoemaker states this

many times. Listen to the others on this list who have deep insight

on this isse.

It needs to be said that I am not on Dr. Shoemakers full treatment

regime, I am not being treated by him at this time. His ongoing,

extremely credible research is developing new treatments for the

various aspects of mycotoxity, and this is largely driven by

individual genotypes.

Getting doctors to recognize the benefits that treatments like CSM

provide can lead to them understanding the overall disease process,

and work to employ the full spectrum of interpretive immune sytem

treatments that are being developed. There is no single solution,

drug or otherwise, here. Everyone needs to understand what works, what

does not, and use all information agressively -- and integratively.

Lee

[Guest guest]

> > I know quite a few are taking Dr. Shoemaker's medicine, is anyone

> > improving yet? And how long do you have to take it? Seems like

some

> > have been on it for a while. Just wondering. Thanks,

>

> Well, Me.

>

> 20 months ago, I could barely walk to the grocery store, and had all

> the other debilitating symptoms everyone here reports. Last week, I

> ran six miles on a trail at 8,000' elevation in Rocky Mountain

> National Park.

>

Thanks , Good to know it is helping. I am waiting to hear

how others do before I check it out. It is weird how you say you

can run, etc. I can go to the pool and swim like I am so healthy.

People would never know there that I am ill and have asthma, mcs,

etc. Especially since I can practically swim the length of the pool

underwater. But I can't even turn on my ac because of fragrance and

am so weak at home. Have moved so many times out of moldy places I

am afraid to move. Atleast no mold here. Thanks and happy you are

feeling better.

[Guest guest]

<ldelp84227@a...> wrote:

> I know quite a few are taking Dr. Shoemaker's medicine, is anyone

> improving yet? And how long do you have to take it? Seems like

some have been on it for a while. Just wondering. Thanks,

, I'm in the weird position of being in agreement with Dr

Shoemakers approach even though I am not a patient.

I haven't done his protocol so I can't comment on results.

In 2001 I wound up in a high exposure situation that put me under

the power curve so I gave CSM a try, but CSM alone does not

constitute " The Shoemaker Protocol " and while on just CSM I didn't

improve in the intensely controllable manner I know can be

accomplished by extreme avoidance, and I didn't feel like waiting

and dealing with feeling like crap, so I just resorted to the

strategy that I have found to be effective over the years.

Treatments and protocols aside, the peculiarity is that all doctors

refused to even talk about mold from the very beginning of " Chronic

Fatigue Syndrome " .

After these years of practicing extreme avoidance, Dr Shoemaker is

the first doctor to bother to LISTEN and develope and understanding

of CFS that is consistent with my experience.

I spent the last week out hiking, biking, camping and kayaking and

doing all the others activities that are denied to me when under the

influence of the mold response.

-

[Guest guest]

,

Is avoidance the main thing or only thing that makes you feel better

or is the exercise another key for you, or the avoidance just ALLOWS

you to do these things that you love?

Thanks, BarbB

>

> , I'm in the weird position of being in agreement with Dr

> Shoemakers approach even though I am not a patient.

> I haven't done his protocol so I can't comment on results.

> In 2001 I wound up in a high exposure situation that put me under

> the power curve so I gave CSM a try, but CSM alone does not

> constitute " The Shoemaker

[Guest guest]

Hi ,

I have been a patient of Dr. Shoemaker's for a year and a half. I was a

teacher for yrs. and sick all the time and getting worse by the day. I honestly

felt like I was dying! Local Drs. thought I had some type of virus!!! I took

CSM 4X a day for close to a yr. now on a maintenance dose only 2X a day. I am

basically symptom free, I still have some short term memory loss and get

very tired if I do too much in a day. I try to avoid moldy places but if I do

go into a bad building and get a hit I just make sure to take an extra dose

or two. It is AMAZING stuff!

Sue

[Guest guest]

> ,

> Is avoidance the main thing or only thing that makes you feel better

> or is the exercise another key for you, or the avoidance just ALLOWS

> you to do these things that you love?

> Thanks, BarbB

Barb,

THAT is one perspicaceous question!

Dr Shoemaker was following up on the peculiarity that and I

concentrated our efforts on climbing mountains and this resulted in a

noteworthy difference between us and people who did not.

I cannot begin to tell you what a genius Dr Shoemaker is!

