Re: Do most CFS sufferers have cognitive impairment......memory, etc.?

[Guest guest]

****The route you take in your healing is individual to you and depends on how

toxic you are.

The routes to consider are:

1) Klinghardt/Pat Kane - Glutathione

2) Yasko - methylation

3) Detoxification Cleanses -Metals,Bowel, Parasite, Liver, Kidney, Immune

Regards

CS

Hi,

According to tests I have above average intelligence but honestly, I

feel like a senile moron.

I want to know what percentage of CFS sufferers suffer from memory or

learning difficulties. Right now I am taking a course in MS Office so

I can get a part-time job. Class is every day, which I find extremely

difficult. I just come home and crash. But I am alarmed that I can

learn something one day and the next day it's as if I never heard it

before. At times I sit in class and the teacher's lecture just sounds

like noise.....my mind doesn't register any meaning.

I might as well ask what, if anything, has helped with this problem?

My doctor put me on Provigil, but I can still crash in the middle or

at the end of the day.

Happy New Year to everyone!

Do most CFS sufferers have cognitive

impairment......memory, etc.?

Hi,

According to tests I have above average intelligence but honestly, I

feel like a senile moron.

I want to know what percentage of CFS sufferers suffer from memory or

learning difficulties. Right now I am taking a course in MS Office so

I can get a part-time job. Class is every day, which I find extremely

difficult. I just come home and crash. But I am alarmed that I can

learn something one day and the next day it's as if I never heard it

before. At times I sit in class and the teacher's lecture just sounds

like noise.....my mind doesn't register any meaning.

I might as well ask what, if anything, has helped with this problem?

My doctor put me on Provigil, but I can still crash in the middle or

at the end of the day.

Happy New Year to everyone!

________________________________________________________________________

AOL's new homepage has launched. Take a tour at http://info.aol.co.uk/homepage/

now.

[Guest guest]

I can identify with your descritpion completely. I can remember sitting in

church...noises amplified in my head, activity...just people sitting around me,

were a distraction, lights even seemed too much for my brain to process. It

seemed as if there was too much information coming in and my brain just shut

down because it was overwhelmed.

The good news is, today I'm feeling much better, healthier, brain function,

while a long way from perfect is better. I don't get overwhelmed driving 5

miles into town and back...usually. In fact we went on an 8 hour shopping trip

yesterday and while I was exhausted, I wasn't overwhelmed! I'm so very thankful

for that.

In case you want to ask, I can't say what turned my health around. I go to a

Fibro and Fatigue Center. They treat on many levels...mitochondrial

dysfunction, infectious disease influence, hormonal imbalance...it all factored

in. I have a ways to go, but I'm climbing out from under the rock.

Diane in MI

Do most CFS sufferers have cognitive

impairment......memory, etc.?

Hi,

According to tests I have above average intelligence but honestly, I

feel like a senile moron.

.

------------------------------------------------------------------------------

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Checked by AVG Free Edition.

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3:32 PM

[Guest guest]

" qqtip2001 " <qqtip2001@...> wrote:

> According to tests I have above average intelligence but honestly, I

> feel like a senile moron.

>

> I want to know what percentage of CFS sufferers suffer from memory or

> learning difficulties.

Despite the decades long deliberate misportrayal of CFS as being some

kind of tiredeness, the neurological problems are the very essence of

what caused Dr to call the CDC.

He had seen tired people before - that wasn't why he was alarmed.

If no neurological problems, it's not the illness that came to be

called CFS.

-

[Guest guest]

I, too, know I am an intelligent person, but there are days I cannot

articulate a decent sentence and feel like I am a bumbling, stumbling

idiot. My sister loves to tease me and say we are just getting older,

but I know the difference. All the time growing up I knew the

difference and felt like I was not " normal " compared to others who were

quick with words (there are some who are just normally this way

anyway). I felt like my brain was in a fog early on and treasured the

days when I felt fog-free and normal compared to other days. I can

learn new things and do loads of things, but there are still good days

and bad days.

I remember in 2001 when I crashed and burned from overdoing things

(before I knew I had CFS/FMS) and there were few good days. When there

was a good day I would always do so much to catch up...then spend a few

recuperating. In 2003 I was so tired of the bad days I was ready to

either find answers or throw in the towel, and I decided I was too young

at 51 to give up. I started researching CFS/FMS, found Dr.

