RE: beofere and aftere SPECT scan images

[Guest guest]

Amy, thank you for posting the SPEC scan images and for your kind words about my

yesterday's Osler's Web post. Wow, what an improvement of her lyme disease

brain hypoperfusion! Has anyone used ceftriaxone for CFS-caused brain

hypoperfusion? Like you, I am now also having trouble reading due to CFS

cognitive difficulties so have not been keeping up very well in the past 2 or 3

years.

One of these days, I am going to get a SPECT brain scan, if I can talk a doctor

into prescribing one. I am starting with a new internal medicine MD soon, and I

will try to educate him about CFS, as usual. Due to my wife Kathy's job

promotions, we move about every 4 years, so I have to find a new doc and educate

him/her about CFS, Er, encourage them to learn more about my disease would be a

more MD-ego correct description of the process. I handle them with kid gloves

by being a humble and very appreciative patient, if they are receptive.

Otherwise, it is goodbye doc... I sure had a great doc in our last location,

Teay's Valley, West Virginia, but am now 300 miles away from him, which is too

far for me to travel.

Thank you for telling us that many PWCs are now too cognitive-disabled to read

Osler's Web. I certainly agree and did not think about that in my post

yesterday. Would a " Talking Book " CD audio version be more understandable? I

listened to one of these recently, about the early days of the American

Revolution and was able to hang in with it for its entire two hours (which is

fairly short for a talking book). I don't think I could have read its written

version for more than 20 minutes before severe brain fog set in. Your, and

anyone else's opinion on this will be appreciated. My brother Tom is a great

and soothing reader, with a very attention-keeping voice and perhaps he would

volunteer for this project. It would be a biggie... Tom lives in KY, our native

state, and has an educated Southern accent, about like President . Very

deep and pleasant. At least to me and all his many fans.

Actually, I bet my present very good Pittsburgh MD Cardiologist would prescribe

a brain SPECT scan. He is interested in CFS and the brain does control the

heart, so he could probably get my insurance to pay for it. With their

pre-approval, of course. I had a very severe heart attack in spring 2006, with

two stents installed, and my heart is doing ok, as far as we know. But my

entire brain needs to be scanned, including the cardiovascular control areas. I

used to teach this stuff at West Virginia University Medical School, in the

Physiology Department. Cardiovascular Physiology and Central Nervous System.

Gee, I think I had a little strokelike TIA the other day and my blood pressure

went way down (I always take it about 5 times a day) and I felt very faint...

On we go, playing the system as best we can to survive. At least what little

areas of the medical care system we can persuade to pay us some attention...

Mort PE, BSEE, MS (Physiology) Near Pittsburgh, now age 67, CFS since 1994

beofere and aftere SPECT scan images

here is someone who greatly improved SPECT and her brain issues.

The scan here is nearly identical to mine. I have cfs diagnois, and

from a scan that looked like this I was diagnoses wiht toxic solvent

exposure.

The woman in this scan has lyme disease. I recently ws diagnosed wiht

lyme disease, which could ahve casued my scan result rather thatn any

other diagnoisis.

SPECT brain scan

http://i.cmpnet.com/CME/pt/content/2007/0712/figure_bransfield.gif

treated wiht ceftriaxone (I'm not sure if this was intervenous?)

amy