Terrible Situation - Help Needed!

[Guest guest]

Someone sent me this e-mail about someone who's in terrible shape.

I am the caretaker of a horribly ill ME patient. He literally is muscle wasting

to death in

front of me. I will be very brief as his dad could have more details but

something needs to

be done to save mikes life. For 13 years he had a mild case with post exertion

malaise,

sore throats, slight muscle weakness, all the little wacky symptoms that come

with this

dreadfull disease. Even though he had immune panels including Rnase panels done

that

showed tremendous abnormalities he functioned at 90% for 13 years. He had a flu

like

onset when he was 19 and is now 33. About a year ago he decided to get

treatment which

included glutathione Iv's, however too much glutathione in a body that is not

used to that

amount and has damaged detox pathways leads to extreme immobilization of toxins.

He

went from 90% to 30% in 6 months. Than he got a colonix which immobilized more

toxins

about 6 months ago. He started to feel a wave like feeling come from his brain

and

started to go into dementia, needless too say he begged everyone to let them

know and

nobody listened, all his past doctors called him psychiatric when he did not get

better

from the treatments before all this.

Every system in his body from cardio, muscle/skeleton/neurological is literally

wasting but

worst of all he is in what I know as last stage dementia including horrible

psychosis. If we

do not get him out of psychosis the mental exertion is going to kill him, and

again it all

started with this brain wave he described after toxins were released, he

believes Keppra

might help? This was a man who was vice-president of a business a little over a

year ago.

Due to the fact he cannot move literally and if he tries it could cost him his

life, he has no

medical assistance because doctors dont understand and dont want to help if they

dont

see him. The slightest physical or mental exertion has a devestating impact on

him. If he

does not get help he is surely going to die soon. His dad has tried contacting

eeryone but

they show no understanding of the nature of his sickness and how dangerous his

situation

is,

He might know more about this diseasse than anyone out there but got convinced

into

doing bad treatments. He was also mad that everyone keeps trying to say there

are

different causes of ME when he says atypical ME can only be caused by

enterovirus, the

Hv6 infections and so forh are secondary. He encourages everyone with CFS/ME to

get

enterovirus biopsies done including for polio 1,2 and 3. However folks can have

HV6,

toxic exposure and other infections that mimmick CFS which causes all the

confusion,

however they are not nearly as ominous. He has true ME along with toxic exposure

which

has created his state.

Please contact his dad and try to help him, I am begging, as this is a tragedy

that happens

all too often Im sure with this disease.

His dad can be reached at 614-735-7077 and his name is Stan

Thank You so much

Edna

mikedessin@...