Treating ME/CFIDS

[Guest guest]

Hi All,

I have the tough, physical variety of ME/CFIDS. It has taken my life

from me. I have been sick for 16+ years. I have tried hundreds of

treatments, diets, supplements, stress control programs, etc. with

little benefit.

I know that I will probably not regain my good health before I die.

One of the reasons for that is that ME/CFIDS has been trivialized by

the CDC, the British Health Service, and the mainstream medical

profession.

I am very happy for anyone who finds an answer to their problems. I

am happy for anyone who finds a simple cure for their illness.

However, there are those of us who will not get well until a lot of

serious research is done and effective new treatments are found. I

would like to see those very sick people get help too.

One of the reasons that the serious research is not being done is

that less serious illnesses and things like burn out from stress and

depression that can cause fatigue are lumped together with ME/CFIDS.

I am sorry if some people feel offended by this, but some of us need

help beyond the easy, simple things that are considered treatments

for CFS. I would like to see the research get started in earnest,

but as long as we ourselves talk like we don't have a serious

physical illness, that research probably won't be done.

So again, I am happy for anyone who feels better after taking a

vacation, or trying a supplement, but remember that there are those

of us who have tried all that and need something more.

Tom