Dantini on the internet, did another food allergy testing (for which I

still remain positive for a number of things especially wheat), viral

testing and started the Dantini protocol of food allergy diet rotation

and Valtrex. It took six months before I felt good and then I got more

done in that seventh month than I had the previous two years. In 2005 I

discovered Recuperation from Spain and improved even further. I used

three sachets of their product for about nine months before I cut it

back to two sachets with an occasional three if I was busy. I now use

one sachet per day, often forget to take it until my leg muscles start

cramping and get reminded to take it again.

I also added melatonin to sleep at night, Ultra-Cal Night by source

naturals which gave me dreams back, and had to go on prescription

anti-inflammatories which actually helps a lot (Voltaren), along with my

allergy prescription meds (Advair, Nasonex, Allegra) and HRT therapy so

I could sleep at night. I find if I keep to my food allergy diet (wheat

really affects my brain fog and mood), take a lot of vitamins (Natrol,

Twinlab, Source Naturals, Pharmanex brands) my body does much better. I

now have more good days than bad and need less time to recuperate from

stressful days.

I still have trouble traveling for long periods in the car or on the

motorcycle with hubby, find 3-1/2 hours is the limit for one day total,

hate other beds (I have the mattress with the individual coils and a

mattress topper which is heaven to lay on), and don't get proper dietary

needs when traveling. I go to bed around 10:30 PM and sleep until I

awaken (anywhere from 7:30 AM to 10:00 AM). This routine works well for

me I find. I can now work 7 hour shifts at the school cafeteria

standing on a cement floor, walking tons and lifting heavy stuff without

bad repercussions. I can roller skate for two or more hours and feel

good afterwards. I still have muscle pain and stiffness, for which I

get a monthly massage, and see the chiropractor regularly.

Life is tolerable, I am blessed to live near the ocean where the air is

fresh and recirculated daily, and feel good about myself. I have a lot

of hobbies to help with all the family stress of father-in-laws' cancer,

teenage son, hubby with panic anxiety and depression and work burnout.

Just this week I realized I have a lot of talents and am good at a lot

of things, and feel good about myself. For that I am grateful.

Happy new year to all and hope you find things that help you feel better

in 2008.

in La Selva Beach CA

qqtip2001 wrote:

>

> Hi,

>

> According to tests I have above average intelligence but honestly, I

> feel like a senile moron.

>

> I want to know what percentage of CFS sufferers suffer from memory or

> learning difficulties. Right now I am taking a course in MS Office so

> I can get a part-time job. Class is every day, which I find extremely

> difficult. I just come home and crash. But I am alarmed that I can

> learn something one day and the next day it's as if I never heard it

> before. At times I sit in class and the teacher's lecture just sounds

> like noise.....my mind doesn't register any meaning.

>

> I might as well ask what, if anything, has helped with this problem?

> My doctor put me on Provigil, but I can still crash in the middle or

> at the end of the day.

>

> Happy New Year to everyone!

>

[Guest guest]

I can relate to that. I want to go back to school myself but am

afraid to due the feeling of forgetting everything. I have a hard

time remember when I have a DR.s appt. let alone remembering what I

learned. Somedays I just feel totally lost and don't know what I am

doing, going, or looking for. Brain fog is truely a good name for it,

cause I have had days where it just feels it weighs heavy in my head

like a heavy fog. I tried to take back up smoking to releave some

stress but that made the brain fog worse, not to mention feeling

dizzy and lightheaded most of the day. So I gave that up again.

I have noticed it come on while I am doing important work such

managing my budget, orginizing paperwork, etc. This scares me because

my Dr. won't let me work do due the back, neck, hip and feet pain I

have been having for several months now but now this fog could

posiblily keep me from getting an office job as well. I have been

turned down for disabilty, which I plan to appeal. So I have been

looking for my info on this so I can learn to cope with it.

And for those who have sent their ideas and such, I just want to say

thank you for your ideas. God Bless

>

> Hi,

>

> According to tests I have above average intelligence but honestly,

I

> feel like a senile moron.

