what is the level of disability here?

January 9, 2008

I'd like to know what the level of disability is here.

Are any many or most people ehre unable to work?

Or only those with long term infections?

And the children are they abel to attend school, or are they in

special ed classes , home tutored? tec.

thanks, amy

January 10, 2008

Hi Amy,

You might want to consider making some kind of poll.

I am disabled and unable to work. I worked, with great difficulty,

during the first ten years of this, but after that I was unable to do

so. Now I have been disabled for eleven years.

amydent9 wrote:

>

> I'd like to know what the level of disability is here.

>

> Are any many or most people ehre unable to work?

>

> Or only those with long term infections?

>

> And the children are they abel to attend school, or are they in

> special ed classes , home tutored? tec.

>

> thanks, amy

>

January 10, 2008

Hi there!

Myself, I've been disabled for at least 10 years. I tried to work

part-time about 5-6 years ago, but wasn't able to manage even that

much. These days I have enough energy per day to do a load or two of

laundry, OR go out on an errand, OR set up my pills & supplements for

the week (takes about 2 hours), OR fix a regular supper for me and my

partner. Only one of the above or similar expenditure of energy.

Sometimes having a shower and getting myself fed are about it for my

day's accomplishments. I moved about a year ago in order to be where I

could get some help with everyday tasks, because it became clear that

I wasn't well enough to handle everything on my own.

Although the lack of physical energy is the most obvious symptom, my

cognitive problems are by far the most limiting as far as living a

normal life goes. The lack of focus and executive function isn't

obvious at first glance, but interferes with almost everything I'd

like to do.

I still haven't given up hope of getting better, however! I'd say that

goal is my primary " job " these days.

Best wishes,

Marcia on

in Salem, Massachusetts

>

> Hi Amy,

>

> You might want to consider making some kind of poll.

January 10, 2008

Hi I caught a virus in 1996 but ploughed on with work and study, running, gym

junkie, you name it. A real superwoman, but now a rather tired one who kept

having dizzy spells. I took some holidays to rest but returned to work feeling

no better. I used to sneak home for a sleep each day or else I'd be a dribbling

mess by afternoon. Then my employer built a new office - I had the big crash in

1997 when I walked in there, and had to quit my job, you name it. No more

superwoman. More like flatwoman. I was diagnosed with CFS/MCS hospitalized for a

while, but decided it was safer at home, away from their chemicals.

We also moved house to the country to get me away from the city fumes. I began

to do better, but I was also now grieving the loss of my son, and the doctor

said it wasn't worth treating me, I would never get better. Talk about put a

curse on a woman. I improved a little and felt determined that if I could help

others who were bereaved it'd take my mind off being sick and get me a few

brownie points towards wellness. Well I struggled on for six years, very part

time, working my own hours from home,with good people covering my back, until I

couldn't even get out of bed. So I quit, felt a little better, then hubby

brought home several viruses, and down I went, harder than ever, where I've

remained, mostly horizontal, but using naturopathic and holistic treatment to