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Subject Re: Do most CFS sufferers have cognitive impairment......memory, etc

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Danny Broughton <dbroughton@...> wrote:

>

> I think our cognitive impairment feels worse than it actually is.

I just completed a full time MBA at a good business school and came

1st in class with distinction. Some days I felt overwhelmed, easily

distracted and lack the ability to write good flowing assignments

without considerable editing however things worked out well and my

confidence in my intellectual abilities has been restored. They are

all still in there somewhere, we just need to work harder to get

through the white noise of ME/CFS

>

Janice Kennedy from Truckee High School was quite literally

expressing the situation.

People lost their jobs because they couldn't perform tasks they knew

like the back of their hand.

Everyone one of us got lost at some point, trying to find out way

home.

Really scary. As all the " Good doctors " said over and over, they had

never seen anything like it before.

-

Station: Cable News Network (CNN)

Date: Oktober 24, 1999

Programme: CNN & Time

URL: http://cnn.com/TRANSCRIPTS/impc.html

(home page)

http://cnn.com/CNNPromos/cnntime

(home page 2)

http://cnn.com/TRANSCRIPTS/9910/24/impc.00.html (text)

SICK AND TIRED

--------------

ANNOUNCER: CNN & TIME. Tonight, " Sick and Tired. " It's been called

the yuppie

flu, but it's been anything but a passing fad. It is a major public

outcry.

We all have days when it feels like we just can't roll out of bed.

We're

tired, listless, completely drained. But imagine feeling that way and

worse

day in and day out for weeks, months, and even years.

JEFF GREENFIELD, HOST: We're talking about chronic fatigue syndrome,

the

mysterious, debilitating illness that first showed up in the mid-

1980s. And if

you thought that this yuppie flu was the invention of hypochondriacs

or had

gone the way of Duran Duran or somehow had been cured, consider this.

In the

United States alone right now, hundreds of thousands of people may be

struggling with CFS.

Here's Daryn Kagan.

(BEGIN VIDEOTAPE)

DARYN KAGAN, CNN CORRESPONDENT (voice-over): As the 1999 Women's

World Cup

came down to the wire in penalty kicks, another drama was taking

place behind

the scenes.

MICHELLE AKERS, U.S. WOMEN'S SOCCER TEAM: I'm graying out, and I

can't hear,

and my body's just clenched.

SPORTS ANNOUNCER: Look at Akers. She leads by example.

KAGAN: Akers played 90 minutes in blistering heat, until her

body

gave out.

SPORTS ANNOUNCER: All eyes are on Akers.

AKERS: So they put me on the table and then started trying to get the

IVs in.

KAGAN: Akers' doctors, coaches, and teammates know her symptoms are

real, but

some people think the disease she's recovering from, chronic fatigue

syndrome,

is not.

(on camera): When you say worst, what does worst feel like for people

who

don't know what that feels like?

AKERS: It's like just feeling totally empty on the inside. It's like -

-

there's no reserve, no energy. It's like a black hole in the very

depths of

your soul.

(voice-over): For years, CFS has been dismissed by many in the

general public,

the medical profession, even experts at the Federal Centers for

Disease

Control and Prevention. Fifteen years ago, a mysterious illness swept

through

the Alpine resorts and towns near Lake Tahoe. Incline Village,

Nevada, was

ground zero.

DR. DAN PETERSON, PHYSICIAN: The first ones were isolated cases. A

marathon

runner in town who couldn't run any longer.

KAGAN: Dr. Dan is a local physician. He saw the first cases.

PETERSON: Then we started seeing the clustering with the girls' high

school

basketball team where the entire team became ill -- extremely ill.

KAGAN: At Tahoe-Truckee High School, dozens of students came down with

symptoms resembling mononucleosis. So did a third of the teachers.

JERRY KENNEDY: You're not tired. You're -- it's like the blood's

drained out

of you.

KAGAN: Like Jerry Kennedy who taught auto mechanics and drafting and

his wife

Janice (ph) who taught English.

JANICE KENNEDY, FORMER HIGH SCHOOL TEACHER: It's like having bricks

piled on

you. It's as though you're fighting to move at all.

JERRY KENNEDY: It's the worst feeling I've ever had in my life. I

can't

compare it to anything else that's ever happened to me.

KAGAN: The number of cases multiplied during the summer of 1985.

PETERSON: That's when I first thought, well, there's some new

contagious

disease, you know, I mean, there's something in the water, some

Typhoid

had come into the school system and affected the kids and the

teachers.

KAGAN: Besides fatigue, most patients developed a bizarre mental

fogginess.

JERRY KENNEDY: You feel dumb because you can't remember things. You

forget

people's -- you don't even comprehend the names. You lose it.

JANICE KENNEDY: As an English teacher, I remember one horrible moment

when I

asked myself, " What is a subordinate clause? " I could not remember

what a

subordinate clause was.

KAGAN: Eventually, more than 250 people living around Lake Tahoe

seemed to

have the illness. For months, Dr. couldn't persuade anyone to

investigate. Finally, the CDC agreed to send a two-man team.

JANICE KENNEDY: They didn't seem to feel that there was an epidemic,

and we

knew there was. It might have been small, but it definitely existed.

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I felt as STUPID as they come when i was at my worst?- I Am FINALLY TURNING THE

corner and my cognitive fuinction is coming back online!!!

