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PHOENIX RISING

A GUIDE TO ME/CFS

Bringing Opportunity to ME/CFS/FM Patients

The Phoenix Rises From the Ashes of Its Former Existence

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PHOENIX RISING: AN ME/CFS/FM NEWSLETTER

This Website is Under Construction!

This monthly newsletter includes news events, research summaries, including the

'Paper of the Month', personal stories, editorials, etc. This newsletter will

keep you up to date on the latest breakthroughs and what they mean. It is also a

forum for CFS patients and others to submit stories, events of interest,

research summaries, treatment successes/failures, etc. Please consider

submitting a piece to the newsletter!

To subscribe to Phoenix Rising please fill out the boxes below. Your newsletter

will be sent to you in an e-mail containing a PdF file as well as a link to the

website. (Your e-mail will only be used for the purposes of sending you the

newsletter and papers on CFS).

Thanks for your interest. I hope you will benefit from and enjoy the newsletter.

Please let e-mail me any comments at phoenixcfs@.... Yours truly,

Cort

E: mail

Country of Origin

VOLUME I

Vol I No I Sept 2005 - CFS Research Center Formed / The NIH Comes Through (!) -

New Funding Granted / A Tragic Death / The Genes Have It - A Promising Gene

Expression Study / Downer Paper of the Year / Psychological Basis for CFS

Invalidated? / CFS Research Spreads East

Vol I No 2 October 2005 - British Government Climbs Out of the Stone Age / Free

Radicals Attack CFS Patients / Swedish Epidemiologists Hit a Trifecta / A Month

in the Life of an CFS/MCS Patient Part I

Vol I No 3 November 2005 - Unique Donor Sample Program / CFS Researcher

Publishes 'Novel' / Low Blood Volume in POTS (and CFS?) Resolved? / Is CFS an

AIDS-like disease? Another Opportunistic Pathogen in CFS / Report from Portugal

/ Month in the Life of an CFS/MCS Patient Part II

Vol I No 4 December 2005 - Two CFS Conferences / REDLABS Comes to the U.S / A

Biomarker in the Brain? / Exercise Causes Immune Activation / Special Report:

the Neuroimmune Grant for CFS, Part I, The 2003 Neuroimmune Conference

Vol 1 No 5 January 2006 - A Goodbye To Breckenridge / Ampligen Trial

Opens / Dr. Kerr/Cheney/Natelson Talk / Immune Cells Burned Out in CFS? / No

Orthostatic Intolerance in CFS?

Vol I No. 6 February 2006 - CAA Publishes Large Research Overview / The Dubbo

Studies Part One - EBV; A Model of Post-infective Fatigue Emerging? / Fatigue

and Infection - A Central Agent Identified?/ Report From Down Under - Life With

CFS in Australia.

Vol I No 7 March 2006 - Evidence of Brain Shutdown in Fatigued CFS Patients /

An Overview of Fibromyalgia Part I: - Is FMS a Brain Disease? / The Neuroimmune

Grant for CFS, Part III - Reviewing the Reviewers.

Vol I No. 8. April 2006 - Reports from the London Conference / An Overview of

Fibromyalgia Part II - Is FMS a Muscle Disease? / Treating CFS - An Overview of

the Recent Clinical Studies

Vol I No. 9 May 2006 - The CDC Pharmacogenomics Studies Part I; Allostatic

Stress in CFS / Reduced Brain Blood Flows in CFS / No Hypercoagulation in CFS?

Vol I No 10 June 2006 - Dr. Cheney talks / HHV-6 Conference Highlights /The CDC

Pharmacogenomics Studies Part II: The Gene Expression Studies I, II, III

Vol I No. 11 July 2006 - Senate Slams NIH, Praises CDC / The Immune,

Neurological and Endocrine Gene Mutations in CFS / 's Story

Vol I No. 12 August 2006 - Free Canadian Legal Resource / Phoenix Rising

Researcher of the Year! / A Biomarker for CFS Identified? / Estrogen - A Cause

of the Female Predominance in CFS? / Personal Story - Breakthrough Emerging Part

I

Special Edition: 2005 The Year in Review - Trends in CFS Research / Paper of the

Year / Top Ten CFS Research Papers.

VOLUME II

Vol II No. 1 September 06 - The Subsets in CFS; An Immune Subset in CFS? plus

Pharmacogenomics V: The Subset Studies / Meg's Story / Personal Story -

Breakthrough Denied? Part II

Vol II No. II October 06 - Death and CFS / Exercise Problems in CFS or Not?

Special Edition: The Dorothy Wall Interview (Nov 06)

Special Edition: The Marly Silverman Interview (Jan 07)

Vol II No. III Nov/Dec 2006 - The Treatment Edition: D-ribose to Improve Energy

/ LRT- A Missing Factor in CFS Treatment? / Massage the Pain Away? / Antibiotics

and Anti-depressants For CFS? and more

Special Edition: The 2007 P.A.N.D.O.R.A / IACFS Patient Conference

Part I: Politics and Advocacy / Dr. Teitlebaum and D-Ribose / Ask the Experts

Part II: Sleep and CFS / Dr. De Meirleir and the Gut / P.A.N.D.O.R.A. Sand

Castle Awards / Dr. Cheney's Keynote Address

Special Edition: The 2007 IACFS 8th Professional Conference

Part I: Fatigue Session Introduction / Vascular & Cardiovascular / Exercise

Studies

Part II: The Brain / Gene & Genetics Studies

Part III: The Immune System, the Gut, Pain and Sleep

Part IV: The Clinical Trials

Part V: Defining CFS, Economic Costs, Behavioral Issues and the Conference Take

Away Points.

Jan/Feb 2007 - The CAA Media Campaign / A Model of HPA Axis Dysfunction in CFS /

Validation of the Model / The Intensive Twin Studies Find Brain Abnormalities /

Oxidative Stress and Red Blood Cells in CFS.

Special Edition: The Pat Fero Interview (Apr 07)

March/April 2007 - A Disease of Many Faces? Fatigue in CFS, FM, Multiple

Sclerosis and Post-Cancer.

Special Edition: The Advocacy Issue: Report From Lobby Day, the CFSAC Meeting

and The Neuro-immune Grant for CFS Part IV: The Neuroimmune RFA (June 07)

May/June 2007 - " Hitting a Moving Target " - The Prevalence/Definition Edition.

July/August 2007 - The Autonomic Nervous System Edition

Special Edition: The Rik Carlson Invterview (Sept. 07)

Special Edition: The Suzanne Vernon Interview (Nov 07)

Special Edition: 2006 Year in Review: Paper of the Year, Top Ten Research

Papers.

December 2007 - The Story Edition

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