There is ABSOLUTELY no detail too " insignificant " to catch his

attention - the observation of " Wingspan to Height " correlating to the

genetic HLA susceptibility is only one example of many incredible

associations that Dr Shoemaker sees when no one else does.

I was actually privileged to have developed some answers to " Osler

type " observations that Dr Shoemaker had made which gave me the unique

opportunity to test him to find out if these anomalies were included

in his books because he knew why they were relevant or if they were

singled out because of the IMPORTANCE THAT THE PATIENTS ATTACHED to

them.

Like the true Heir of Osler that he is, Dr Shoemaker did not yet know

why they were important but only knew they were important because he

LISTENS to the tenor of a patients complaint as well as the substance.

And so it is with the answer to your question.

It was the exercise conducted while FREE OF THE INFLAMMATORY RESPONSE

which increased capillary perfusiong and the increase in altitude that

and I " sensed " to be a factor, induces the release of

Erythropoietin (EPO), an anti-inflammatory enzyme that helps maintain

blood-brain-barrier integrity and promote circulatory efficacy.

The exercise which takes place under specific pristine conditions and

aims at pushing the anaerobic threshold to just under the point of

glycogen depletion is part of the therapy.

and I could feel the benefit and try to relay it, but it

took Dr Shoemakers genius to respond to the subtleties in our stories

and tell us why it was important.

I have never encountered anything like this in a doctor before.

There are many who claim to be adherents of Sir Osler,

but Dr Shoemaker is the one who proves it.

-

[Guest guest]

....also from what I've read, exercise stimulated the immune system.

I don't know if it primarily due to raised body temperature but that

is definately one way. For people who CANNOT exercise for some

reason I've heard of warm baths and sitting in saunas as an

alternative way to raise body temperature and stimulate your immune

system. Of course your body develops body temperature on it's own

when very ill even while lying down. It is important to not take

aspririn or fever reducers unless fever gets very high since it is

high in order to kick the infection out. This is one thing

allopathy does not tell patients. People think temperature is a bad

thing and if they get one to take tylenol or something when what

they should do is go to bed and leave the temperature alone. If it

gets higher despite getting rest, then antibiotic or some

intervention needed because it is sign despite body's best efforts,

things are not going well. You should also reduce temperature at

night if it is interfering with sleep, while I am on the soapbox.

However if increased circulation is important to fighting infection

you would only get in exercise I don't know. Seems possible since I

think it would stimulate your lymph nodes or increase circulation

through them or to them at least. Then their is the increased

oxygen and sunshine, so it may have played a big role. I just am

soooooooooooo tired and small amount of exercise seems to do me in

for the rest of the day. I do feel I am beginning to do more

exercise though so perhaps if I keep trying it will improve

gradually until I can do what I used to again.

-- In , " erikmoldwarrior "

<erikmoldwarrior@e...> wrote:

>>

> Barb,

> THAT is one perspicaceous question!

> Dr Shoemaker was following up on the peculiarity that and

I

> concentrated our efforts on climbing mountains and this resulted

in a

> noteworthy difference between us and people who did not.

>

[Guest guest]

> And so it is with the answer to your question.

> It was the exercise conducted while FREE OF THE INFLAMMATORY RESPONSE

> which increased capillary perfusiong and the increase in altitude that

> and I " sensed " to be a factor...

This is accurate. In my initial illness, I would bounce back within

24 hours after exposure to my contaminated living space. After things

progressed, it took longer -- more like 72 hours.

After living outside allmost fulltime last year, and practicing

extreme avoidance, I was functioning at 90% physical capaicity, and

able to climb, bike, etc. This was before using CSM -- I would sitll

relapse with exposure.

does not give himeself enough credit here, however. His insights

into his inflammatory response provided me with the tools I needed to

survive this. His obvious current grasp of the science here seems to

be validating Dr. Shoemakers work, and vice versa.

Everyone here needs to acknolwledge the work of both these men -- as

noted, Dr. Shoemakers' main strength is that he LISTENS, and then

interprets what he hears. Members of this board need to do the same

with to the information that is being presented here, and see if it

fits with your observations. However, even the most interpreteive

person is not going to be able to isolate reactions under the

influence of inflammatory response due to current exposures.

It's summer -- take advantage of this, and go oustide your current

living space to gauge your true reactions in a biotoxically neutral

environment. Then you will be much more able to gauge your benefits

from any traeatment you have in the future.

Lee