questions.

[Guest guest]

Would you share any or all of the things below? Your

> answer might just be a help to someone else in some

> areas.

>

> If you answer any questions, please hit Enter after

> your answer to make it easier to read. Thank you

> and Welcome to the Group!

>

>

> Age range:41 (and I have a profile on Facebook...lol..does that

make me younger:) )

>

> Male/female: Female

>

> What symptoms do you have?

Pain in back, and neck. brain fog, poor concentration, fatigue

which could keep me in bed for 24 hours if I let it, whole body and

mind fatigue...I don't even know what to put here, it is just so

over whelming.

>

> Has a Doctor diagnosed the cause of your symptoms?

Yes

> As what?

Chronic Fatigue Syndrome

>

> How long did you have symptoms before you were

> diagnosed?

all my life...since I was about 6-as far as I can remember

>

> Is there a particular event you can remember that

> may have started your symptoms?

Maybe the DTT ..which is a chemical that mom said was used back in

the 1960s which is banned now. She said they sprayed it in the house

for spiders and on the garden and tobacco fields so I was exposed to

it all the time. I'm not sure and neither is she that this has

anything to do with it...but it does make one wonder.

> Some of us have become overweight due to the pain

> interfereing with exercise. Has this been a problem

> for you as well?

Yes. I've had doctors tell me to exercise more, but I tell them that

the fatigue is too over whelming. I'm not over weight... of course,

being female would I like to loose a couple pounds...Sure..lol.. I

am 128 pounds, but now, for the first time in my life, I have the

stomach coming on..natural over 40 thing..DNA and genes..maybe...but

the fact remains that since I have CFS and I'm trying to hold a job,

raise kids, do it all since I'm single...when in the heck would I

have time to excerise..every spare moment is spent trying to catch

up on sleep.

>

> Are you on disability?

No, but I'm thinking of trying. I'm working right now. I am only

working 4 nights a week and my kids and I live in poverty since I

can't work more and the time I am working is so hard on me...I hate

to exagerate, but I think that here, in this group, you'll

understand when I say that the 4 nights a week that I am working 'is

killing me'

>

> If you are can you give any pointers for others

> trying to get on disability?

I'm going to see my doctor in a few weeks and tell her that I'm

going to try. I have no idea what I may face or what will happen or

what I'll have to do...but I'm really ready to try and see what

happens with disability.

>

> What have you found that helps ease the pain,

> massage, warm baths, medications etc.?

My chiropractor

>

> Do you have problems sleeping? How do you deal with

> it?

Sleep is all over...I sleep, I can't sleep...I sleep for days...I

can't sleep. I need an afternoon nap and I still feel tired. It's

impossible to have a regular routine. I just deal with it..it's not

easy...but no choice.

>

> Do you have family members that understand and are

> sympathetic to your limitations caused by your

> illness?

My mom does some what understand. My one brother doesn't

understand...it's a mixed bag, but it's really hard to explain to

others. Work wants me to take more work hours and I told them I

couldn't and I tried to explain CFS to another worker and I ended up

with a headache trying to explain to her what it was all about. No

one, accept those who have it understand.

>

> Some of us with CFS or Fibro have problems with

> specific foods, have you?

I have no idea. I'm always too tired and working too much and too

much to deal with to figure out if any food affect me...as far as I

know, no, no foods make a difference.

>

> What type of Doctor have you found that has helped

> you the most?

I forget the title of the specialist who saw me and told me I have

CFS. I know any doctor invovled in natural remedies seem to have a

better understanding of CFS then regular doctors.

I live in Ontario, Canada...just incase anyone else is from Canada.

Shaylaina@...