>

> I want to know what percentage of CFS sufferers suffer from memory

or

> learning difficulties. Right now I am taking a course in MS Office

so

> I can get a part-time job. Class is every day, which I find

extremely

> difficult. I just come home and crash. But I am alarmed that I can

> learn something one day and the next day it's as if I never heard

it

> before. At times I sit in class and the teacher's lecture just

sounds

> like noise.....my mind doesn't register any meaning.

>

> I might as well ask what, if anything, has helped with this

problem?

> My doctor put me on Provigil, but I can still crash in the middle

or

> at the end of the day.

>

> Happy New Year to everyone!

>

[Guest guest]

Here's where I break down. I have no trouble getting from A to B

intellectually. I have no trouble getting from B to C, or from C to D. But by

the time I get to D, I have completely forgotten A to C and have to start over.

Interestingly, I'm finding that the more acute my exposure to mold, the less

acute my brain.

Have to ask me nicely <lgt4myft@...> wrote:

I can relate to that. I want to go back to school myself but am

afraid to due the feeling of forgetting everything. I have a hard

time remember when I have a DR.s appt. let alone remembering what I

learned. Somedays I just feel totally lost and don't know what I am

doing, going, or looking for. Brain fog is truely a good name for it,

cause I have had days where it just feels it weighs heavy in my head

like a heavy fog. I tried to take back up smoking to releave some

stress but that made the brain fog worse, not to mention feeling

dizzy and lightheaded most of the day. So I gave that up again.

I have noticed it come on while I am doing important work such

managing my budget, orginizing paperwork, etc. This scares me because

my Dr. won't let me work do due the back, neck, hip and feet pain I

have been having for several months now but now this fog could

posiblily keep me from getting an office job as well. I have been

turned down for disabilty, which I plan to appeal. So I have been

looking for my info on this so I can learn to cope with it.

And for those who have sent their ideas and such, I just want to say

thank you for your ideas. God Bless

>

> Hi,

>

> According to tests I have above average intelligence but honestly,

I

> feel like a senile moron.

>

> I want to know what percentage of CFS sufferers suffer from memory

or

> learning difficulties. Right now I am taking a course in MS Office

so

> I can get a part-time job. Class is every day, which I find

extremely

> difficult. I just come home and crash. But I am alarmed that I can

> learn something one day and the next day it's as if I never heard

it

> before. At times I sit in class and the teacher's lecture just

sounds

> like noise.....my mind doesn't register any meaning.

>

> I might as well ask what, if anything, has helped with this

problem?

> My doctor put me on Provigil, but I can still crash in the middle

or

> at the end of the day.

>

> Happy New Year to everyone!

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

This is the most frustrating thing of all, for me. I have trouble

retaining cognitive building blocks. Here's an example.

1. All elephants have trunks.

2. Bowser does not have a trunk.

3. Therefore, Bowser is not an elephant.

Okay, I followed that, no problem. But in order to move forward, I

have to accept that Bowser is not an elephant, and accept that I

arrived at that conclusion logically, because as soon as I move on

to the next step in my reasoning I will forget HOW I arrived at that

conclusion.

So if I move forward in my train of thought using " Bowser is not an

elephant " as a stepping stone, and later in my train of thought find

that I have to revisit that premise, I will pay hell trying to

reconstruct how I arrived at that conclusion in the first place.

This kills my soul, as all of my life I have lived in my head. And

now it's hostile territory!

Khaly

>

> Hi,

>

> According to tests I have above average intelligence but honestly,

I

> feel like a senile moron.

>

> I want to know what percentage of CFS sufferers suffer from memory

or

> learning difficulties. Right now I am taking a course in MS

Office so

> I can get a part-time job. Class is every day, which I find

extremely

> difficult. I just come home and crash. But I am alarmed that I can

> learn something one day and the next day it's as if I never heard

it

> before. At times I sit in class and the teacher's lecture just

sounds

> like noise.....my mind doesn't register any meaning.

>

> I might as well ask what, if anything, has helped with this

problem?

> My doctor put me on Provigil, but I can still crash in the middle

or

> at the end of the day.

>

> Happy New Year to everyone!

