Re: MOLDS IN HOMES AND OFFICE BUILDINGS

[Guest guest]

Sorry I didn't strip the attachments from the last email..

Dan

Dan & Carmella Dunkin

The Gourd Reserve

http://www.thegourdreserve.com

[Guest guest]

> CFIDS was first brought to the attention of the public as a

result of an epidemic in the Lake Tahoe region in 1984. Patients

seemed to have a chronic version of mononucleosis, with debilitating

fatigue, pain and neurological disturbance. Their immune systems

were disturbed as well.

> Originally CFIDS was blamed on the Epstein Barr virus, but it

soon became apparent that this was not the cause, but rather an

effect of the victim's damaged immune systems. The latent Epstein

Barr virus is awakened, much as it does in many AIDS victims when

their immune system fails. -Rick

I've been showing that paper to CFS doctors, groups, and researchers

since 1998 and they fought me harder than the denier doctors ever

did!

Which is exactly what CFS groups did to Rick when he

presented that abstract in 1994 and tried to give CFSers a hand out

of the morass in which they are mired.

When I followed up on the mycotoxin connection for myself in spite

of the contradictions and sheer intransigence of all doctors and

finally made contact with Rick (who told me about this group),

I said that my experience of independently reaching this conclusion

and demonstration of its effects was a compelling validation of the

concept and that it was important to make the CFS doctors understand

that they have made a serious mistake by overlooking the effect of

mold toxins in CFS.

But the CFSers had angered Rick with their intant rejection and

abuse and even though he was perfectly willing to help those who

were " Reaching for the light " as Dr Shoemaker puts it in Desperation

Medicine, he was not willing to waste his time on people who were so

eager to self destructively trash the idea, even to the extent of

denying obvious clues and abnormalities - just as the denier doctors

always do.

I told Rick, " That won't happen to me, since I'm an original

Incline Village survivor who was used as a prototype for refining

the parameters of CFS in the CDC study group. Dr Cheney used my

blood to rule out EBV when this illness was called CEBV and asked me

to volunteer to be a prototype for CFS. I was even a Truckee High

school so I know about the mold in the teachers lounge where the

famous " CFS teacher cluster " occurred that was described in " Osler's

Web " . Only a brain dead moron could overlook a story like that " .

Rick laughed and told me, " I don't think they will listen to you " .

I didn't believe him at the time. I had more faith in people then,

but after all these years and even after CFSers saw my story in Mold

Warriors, they are more eager than ever to suppress the concept and

CFS doctors STILL refuse to take any interest in this.

Rick was right.

It truly seems as if CFS doctors have no interest in helping their

patients and CFSers themselves are so suspicious and jaded after so

many years of abuse and mistreatment that they can't even bring

themselves to find anything of interest in the story of a CFS

prototype who walked out of Dr s ampligen program to pursue

a concept which resulted in a fairly spectacular recovery.

I often said: " I shouldn't even have to speak a word. All that

should be necessary is to show documents that I am an Incline

Village CFS survivor and show a few pictures of me on top of various

mountains to get people interested " . But surprisingly,

they ask " Where is your proof? " and to that I can only

respond, " Pictures of me climbing mountains doesn't cut it for you?

What do you want?; A signed affidavit from Dean Edell? "

The truth is that there is nothing I can do and nothing that I can

say that will make any dent in CFSers brains about the mycotoxin

connection to CFS.

The more I made any assertion that my experience and information may

be relevent or important, the stronger their dismissal and rejection

grew until now CFS groups treat me like a " troll-ona Non Grata " .

But there is one major difference between now, and the years of

denial, abuse, " psychologizing " and inappropriate skepticism " in the

face of obvious abnormalities " that I received from people for being

unfortunate enough to have this illness, for this time, it is they

who are doing the suffering for their denialism, obstinance and

intransigence instead of me.

" Priceless " !

-

[Guest guest]

,

You should have a website with details of your story, pictures,

etc. It is so interesting and important to tell.

