Re: Drs. Byron Hyde & Kenny de Meirleir

[Guest guest]

>

> Does Dr. de Meirleir take a similar approach to Dr. Byron Hyde

> (Ottawa), and order similar tests (including brains scans such as

> SPECT, PET, QEEG etc.)?

>

> Do Drs. de Meirleir and Hyde treat problems revealed by their tests,

> or are the tests mostly diagnostic or for information?

>

> I would be so grateful for any information. Thank you.

>

> Lesley

Hoi Lesley,

Yes, DML does treat the problems revealed by his test.(Wonder why

not?)

At this moment, he is mostly prescribing Nexavir (not the gel form

but by injections)

Although, I have not heard of recovery yet (who has?) it seems that

many patients can get their elastase back to normal and feel much

clearer in the head. They can increase their activity.

But the stuff is very expensive and must be taken long time (up to 1

year)

He also gives much attention to intestinal problems. Intolerance to

lactose or fructose.

There is somewhere a link on this board to a meeting he had in Perth

last year where he explains his treatment and findings

Don't know anything on Hyde.

Hope this has helped you.

Greetings,

Dirk

[Guest guest]

Thank you for the information, Dirk. I looked at Blake Graham's

description of Dr. de Meirleir's approach, on this board.

Dr. de Meirleir's tests and treatments look at intestinal, digestive,

nutritional and immune status, with Nexavir treating the immune

system, is that right?

Dr. Byron Hyde in Ottawa sees M.E. as primarily a neurological

illness, with vascular injury of the Central Nervous System. This

causes disruption to many other body systems (cardiac, immune, etc.)

Dr. Hyde uses SPECT and PET scans to reveal the extent of brain

injury, among other tests. This seems to be a different approach to

Dr. de Meirleir's.

I'm a woman living in England, and have had M.E. for 17 years. I feel

desperate for anything that might help, and haven't found anything in

this country. I'm trying to get a sense of the different approaches.

In the US there's Cheney with his cardiac approach, with

Ampligen, Teitelbaum with nutritional support. In Canada there's

Hyde's neurological approach, and de Meirleir in Belgium with

intestinal/immune approach. I know this is a gross simplification,

but is it more or less right?

Thank you for your help.

Best wishes,

Lesley

> >

> > Does Dr. de Meirleir take a similar approach to Dr. Byron Hyde

> > (Ottawa), and order similar tests (including brains scans such as

> > SPECT, PET, QEEG etc.)?

> >

> > Do Drs. de Meirleir and Hyde treat problems revealed by their tests,

> > or are the tests mostly diagnostic or for information?

> >

> > I would be so grateful for any information. Thank you.

> >

> > Lesley

>

> Hoi Lesley,

>

> Yes, DML does treat the problems revealed by his test.(Wonder why

> not?)

> At this moment, he is mostly prescribing Nexavir (not the gel form

> but by injections)

> Although, I have not heard of recovery yet (who has?) it seems that

> many patients can get their elastase back to normal and feel much

> clearer in the head. They can increase their activity.

> But the stuff is very expensive and must be taken long time (up to 1

> year)

>

> He also gives much attention to intestinal problems. Intolerance to

> lactose or fructose.

>

> There is somewhere a link on this board to a meeting he had in Perth

> last year where he explains his treatment and findings

>

> Don't know anything on Hyde.

> Hope this has helped you.

> Greetings,

> Dirk

>

[Guest guest]

Hi, I think youre pretty spot on...

Now, if they could combine their different approaches one might wonder

what would come out of that...

> In the US there's Cheney with his cardiac approach, with

> Ampligen, Teitelbaum with nutritional support. In Canada there's

> Hyde's neurological approach, and de Meirleir in Belgium with

> intestinal/immune approach. I know this is a gross simplification,

> but is it more or less right?

>

> Thank you for your help.

>

> Best wishes,

>

> Lesley

>

>

>

> > >

> > > Does Dr. de Meirleir take a similar approach to Dr. Byron Hyde

> > > (Ottawa), and order similar tests (including brains scans such as

> > > SPECT, PET, QEEG etc.)?

> > >

> > > Do Drs. de Meirleir and Hyde treat problems revealed by their tests,

> > > or are the tests mostly diagnostic or for information?

> > >

> > > I would be so grateful for any information. Thank you.

> > >

> > > Lesley

> >

> > Hoi Lesley,

> >

> > Yes, DML does treat the problems revealed by his test.(Wonder why

> > not?)

> > At this moment, he is mostly prescribing Nexavir (not the gel form

> > but by injections)

> > Although, I have not heard of recovery yet (who has?) it seems that

> > many patients can get their elastase back to normal and feel much

> > clearer in the head. They can increase their activity.

> > But the stuff is very expensive and must be taken long time (up to 1

> > year)

> >

> > He also gives much attention to intestinal problems. Intolerance to

> > lactose or fructose.

> >

> > There is somewhere a link on this board to a meeting he had in Perth

> > last year where he explains his treatment and findings

> >

> > Don't know anything on Hyde.

> > Hope this has helped you.

> > Greetings,

> > Dirk

> >

>

[Guest guest]

>

>

> Hi, I think youre pretty spot on...

> Now, if they could combine their different approaches one might

wonder

> what would come out of that...

>

>

>

>

> > In the US there's Cheney with his cardiac approach, with

> > Ampligen, Teitelbaum with nutritional support. In Canada there's

> > Hyde's neurological approach, and de Meirleir in Belgium with

> > intestinal/immune approach. I know this is a gross

simplification,

> > but is it more or less right?

> >

> > Thank you for your help.

> >

> > Best wishes,

> >

Yes, if we could get this people together for just 1 week!!!

It's striking if you put all there theories together and then look at

the point where " it's clicking " !!!!

they all describe the same thing;just from a different angle.

To me it's like a jigsaw and they all have some pieces....so now :

let's come together and compare!

Greetings,

Dirk

[Guest guest]

Lesley,

DML also sees the brain injury's and pays much attention to it. He

always says how much ME/MS are look-a-likes!

You're simplification is right what proves that we are sick (not crazy!)

So now it is time they all come together and discuss their

research;change opinions....

Should make more sense than everybody working for himself.

It would sure help us to get a life back sooner!

Note : nexavir is not the only thing DML prescribes, of course.He gives

anti-biotics;vitamines;probiotics......He also deed studie on Ampligen

in the old days.

We have a dutch website (www.hetalternatief.org) where the author puts

together all the great theories and you're amazed to see how they all

overlap. They click together.

So they should forget the Nobel Prize and the money and the ego and sit

together and only discuss like a " thinking tank "

That's what I pray for. That's our only solution (in my humble opinion)

Greetings,

Dirk

If you want more details about DML approach, you can mail me private.

No problem.

[Guest guest]

I'd add one name to this list:

Dr. Trevor Marshall (www.marshallprotocol.com) who links a subtype of

CFS with Sarc and a few other TH1 related illnesses.

Possibly his is the theory that explains the root cause of the

changes observed by De Meirleir and others.

I'd highly recommend familiarizing yourself with his view. It

resonante well with our family's test results and case histories.

>

>

> Hi, I think youre pretty spot on...

> Now, if they could combine their different approaches one might

wonder

> what would come out of that...

>

>

>

>

> > In the US there's Cheney with his cardiac approach, with

> > Ampligen, Teitelbaum with nutritional support. In Canada there's

> > Hyde's neurological approach, and de Meirleir in Belgium with

> > intestinal/immune approach. I know this is a gross

simplification,

> > but is it more or less right?

> >

> > Thank you for your help.

> >

> > Best wishes,

> >

> > Lesley

> >

>