>

[Guest guest]

Khaly

Your description is exact and descriptive. It seems to me very intensely

thoughtful too. I understand your grief. I apparently have a more artistic

approach to life, brain functions more along the lines of hands on, touchy feely

to learn things. So...I've never been great at learning things that have to be

grasped abstractly. Fact and figures escape me before they settle in, numbers,

geography, history...none of it sticks. But, give me something to do with my

hands, or learn something my whole body participates in, and I'll learn quickly

and not forget.

The one exception, my nursing education. I seemed to be able to manage what was

necessary to function well in that capacity. And now, since retirement has been

my good fortune for 10 years, my passion is soapmaking. A little kitchen

wisdom, a lot of chemistry and formulating and I can be entertained for hours in

my soap shop. At the point I was the sickest however, I could not be trusted to

follow the formulas and complete the process without either making mistakes or

second guessing myself. It was most frustrating. I'm on the other side of that

for the moment and am finding many things are attainable with my recovering

brain function.

So, take heart, press on and keep looking for the answers that fit your

situation.

Diane in MI

Re: Do most CFS sufferers have cognitive

impairment......memory, etc.?

So if I move forward in my train of thought using " Bowser is not an

elephant " as a stepping stone, and later in my train of thought find

that I have to revisit that premise, I will pay hell trying to

reconstruct how I arrived at that conclusion in the first place.

This kills my soul, as all of my life I have lived in my head. And

now it's hostile territory!

Khaly

.

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.17.13/1207 - Release Date: 1/2/2008

11:29 AM

[Guest guest]

" khalyal " <khalyal@...> wrote:

>

> This is the most frustrating thing of all, for me. I have trouble

> retaining cognitive building blocks. Here's an example.

>

> 1. All elephants have trunks.

> 2. Bowser does not have a trunk.

> 3. Therefore, Bowser is not an elephant.

>

> Okay, I followed that, no problem. But in order to move forward, I

> have to accept that Bowser is not an elephant, and accept that I

> arrived at that conclusion logically, because as soon as I move on

> to the next step in my reasoning I will forget HOW I arrived at

that conclusion.

>

That's where I thought my experience would have been useful to

CFSers.

1. is a CFS survivor.

2. tried mold avoidance

3. is on top of mountain

Since a CFS survivor should not be on top of a mountain, maybe the

mold avoidance did something - especially since he says so.

But instead, the alternate conclusions are that:

1. could not possibly have " real CFS " .

2. Everyone knows that mold avoidance isn't that helpful, so that

can't be it.

3. If is on top of any mountain, it is just a fluke that he

wrongly attributes to something he was trying at the time he just

happened to get better.

Gee, all the " alternate " conclusions are more complicated than the

first one.

-

[Guest guest]

Are you guys deliberately trying to confuse me? Take it easy on us poor CFS

sufferers!!!

Re: Do most CFS sufferers have cognitive

impairment......memory, etc.?

" khalyal " <khalyal@... > wrote:

>

> This is the most frustrating thing of all, for me. I have trouble

> retaining cognitive building blocks. Here's an example.

>

> 1. All elephants have trunks.

> 2. Bowser does not have a trunk.

> 3. Therefore, Bowser is not an elephant.

>

> Okay, I followed that, no problem. But in order to move forward, I

> have to accept that Bowser is not an elephant, and accept that I

> arrived at that conclusion logically, because as soon as I move on

> to the next step in my reasoning I will forget HOW I arrived at

that conclusion.

>

That's where I thought my experience would have been useful to

CFSers.

1. is a CFS survivor.

2. tried mold avoidance

3. is on top of mountain

Since a CFS survivor should not be on top of a mountain, maybe the

mold avoidance did something - especially since he says so.

But instead, the alternate conclusions are that:

1. could not possibly have " real CFS " .

2. Everyone knows that mold avoidance isn't that helpful, so that

can't be it.

3. If is on top of any mountain, it is just a fluke that he

wrongly attributes to something he was trying at the time he just

happened to get better.

Gee, all the " alternate " conclusions are more complicated than the

first one.

-

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

I have the same difficulties you speak of.I have struggled with CFS for at

least 7 years.before CFS I had a 4.0 average in school. Now that I am back

in school (studying to be an elementary spec. ed. teacher) (I'm thinking

positive that someone will come up with something that will at least allow

me to work before I'm done with school in two more years) I can barely cough

out a 5 paragraph essay on the easiest of subjects.

