Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Edgar, You should get a good doctor and also, ask the people over on the Aspergillus lists for advice. They have a lot of experience with mycoses, which are much more common than many people think. Its my understanding that the maintream of the medical profession has also (finally) realized that many sinus infections are caused by fungi and also " Methicillin-resistant Staphylococcus aureus " which is something a doctor should look for. You should look at the book Mold Warriors " which is written by Richie Shoemaker, who is a doctor in land (USA) who has a lot of experience treating people with various forms of mold-illnesses. He also has several websites. The most recent one is at http://biotoxin.info I don't know if he is using " Mucomyst " (n-acetylcysteine in a dilute aerosolized mist) but from what I have heard its a possibile thing you might want to ask your doctor about? I don't know much more than the name. (I do take regular, oral, in pills NAC from time to time - when my lungs are bothering me, it helps me breathe better - do some reading on it, your mileage may vary, etc....) Rinsing the sinuses with a spray made of plain saline (made with distilled water and non-iodized salt) is also helpful. (Thats what I do when mold in the air means my sinuses start bothering me.) I hope that this is all helpful info! I don't have aspergillosis, as far as I know, I do get sinus issues from mold. If its bad mold they get really bad. On Jan 11, 2008 4:31 PM, Edgar Owen <edgarowen@...> wrote: > > > > > > > I have an apparent mold infection in my lungs and sinuses. Does > anyone know anything one can inhale that kills mold? I'm having a lot > of trouble breathing, pain in lungs and deep cough. I'm sure its mold > as it developed after being in a basement with mold. > > Thanks, > Edgar > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Edgar Owen <edgarowen@...> wrote: > > I have an apparent mold infection in my lungs and sinuses. Does > anyone know anything one can inhale that kills mold? I'm having a lot > of trouble breathing, pain in lungs and deep cough. I'm sure its mold > as it developed after being in a basement with mold. > > Thanks, > Edgar > If there is an easy way out of this, I haven't found it. Nor have I seen compelling evidence that others are spraying this, or taking that, and experiencing miraculous recoveries. The people that I have personally seen are fighting for their very lives - sleeping in their cars - going to the desert - living in a tent. Without " getting clear " of these mold toxins, the slightest trace seems to keep the immune system interminably paralyzed. I have seen people surround themselves with plastic rooms and six Hepa Filters, and not gain a fraction of the recovery that one receives by getting to a pristine location out in the woods, the coast, or the desert. Since I like camping anyway, that is what I do. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 I am perscribed a compounded inhalation of ketoconizal and gentimycin. Please don't mind the spelling. Gail veSimply wrote: > > Edgar, > > You should get a good doctor and also, ask the people over on the > Aspergillus lists for advice. They have a lot of experience with > mycoses, which are much more common than many people think. > > Its my understanding that the maintream of the medical profession has > also (finally) realized that many sinus infections are caused by fungi > and also " Methicillin-resistant Staphylococcus aureus " which is > something a doctor should look for. > > You should look at the book Mold Warriors " which is written by Richie > Shoemaker, who is a doctor in land (USA) who has a lot of > experience treating people with various forms of mold-illnesses. He > also has several websites. > > The most recent one is at > > http://biotoxin.info <http://biotoxin.info> > > I don't know if he is using " Mucomyst " (n-acetylcysteine in a dilute > aerosolized mist) but from what I have heard its a possibile thing you > might want to ask your doctor about? I don't know much more than the > name. (I do take regular, oral, in pills NAC from time to time - when > my lungs are bothering me, it helps me breathe better - do some > reading on it, your mileage may vary, etc....) > > Rinsing the sinuses with a spray made of plain saline (made with > distilled water and non-iodized salt) is also helpful. (Thats what I > do when mold in the air means my sinuses start bothering me.) > > I hope that this is all helpful info! I don't have aspergillosis, as > far as I know, I do get sinus issues from mold. > If its bad mold they get really bad. > > On Jan 11, 2008 4:31 PM, Edgar Owen <edgarowen@... > <mailto:edgarowen%40att.net>> wrote: > > > > > > > > > > > > > > I have an apparent mold infection in my lungs and sinuses. Does > > anyone know anything one can inhale that kills mold? I'm having a lot > > of trouble breathing, pain in lungs and deep cough. I'm sure its mold > > as it developed after being in a basement with mold. > > > > Thanks, > > Edgar > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Gail, Thanks for the info. Were you diagnosed for mold infection in lungs, if not what? Did this med work for you? Thanks, Edgar On Jan 12, 2008, at 5:06 AM, Gail Ilse-Mayberry wrote: > I am perscribed a compounded inhalation of ketoconizal and gentimycin. > Please don't mind the spelling. > Gail > > veSimply wrote: > > > > Edgar, > > > > You should get a good doctor and also, ask the people over on the > > Aspergillus lists for advice. They have a lot of experience with > > mycoses, which are much more common than many people think. > > > > Its my understanding that the maintream of the medical profession > has > > also (finally) realized that many sinus infections are caused by > fungi > > and also " Methicillin-resistant Staphylococcus aureus " which is > > something a doctor should look for. > > > > You should look at the book Mold Warriors " which is written by > Richie > > Shoemaker, who is a doctor in land (USA) who has a lot of > > experience treating people with various forms of mold-illnesses. He > > also has several websites. > > > > The most recent one is at > > > > http://biotoxin.info <http://biotoxin.info> > > > > I don't know if he is using " Mucomyst " (n-acetylcysteine in a dilute > > aerosolized mist) but from what I have heard its a possibile > thing you > > might want to ask your doctor about? I don't know much more than the > > name. (I do take regular, oral, in pills NAC from time to time - > when > > my lungs are bothering me, it helps me breathe better - do some > > reading on it, your mileage may vary, etc....) > > > > Rinsing the sinuses with a spray made of plain saline (made with > > distilled water and non-iodized salt) is also helpful. (Thats what I > > do when mold in the air means my sinuses start bothering me.) > > > > I hope that this is all helpful info! I don't have aspergillosis, as > > far as I know, I do get sinus issues from mold. > > If its bad mold they get really bad. > > > > On Jan 11, 2008 4:31 PM, Edgar Owen <edgarowen@... > > <mailto:edgarowen%40att.net>> wrote: > > > > > > > > > > > > > > > > > > > > > I have an apparent mold infection in my lungs and sinuses. Does > > > anyone know anything one can inhale that kills mold? I'm having > a lot > > > of trouble breathing, pain in lungs and deep cough. I'm sure > its mold > > > as it developed after being in a basement with mold. > > > > > > Thanks, > > > Edgar > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Getting your glutathione levels up by various means seems to be extremely important for recovery from any of these diseases. NAC, whey protein, antioxidants, etc. All are helpful But if you are the way you say you are first you should see a good pulmonologist. Also, get away from mold. That is crucially important. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 LiveSimply <quackadillian@...> wrote: > > Getting your glutathione levels up by various means seems to be > extremely important for recovery from any of these diseases. > > NAC, whey protein, antioxidants, etc. All are helpful But if you are > the way you say you are first you should see a good pulmonologist. > > Also, get away from mold. That is crucially important. > Traditionally, as one watches a mold sufferer gradually reorganize their emphasis on priorities - one will observe that last statement will be moved to the very top of the list. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 I had 5 sinus surgeries in 19years. Since none of them ever even came close to a cure I waited a long time between each one. In the meantime I suffered severe asthma. In the summer of 96 I had surgery again. This time I insisted (finally learned what I needed to do) on a culture. The culture grew several bacteria including psuedomonis. It also grew several fungus including aspergillus. I was seeing a progressing CFS doc at the time so I told him about this compound that I had used. He perscribed it for several months after the surgery and I can get a perscription anytime I have an infectious flare. I believe it was the combo of surgery, oral antibiotics and antifungals and the inhaled compound that made the difference. I turned a corner. I no longer have asthma after 20 years. I still am not 100% and still have CFS but I am so much better. I still crave sugar and feel better without it so I probably still have the fungus... but at least I am not being treated like it is all in the head. Edgar Owen wrote: > > Gail, > > Thanks for the info. Were you diagnosed for mold infection in lungs, > if not what? Did this med work for you? > > Thanks, > Edgar > > On Jan 12, 2008, at 5:06 AM, Gail Ilse-Mayberry wrote: > > > I am perscribed a compounded inhalation of ketoconizal and gentimycin. > > Please don't mind the spelling. > > Gail > > > > veSimply wrote: > > > > > > Edgar, > > > > > > You should get a good doctor and also, ask the people over on the > > > Aspergillus lists for advice. They have a lot of experience with > > > mycoses, which are much more common than many people think. > > > > > > Its my understanding that the maintream of the medical profession > > has > > > also (finally) realized that many sinus infections are caused by > > fungi > > > and also " Methicillin-resistant Staphylococcus aureus " which is > > > something a doctor should look for. > > > > > > You should look at the book Mold Warriors " which is written by > > Richie > > > Shoemaker, who is a doctor in land (USA) who has a lot of > > > experience treating people with various forms of mold-illnesses. He > > > also has several websites. > > > > > > The most recent one is at > > > > > > http://biotoxin.info <http://biotoxin.info> <http://biotoxin.info > <http://biotoxin.info>> > > > > > > I don't know if he is using " Mucomyst " (n-acetylcysteine in a dilute > > > aerosolized mist) but from what I have heard its a possibile > > thing you > > > might want to ask your doctor about? I don't know much more than the > > > name. (I do take regular, oral, in pills NAC from time to time - > > when > > > my lungs are bothering me, it helps me breathe better - do some > > > reading on it, your mileage may vary, etc....) > > > > > > Rinsing the sinuses with a spray made of plain saline (made with > > > distilled water and non-iodized salt) is also helpful. (Thats what I > > > do when mold in the air means my sinuses start bothering me.) > > > > > > I hope that this is all helpful info! I don't have aspergillosis, as > > > far as I know, I do get sinus issues from mold. > > > If its bad mold they get really bad. > > > > > > On Jan 11, 2008 4:31 PM, Edgar Owen <edgarowen@... > <mailto:edgarowen%40att.net> > > > <mailto:edgarowen%40att.net>> wrote: > > > > > > > > > > > > > > > > > > > > > > > > > > > > I have an apparent mold infection in my lungs and sinuses. Does > > > > anyone know anything one can inhale that kills mold? I'm having > > a lot > > > > of trouble breathing, pain in lungs and deep cough. I'm sure > > its mold > > > > as it developed after being in a basement with mold. > > > > > > > > Thanks, > > > > Edgar > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 This is what I saw repeatedly in mold victims. They would have these surgeries to address the existing problem and yet doctors would make no serious effort to find out why these fungal infections are getting out of control in so many people. I discussed this with friends of Mark Tatum, " The Man Without A Face " . He sufferered from an inexplicable Mucormycosis infection which created so much damage that he literally had no face left. I suggested Stachy exposure as a source of immunosuppression. They had Dr Lipsey test the house and this appeared to be the case. Mark Tatum contacted me and said that he had located other similar cases to his, and in each case, the doctors were glad to do any amounts of life-saving surgery - but never try to get to the bottom of why this was happening. He was furious at this strange " disconnect " in doctors attitudes. And after all these years of having doctors and researchers literally turn and run when I tried to tell them about this " mycotoxin connection " , I can't help but feel that, as a profession, they have utterly failed their scientific responsibility to employ their specialized knowledge that leads the public to expect that they would be the first to detect and warn us, if something went wrong. We were misled into a false sense of security by trusting that our " intelligentsia " would act decisively in the face of emerging anomalies. - Gail Ilse-Mayberry <gmilsem@...> wrote: > > I had 5 sinus surgeries in 19years. Since none of them ever even came close to a cure I waited a long time between each one. > In the meantime I suffered severe asthma. In the summer of 96 I had > surgery again. This time I insisted (finally learned what I needed to > do) on a culture. > The culture grew several bacteria including psuedomonis. It also grew > several fungus including aspergillus. I was seeing a progressing CFS doc > at the time so I told him about this compound that I had used. He > perscribed it for several months after the surgery and I can get a > perscription anytime I have an infectious flare. I believe it was the > combo of surgery, oral antibiotics and antifungals and the inhaled > compound that made the difference. I turned a corner. I no longer have > asthma after 20 years. I still am not 100% and still have CFS but I am > so much better. I