Regards

CS

Subject Re: Do most CFS sufferers have cognitive

impairment......memory, etc

Danny Broughton <dbroughton@...> wrote:

>

> I think our cognitive impairment feels worse than it actually is.

I just completed a full time MBA at a good business school and came

1st in class with distinction. Some days I felt overwhelmed, easily

distracted and lack the ability to write good flowing assignments

without considerable editing however things worked out well and my

confidence in my intellectual abilities has been restored. They are

all still in there somewhere, we just need to work harder to get

through the white noise of ME/CFS

>

Janice Kennedy from Truckee High School was quite literally

expressing the situation.

People lost their jobs because they couldn't perform tasks they knew

like the back of their hand.

Everyone one of us got lost at some point, trying to find out way

home.

Really scary. As all the " Good doctors " said over and over, they had

never seen anything like it before.

-

Station: Cable News Network (CNN)

Date: Oktober 24, 1999

Programme: CNN & Time

URL: http://cnn.com/TRANSCRIPTS/impc.html

(home page)

http://cnn.com/CNNPromos/cnntime

(home page 2)

http://cnn.com/TRANSCRIPTS/9910/24/impc.00.html (text)

SICK AND TIRED

--------------

ANNOUNCER: CNN & TIME. Tonight, " Sick and Tired. " It's been called

the yuppie

flu, but it's been anything but a passing fad. It is a major public

outcry.

We all have days when it feels like we just can't roll out of bed.

We're

tired, listless, completely drained. But imagine feeling that way and

worse

day in and day out for weeks, months, and even years.

JEFF GREENFIELD, HOST: We're talking about chronic fatigue syndrome,

the

mysterious, debilitating illness that first showed up in the mid-

1980s. And if

you thought that this yuppie flu was the invention of hypochondriacs

or had

gone the way of Duran Duran or somehow had been cured, consider this.

In the

United States alone right now, hundreds of thousands of people may be

struggling with CFS.

Here's Daryn Kagan.

(BEGIN VIDEOTAPE)

DARYN KAGAN, CNN CORRESPONDENT (voice-over): As the 1999 Women's

World Cup

came down to the wire in penalty kicks, another drama was taking

place behind

the scenes.

MICHELLE AKERS, U.S. WOMEN'S SOCCER TEAM: I'm graying out, and I

can't hear,

and my body's just clenched.

SPORTS ANNOUNCER: Look at Akers. She leads by example.

KAGAN: Akers played 90 minutes in blistering heat, until her

body

gave out.

SPORTS ANNOUNCER: All eyes are on Akers.

AKERS: So they put me on the table and then started trying to get the

IVs in.

KAGAN: Akers' doctors, coaches, and teammates know her symptoms are

real, but

some people think the disease she's recovering from, chronic fatigue

syndrome,

is not.

(on camera): When you say worst, what does worst feel like for people

who

don't know what that feels like?

AKERS: It's like just feeling totally empty on the inside. It's like -

-

there's no reserve, no energy. It's like a black hole in the very

depths of

your soul.

(voice-over): For years, CFS has been dismissed by many in the

general public,

the medical profession, even experts at the Federal Centers for

Disease

Control and Prevention. Fifteen years ago, a mysterious illness swept

through

the Alpine resorts and towns near Lake Tahoe. Incline Village,

Nevada, was

ground zero.

DR. DAN PETERSON, PHYSICIAN: The first ones were isolated cases. A

marathon

runner in town who couldn't run any longer.

KAGAN: Dr. Dan is a local physician. He saw the first cases.

PETERSON: Then we started seeing the clustering with the girls' high

school

basketball team where the entire team became ill -- extremely ill.

KAGAN: At Tahoe-Truckee High School, dozens of students came down with

symptoms resembling mononucleosis. So did a third of the teachers.

JERRY KENNEDY: You're not tired. You're -- it's like the blood's

drained out

of you.

KAGAN: Like Jerry Kennedy who taught auto mechanics and drafting and

his wife

Janice (ph) who taught English.

JANICE KENNEDY, FORMER HIGH SCHOOL TEACHER: It's like having bricks

piled on

you. It's as though you're fighting to move at all.

JERRY KENNEDY: It's the worst feeling I've ever had in my life. I

can't

compare it to anything else that's ever happened to me.

KAGAN: The number of cases multiplied during the summer of 1985.

PETERSON: That's when I first thought, well, there's some new

contagious

disease, you know, I mean, there's something in the water, some

Typhoid

had come into the school system and affected the kids and the

teachers.

KAGAN: Besides fatigue, most patients developed a bizarre mental

fogginess.

JERRY KENNEDY: You feel dumb because you can't remember things. You

forget

people's -- you don't even comprehend the names. You lose it.

JANICE KENNEDY: As an English teacher, I remember one horrible moment

when I

asked myself, " What is a subordinate clause? " I could not remember

what a

subordinate clause was.

KAGAN: Eventually, more than 250 people living around Lake Tahoe

seemed to

have the illness. For months, Dr. couldn't persuade anyone to

investigate. Finally, the CDC agreed to send a two-man team.

JANICE KENNEDY: They didn't seem to feel that there was an epidemic,

and we

knew there was. It might have been small, but it definitely existed.

________________________________________________________________________

AOL's new homepage has launched. Take a tour at http://info.aol.co.uk/homepage/

now.

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