I have CFS with Epstein Barr and systemic Candida I'm fighting right

now. Mine however started with artificial suppression of my immune

system with a prescription drug. I'm trying to gather evidence to

complain to Surgeon General, not lawsuit. It would be too hard to

prove for lawsuit since doctors have been so hesitant to run tests,

probably because they think a lawsuit is what I have in mind against

drug maker OR fellow doctor-comrade.

I'm was just interested in getting well in the beginning. However

doctor's have been so incompetent and lazy about helping me that I

am now interested in also report to 'authorities', so down the road

this prescription medicine should be studied if it should be on

market. Barb

>

> I've been showing that paper to CFS doctors, groups, and

researchers

> since 1998 and they fought me harder than the denier doctors ever

> did!

> Which is exactly what CFS groups did to Rick when he

> presented that abstract in 1994 and tried to give CFSers a hand

out

> of the morass in which they are mired.

> When I followed up on the mycotoxin connection for myself in spite

> of the contradictions and sheer intransigence of all doctors and

> finally made contact with Rick (who told me about this

group),

> I said that my experience of independently reaching this

conclusion

> and demonstration of its effects was a compelling validation of

the

> concept and that it was important to make the CFS doctors

understand

> that they have made a serious mistake by overlooking the effect of

> mold toxins in CFS.

> But the CFSers had angered Rick with their intant rejection and

> abuse and even though he was perfectly willing to help those who

> were " Reaching for the light " as Dr Shoemaker puts it in

Desperation

> Medicine, he was not willing to waste his time on people who were

so

> eager to self destructively trash the idea, even to the extent of

> denying obvious clues and abnormalities - just as the denier

doctors

> always do.

> I told Rick, " That won't happen to me, since I'm an original

> Incline Village survivor who was used as a prototype for refining

> the parameters of CFS in the CDC study group. Dr Cheney used my

> blood to rule out EBV when this illness was called CEBV and asked

me

> to volunteer to be a prototype for CFS. I was even a Truckee High

> school so I know about the mold in the teachers lounge where the

> famous " CFS teacher cluster " occurred that was described

in " Osler's

> Web " . Only a brain dead moron could overlook a story like that " .

> Rick laughed and told me, " I don't think they will listen to you " .

> I didn't believe him at the time. I had more faith in people

then,

> but after all these years and even after CFSers saw my story in

Mold

> Warriors, they are more eager than ever to suppress the concept

and

> CFS doctors STILL refuse to take any interest in this.

> Rick was right.

> It truly seems as if CFS doctors have no interest in helping their

> patients and CFSers themselves are so suspicious and jaded after

so

> many years of abuse and mistreatment that they can't even bring

> themselves to find anything of interest in the story of a CFS

> prototype who walked out of Dr s ampligen program to

pursue

> a concept which resulted in a fairly spectacular recovery.

> I often said: " I shouldn't even have to speak a word. All that

> should be necessary is to show documents that I am an Incline

> Village CFS survivor and show a few pictures of me on top of

various

> mountains to get people interested " . But surprisingly,

> they ask " Where is your proof? " and to that I can only

> respond, " Pictures of me climbing mountains doesn't cut it for

you?

> What do you want?; A signed affidavit from Dean Edell? "

> The truth is that there is nothing I can do and nothing that I can

> say that will make any dent in CFSers brains about the mycotoxin

> connection to CFS.

> The more I made any assertion that my experience and information

may

> be relevent or important, the stronger their dismissal and

rejection

> grew until now CFS groups treat me like a " troll-ona Non Grata " .

> But there is one major difference between now, and the years of

> denial, abuse, " psychologizing " and inappropriate skepticism " in

the

> face of obvious abnormalities " that I received from people for

being

> unfortunate enough to have this illness, for this time, it is they

> who are doing the suffering for their denialism, obstinance and

> intransigence instead of me.

>

> " Priceless " !

>

> -