I too find that at times my brain seems to shut down. I mean, I can audibly

hear the sound of speech, I see that they are looking and speaking to me,

but my brain refuses to process the words. This happens when I read too.

I have been on.(darn, what's the name of the medicine.(I take it every

morning).hold on the train of thought seems to be detouring around the

mountain.... ..not that one, not that one either...ahh that's the one

concerta. It is a stimulant, but that is the only thing that allows me to

be awake and mostly alert for at least part of my day. I'm not on the

highest dose, but don't want to take too much either : ) It at least does

give me a couple of hours that I can usually focus in the morning.

_____

From:

[mailto: ] On Behalf Of qqtip2001

Sent: Tuesday, January 01, 2008 9:03 AM

Subject: Do most CFS sufferers have cognitive

impairment......memory, etc.?

Hi,

According to tests I have above average intelligence but honestly, I

feel like a senile moron.

I want to know what percentage of CFS sufferers suffer from memory or

learning difficulties. Right now I am taking a course in MS Office so

I can get a part-time job. Class is every day, which I find extremely

difficult. I just come home and crash. But I am alarmed that I can

learn something one day and the next day it's as if I never heard it

before. At times I sit in class and the teacher's lecture just sounds

like noise.....my mind doesn't register any meaning.

I might as well ask what, if anything, has helped with this problem?

My doctor put me on Provigil, but I can still crash in the middle or

at the end of the day.

Happy New Year to everyone!

[Guest guest]

Re: Re: Do most CFS sufferers have cognitive

impairment......memory, etc.?

> Here's where I break down. I have no trouble getting from A to B

intellectually. I have no trouble getting from B to C, or from C to D. But

by the time I get to D, I have completely forgotten A to C and have to

start over.

I have that same problem. When I am intro'd to someone and hear their name,

no matter HOW hard I try, 5 mins later I cannot remember that name. Its so

embarrassing and has gotten a lot worse over the years.

Marcia/Oregon

[Guest guest]

& -

I love your positiveness! I can't speak for anyone else, but

being to sick all the time, I really have to make an effort to keep myself

focusing on the things I can do. I am so glad that you can see in yourself

the contributions you make to your family. Each of us possesses certain

talents or abilities that we can share with others. Even if this is just

using our good days to encourage others. Myself, during my good times, I

try to volunteer 1 hour a day once or twice a week working with elementary

or middle school kids in my local school district. When I'm not up to this,

I try to focus on just greeting my kids as they come home from school,

offering a warm smile (genuine or not) and try to listen as they tell me

about their day.

Learning to dance in the rain (borrowed from anonymous)

Cheriee

_____

From:

[mailto: ] On Behalf Of &

Schmidt

Sent: Tuesday, January 01, 2008 2:25 PM

Subject: Re: Do most CFS sufferers have cognitive

impairment......memory, etc.?

I, too, know I am an intelligent person, but there are days I cannot

articulate a decent sentence and feel like I am a bumbling, stumbling

idiot. My sister loves to tease me and say we are just getting older,

but I know the difference. All the time growing up I knew the

difference and felt like I was not " normal " compared to others who were

quick with words (there are some who are just normally this way

anyway). I felt like my brain was in a fog early on and treasured the

days when I felt fog-free and normal compared to other days. I can

learn new things and do loads of things, but there are still good days

and bad days.

I remember in 2001 when I crashed and burned from overdoing things

(before I knew I had CFS/FMS) and there were few good days. When there

was a good day I would always do so much to catch up...then spend a few

recuperating. In 2003 I was so tired of the bad days I was ready to

either find answers or throw in the towel, and I decided I was too young

at 51 to give up. I started researching CFS/FMS, found Dr.

Dantini on the internet, did another food allergy testing (for which I

still remain positive for a number of things especially wheat), viral

testing and started the Dantini protocol of food allergy diet rotation

and Valtrex. It took six months before I felt good and then I got more

done in that seventh month than I had the previous two years. In 2005 I

discovered Recuperation from Spain and improved even further. I used

three sachets of their product for about nine months before I cut it

back to two sachets with an occasional three if I was busy. I now use

one sachet per day, often forget to take it until my leg muscles start

cramping and get reminded to take it again.

