Cort: Re: Amygdala Retraining

[Guest guest]

Cort wrote:

" After reading the literature extensively I dont where

you get the idea that Wessely's ideas are driving the

research. Thats just not the case. There is a

substantial amount of research focused on CBT and

graded exercise but most of the research into CFS is

focused on physiology. Check out Pubmed. Its even true

in the UK with the difference being the govt only

supports behavioral research.

That research is showing the CBT and other therapies

for the most part present modest gains. It should lose

strength of its own accord - that is after all how

science works. But dont throw the baby out with the

bathwater; it does show modest gains for many CFS

patients.

Until you try behavioral therapies and find they dont

work for you then you cant say what kind of illness

you have relative to what I have. I doubt that you've

tried. Theres also abundant anecdotal evidence that

meditation ,relaxation exercises etc. are helpful.

I dont think my opinion has much to do with the course

that CFS research takes! "

Khaly's reply - You say you doubt that I have even tried? Wrong. You say I

can't compare my illness to yours? Yes I can, based on what you say works for

you versus what I know doesn't work for me. You say you have read the

literature? What literature? You show me yours and I'll show you mine.

Wessely's participation in this debacle is very well documented.

I am not discounting you. I am saying you are not experiencing what I am

experiencing. And, I am saying that you are discounting me. When my

physiological illness and your psychological issues get lumped under the same

heading, I am forced to jump through your behavioral sciences hoops.

The baby isn't even in the bathwater. The baby is still screaming to be

picked up off the floor.

---------------------------------

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[Guest guest]

I didnt say you couldnt compare your illness to mine.

Compare ahead. We're a very diverse group. Based on

your comments I assumed you had a gut level response

to behavioral therapies that did not include trying

them. If I;n wrong I apologize.

Theres only one literature I'm referring to and thats

the scientific literature. I invite you to go to

Pubmed.com and punch in CFS and see what comes up. You

may be surprised.

I'm clearly not experiencing what you're experiencing

- I'll give you that. Jump through whatever you hoops

you wish and stay away from the other ones.

--- Khaly Castle <khalyal@...> wrote:

> Cort wrote:

> " After reading the literature extensively I dont

> where

> you get the idea that Wessely's ideas are driving

> the

> research. Thats just not the case. There is a

> substantial amount of research focused on CBT and

> graded exercise but most of the research into CFS is

> focused on physiology. Check out Pubmed. Its even

> true

> in the UK with the difference being the govt only

> supports behavioral research.

>

> That research is showing the CBT and other therapies

> for the most part present modest gains. It should

> lose

> strength of its own accord - that is after all how

> science works. But dont throw the baby out with the

> bathwater; it does show modest gains for many CFS

> patients.

>

> Until you try behavioral therapies and find they

> dont

> work for you then you cant say what kind of illness

> you have relative to what I have. I doubt that

> you've

> tried. Theres also abundant anecdotal evidence that

> meditation ,relaxation exercises etc. are helpful.

>

> I dont think my opinion has much to do with the

> course

> that CFS research takes! "

>

> Khaly's reply - You say you doubt that I have even

> tried? Wrong. You say I can't compare my illness

> to yours? Yes I can, based on what you say works

> for you versus what I know doesn't work for me. You

> say you have read the literature? What literature?

> You show me yours and I'll show you mine. Wessely's

> participation in this debacle is very well

> documented.

>

> I am not discounting you. I am saying you are not

> experiencing what I am experiencing. And, I am

> saying that you are discounting me. When my

> physiological illness and your psychological issues

> get lumped under the same heading, I am forced to

> jump through your behavioral sciences hoops.

>

> The baby isn't even in the bathwater. The baby is

> still screaming to be picked up off the floor.

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them

> fast with Search.

>

> [Non-text portions of this message have been

> removed]

>

>

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