still crave sugar and feel better without it so I > probably still have the fungus... but at least I am not being treated > like it is all in the head. > > Edgar Owen wrote: > > > > Gail, > > > > Thanks for the info. Were you diagnosed for mold infection in lungs, > > if not what? Did this med work for you? > > > > Thanks, > > Edgar > > > > On Jan 12, 2008, at 5:06 AM, Gail Ilse-Mayberry wrote: > > > > > I am perscribed a compounded inhalation of ketoconizal and gentimycin. > > > Please don't mind the spelling. > > > Gail > > > > > > veSimply wrote: > > > > > > > > Edgar, > > > > > > > > You should get a good doctor and also, ask the people over on the > > > > Aspergillus lists for advice. They have a lot of experience with > > > > mycoses, which are much more common than many people think. > > > > > > > > Its my understanding that the maintream of the medical profession > > > has > > > > also (finally) realized that many sinus infections are caused by > > > fungi > > > > and also " Methicillin-resistant Staphylococcus aureus " which is > > > > something a doctor should look for. > > > > > > > > You should look at the book Mold Warriors " which is written by > > > Richie > > > > Shoemaker, who is a doctor in land (USA) who has a lot of > > > > experience treating people with various forms of mold- illnesses. He > > > > also has several websites. > > > > > > > > The most recent one is at > > > > > > > > http://biotoxin.info <http://biotoxin.info> <http://biotoxin.info > > <http://biotoxin.info>> > > > > > > > > I don't know if he is using " Mucomyst " (n-acetylcysteine in a dilute > > > > aerosolized mist) but from what I have heard its a possibile > > > thing you > > > > might want to ask your doctor about? I don't know much more than the > > > > name. (I do take regular, oral, in pills NAC from time to time - > > > when > > > > my lungs are bothering me, it helps me breathe better - do some > > > > reading on it, your mileage may vary, etc....) > > > > > > > > Rinsing the sinuses with a spray made of plain saline (made with > > > > distilled water and non-iodized salt) is also helpful. (Thats what I > > > > do when mold in the air means my sinuses start bothering me.) > > > > > > > > I hope that this is all helpful info! I don't have aspergillosis, as > > > > far as I know, I do get sinus issues from mold. > > > > If its bad mold they get really bad. > > > > > > > > On Jan 11, 2008 4:31 PM, Edgar Owen <edgarowen@... > > <mailto:edgarowen%40att.net> > > > > <mailto:edgarowen%40att.net>> wrote: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I have an apparent mold infection in my lungs and sinuses. Does > > > > > anyone know anything one can inhale that kills mold? I'm having > > > a lot > > > > > of trouble breathing, pain in lungs and deep cough. I'm sure > > > its mold > > > > > as it developed after being in a basement with mold. > > > > > > > > > > Thanks, > > > > > Edgar > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Mucormycosis often does that. It starts in the sinuses, then eats away at the eye, and eventually the whole nose and face. When I was a teenager I knew a (brilliant) blind kid who still lived with his parents who had had a fungal infection (it was probably mucor) destroy the sight in both his eyes. He had a fake face, but he was still incrediby smart. He could not go out in public so he stayed home and became incredibly adept at technology. This was before the Internet or even personal computers existed. However, he was there at the beginning, in fact, he bought one of the very, very first Apple computers. At that point it was just a circuit board. He bought it directly from the two Steves. (They were on a road trip to show them off.) There was still an active infection in his face, so I guess it was not completely healed. he had tubes that drained out of it. He would not let people outside of his family see what he looked like there. He and his family told people that he had had cancer. I don't know what happened to him. It was a long time ago, If he is still alive, I bet he is still a computer geek. Even though he is blind. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 LiveSimply <quackadillian@...> wrote: > > Mucormycosis often does that. It starts in the sinuses, then eats away > at the eye, and eventually the whole nose and face. Actually, given the incredible prevalance of mucor, and all the opportunities it would surely have... it RARELY does that. So the question is, why does something so common only do it under certain conditions, while not NORMALLY doing this? - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 how to test for murcormycosis? what lab, test panel any docs like this in S Ca? thanks, Amy Quote Link to comment Share on other sites More sharing options...
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