I also added melatonin to sleep at night, Ultra-Cal Night by source

naturals which gave me dreams back, and had to go on prescription

anti-inflammatories which actually helps a lot (Voltaren), along with my

allergy prescription meds (Advair, Nasonex, Allegra) and HRT therapy so

I could sleep at night. I find if I keep to my food allergy diet (wheat

really affects my brain fog and mood), take a lot of vitamins (Natrol,

Twinlab, Source Naturals, Pharmanex brands) my body does much better. I

now have more good days than bad and need less time to recuperate from

stressful days.

I still have trouble traveling for long periods in the car or on the

motorcycle with hubby, find 3-1/2 hours is the limit for one day total,

hate other beds (I have the mattress with the individual coils and a

mattress topper which is heaven to lay on), and don't get proper dietary

needs when traveling. I go to bed around 10:30 PM and sleep until I

awaken (anywhere from 7:30 AM to 10:00 AM). This routine works well for

me I find. I can now work 7 hour shifts at the school cafeteria

standing on a cement floor, walking tons and lifting heavy stuff without

bad repercussions. I can roller skate for two or more hours and feel

good afterwards. I still have muscle pain and stiffness, for which I

get a monthly massage, and see the chiropractor regularly.

Life is tolerable, I am blessed to live near the ocean where the air is

fresh and recirculated daily, and feel good about myself. I have a lot

of hobbies to help with all the family stress of father-in-laws' cancer,

teenage son, hubby with panic anxiety and depression and work burnout.

Just this week I realized I have a lot of talents and am good at a lot

of things, and feel good about myself. For that I am grateful.

Happy new year to all and hope you find things that help you feel better

in 2008.

in La Selva Beach CA

qqtip2001 wrote:

>

> Hi,

>

> According to tests I have above average intelligence but honestly, I

> feel like a senile moron.

>

> I want to know what percentage of CFS sufferers suffer from memory or

> learning difficulties. Right now I am taking a course in MS Office so

> I can get a part-time job. Class is every day, which I find extremely

> difficult. I just come home and crash. But I am alarmed that I can

> learn something one day and the next day it's as if I never heard it

> before. At times I sit in class and the teacher's lecture just sounds

> like noise.....my mind doesn't register any meaning.

>

> I might as well ask what, if anything, has helped with this problem?

> My doctor put me on Provigil, but I can still crash in the middle or

> at the end of the day.

>

> Happy New Year to everyone!

>

[Guest guest]

Have to ask me nicely –

Please, please, appeal the social security decision. Most cases

are won when you get in front of the ajudicator! I know that when you are

struggling with this illness, you don’t feel up to fighting…get someone to

help you! Someone who can fill out the paperwork for you, maybe an attorney

who only collects if you win backpay. This condition can definitely be

disabling…and some income (little though it may be) is better than none.

Thinking good thoughts and wishing you the best.

_____

From:

[mailto: ] On Behalf Of Have to ask me

nicely

Sent: Tuesday, January 01, 2008 4:12 PM

Subject: Re: Do most CFS sufferers have cognitive

impairment......memory, etc.?

I can relate to that. I want to go back to school myself but am

afraid to due the feeling of forgetting everything. I have a hard

time remember when I have a DR.s appt. let alone remembering what I

learned. Somedays I just feel totally lost and don't know what I am

doing, going, or looking for. Brain fog is truely a good name for it,

cause I have had days where it just feels it weighs heavy in my head

like a heavy fog. I tried to take back up smoking to releave some

stress but that made the brain fog worse, not to mention feeling

dizzy and lightheaded most of the day. So I gave that up again.

I have noticed it come on while I am doing important work such

managing my budget, orginizing paperwork, etc. This scares me because

my Dr. won't let me work do due the back, neck, hip and feet pain I

have been having for several months now but now this fog could

posiblily keep me from getting an office job as well. I have been

turned down for disabilty, which I plan to appeal. So I have been

looking for my info on this so I can learn to cope with it.

And for those who have sent their ideas and such, I just want to say

thank you for your ideas. God Bless

>

> Hi,

>

> According to tests I have above average intelligence but honestly,

I

> feel like a senile moron.

>

> I want to know what percentage of CFS sufferers suffer from memory

or

> learning difficulties. Right now I am taking a course in MS Office

so

> I can get a part-time job. Class is every day, which I find

extremely

> difficult. I just come home and crash. But I am alarmed that I can

> learn something one day and the next day it's as if I never heard

it

> before. At times I sit in class and the teacher's lecture just

sounds

> like noise.....my mind doesn't register any meaning.

>

> I might as well ask what, if anything, has helped with this

problem?

> My doctor put me on Provigil, but I can still crash in the middle

or

> at the end of the day.

>

> Happy New Year to everyone!

>

[Guest guest]

Cheriee,

I do plan to appeal. The physical therapy has not done alot of good

and am now trying another alternative. I have not had the time to call

on any lawyers due to other appointments, but will have more time

tomorrow morning. Thanks for the advice.

God Bless

Bonny (have to ask me nicely)

> >

> > Hi,

> >

> > According to tests I have above average intelligence but honestly,

> I

> > feel like a senile moron.

> >

> > I want to know what percentage of CFS sufferers suffer from memory

> or

> > learning difficulties. Right now I am taking a course in MS Office

> so

> > I can get a part-time job. Class is every day, which I find

> extremely

> > difficult. I just come home and crash. But I am alarmed that I can

> > learn something one day and the next day it's as if I never heard

> it

> > before. At times I sit in class and the teacher's lecture just

> sounds

> > like noise.....my mind doesn't register any meaning.

> >

> > I might as well ask what, if anything, has helped with this

> problem?

> > My doctor put me on Provigil, but I can still crash in the middle

> or

> > at the end of the day.

> >

> > Happy New Year to everyone!

> >

>

>

>

>

>

>

[Guest guest]

Thank you for sharing your positive energy also. I love your quote and

will remember to try to dance through life...even in the rain.

Cheriee wrote:

>

> & -

>

> I love your positiveness! I can't speak for anyone else, but

> being to sick all the time, I really have to make an effort to keep myself

> focusing on the things I can do. I am so glad that you can see in yourself

> the contributions you make to your family. Each of us possesses certain

> talents or abilities that we can share with others. Even if this is just

> using our good days to encourage others. Myself, during my good times, I

> try to volunteer 1 hour a day once or twice a week working with elementary

> or middle school kids in my local school district. When I'm not up to

> this,

> I try to focus on just greeting my kids as they come home from school,

> offering a warm smile (genuine or not) and try to listen as they tell me

> about their day.

>

> Learning to dance in the rain (borrowed from anonymous)

>

> Cheriee

>

>

>

[Guest guest]

I can so relate to this. I once had a very high IQ. People expect

things of me that I am no longer capable of, and there are multiple

stresses that creates. I was always more verbal than mathematically

wired, so it's no surprise the math/technology things went first. I

know enough about brain development to know we lose what we don't

use, and the longer I avoid what is hard for me the less able I am to

do it. But I'm starting to lose words too. It's not Alzheimer's - I've

seen that. This is something else. There is general the brain fog,

but sometimes I also have trouble in specific areas. it's almost like

watching yourself become learning disabled - in fact I AM becoming

learning disabled.

I got a wood lathe for Christmas (I hand carve and dh thought it would

be easier on my body)I took a lathing class two weeks ago, and even

though I had a couple of moments, I did as well as anyone in the class

( we were all at remarkably similar levels going in, but so far as I

knew no-one else has medical issues).

In looking back at why that went so well, a few things struck me:

1: I had a terrific teacher. She was the perfect match for me - for

where I am now. The other students were great too. The ONLY stress in

the class came form the machine I was trying to master. I was able to

spend the day feeling well and normal.

2: I had to focus 100% because lathes are dangerous. Even better, I

GOT to focus 100% because I had no other interference. Much as I try

to reduce stress in my life, there are a lot of demands on me, because

I still have a family, pets, and a house. I multi task in my sleep

it's no way to live.

It has occurred to me that one reason we may all be getting sick is

that we're not living like our parents did, where people once had a 5

minute commute and who got home at the same early hour every evening.

We had one car to keep running, one phone that always worked, without

dropping calls, or advertising to us and not letting us use it when we

try to report a fire.

The cell phone is the least of our technological problems. We have

become dependent on a host of 'conveniences' that are unreliable at

best, and allow people to steal our identities at worst.

We no longer have communities in most cases, nor does an elder help us

get our start in adulthood. We have children later, so instead of

having help while our children are young, we juggle elder care with

caring for our young. Doctors no longer make house calls, and in fact,

spend so little time with us that they never learn our name, let alone

the pattern of our malady. A cure is out of the question - the medical

help we get for one disorder only seems to spawn more. I read on this

list that one must expect to try 150 different things before finding

what works. Multiply that by each member of the family, because these

things do run in families, and it's far better than a full time job.

And we wonder why we're losing brain cells?

L

>

> Hi,

>

> According to tests I have above average intelligence but honestly, I

> feel like a senile moron.

>

> I want to know what percentage of CFS sufferers suffer from memory or

> learning difficulties. Right now I am taking a course in MS Office so

> I can get a part-time job. Class is every day, which I find extremely

> difficult. I just come home and crash. But I am alarmed that I can

> learn something one day and the next day it's as if I never heard it

> before. At times I sit in class and the teacher's lecture just sounds

> like noise.....my mind doesn't register any meaning.

>

> I might as well ask what, if anything, has helped with this problem?

> My doctor put me on Provigil, but I can still crash in the middle or

> at the end of the day.

>

> Happy New Year to everyone!

>

[Guest guest]

Concentration problems are my main symptom, right now im doing the

simplified yasko protocol and its definately helping. I have setbacks,

but my concentration problems are definatly improving. I used to not

be able to drive, but i can now. Im doing alot more.

>

> Hi Marcia and L,

>

> I have this problem too. I worry that it will get to the point that I

> will not be able to manage my own affairs.

>

> When I first became ill 16+ years ago my cognitive function got so bad

> that I couldn't comprehend a paragraph of a newspaper article. I would

> start to speak and forget what I was talking about before I could

> finish a sentence.

>

> Magnesium injections helped some at first but I stopped getting any

> additional improvement after my magnesium deficiency was eliminated, I

> think.

>

> Tom

>

[Guest guest]

Tomcy6 wrote:

> I have this problem too. I worry that it will get to the point that I

> will not be able to manage my own affairs.

>

> When I first became ill 16+ years ago my cognitive function got so bad

> that I couldn't comprehend a paragraph of a newspaper article. I would

> start to speak and forget what I was talking about before I could

> finish a sentence.

>

Funny you should mention this!

I've had this damned disease for about 27 years now (various different

dx over the years as they started figuring out what was going on...).

In the beginning, nobody knew or talked about it having a cognitive

impairment component. I just thought I was losing my mind :-P

I used the kind of material I could read and understand as a yardstick

for gauging how bad the CFIDS was getting. Before becoming ill, I had

no problem reading and comprehending scientific articles in

peer-reviewed professional journals, in the fields of computer science

and biology. I also read very avant-garde novels with many characters

and subplots in a totally nonlinear timeline.

Then I got to where I could barely understand the abstracts of the

articles, and could only read straightforward novels.

Then I got to where I couldn't handle technical journals at all, but

could still mostly deal with Scientific American.

Then it went down to Science News, and novels became iffy at best -

switched to short stories and magazines.

The day I really got scared was when I realized I was re-reading a

paragraph of Dear Abby (written at a 4th grade level, supposedly), and I

couldn't comprehend it. I would literally get to the end of the

paragraph and not be able to integrate the meanings of the sentences in

the paragraph. At this point, I finally gave in and applied for

disability (and got it), because I had already tried cutting back my

hours and switching to a less demanding job (from firmware engineer to

technical writer/editor), and was unable to do even that.

Since I have always made my living using my brain, this scared the s**t

out of me! What helped me was Ritalin (yes, I know, some people

demonize it, but it really helped me), Armour Thyroid, doing NAET and

ferreting out food sensitivities (many, not just gluten), and eventually

getting on CPAP. Plus adding large amounts of CoQ10, L-carnitine, and

LEF's Mitochondrial Energizer formula.

(Since I have a hard time keeping up with the traffic in this group

(tend to delete 700 messages at a time and then try to keep up for a

while :-[ ), if you want to dialog with me specifically on this, please

put " " into the subject line. Thanks!)

--

el (andreafrankel at sbcglobal dot net)

" wake now! Discover that YOU are the song that the morning brings... "