Re: Supplements to help nerve damage?

[Guest guest]

Hi Mark,

One thing I would not suggest - Lyrica. As to anything else, I have

discontinued everything trying to figure out why I got sick and got

nerve damage during the timeframe I was supposedly taking healthy

supplements.

Let me hasten to add that I have not recovered from quinolone damage

to tendons or nerves from five years now. I hate to be negative, but

don't get your hopes up of your nerves healing. Furthermore, at this

point, no one can even sort out what is going on with me - not the

head pressure, not the nerve pain, not the loss of vision, growth of

cataracts, anxiety, difficulty sleeping, brain confusion.

No form of magnesium helped including magnesium taurinate or

Recuperat-ion. In fact it is possible the Recup made things worse.

Who knows. I have even speculated that the fluoride in the Recup, if

there is any, may have made things worse. How do we even know the

problem is nerve damage? I used to have severe pelvic pain caused by

borrelia. My husband had prostate problems caused by chronic borrelia

infection. (Read tertiary borreliosis akin to tertiary syphillis)

So do we go back on antibiotics or take CoQ 10??????

a Carnes

> I saw a doctor today about my pelvic spasms (presently being

somewhat

> treated by klonopin), and he thought I probably have some nerve

damage,

> and nerves take a very long time to heal. I'm looking for

suggestions

> on what are the best supplements to try to help with this. I'm

> thinking of taking Q10, but is there anything better to try first?

> Thanks. - Mark

>

[Guest guest]

>

> I saw a doctor today about my pelvic spasms (presently being

somewhat

> treated by klonopin), and he thought I probably have some nerve

damage,

> and nerves take a very long time to heal. I'm looking for

suggestions

> on what are the best supplements to try to help with this. I'm

> thinking of taking Q10, but is there anything better to try

first?

> Thanks. - Mark

>

I would suggest magnesium/calcium/malic acid/potassium. Eyelids

twitcing is a sign of low magnesium (that is a form of spasm -

probably not as painful as your pelvic spasms.

Have you tried soaking in an epsom salt bath? Sometimes the simple

things work the best as there are so many side effects from

medication. They take longer to work but then you don't have to

track down side effects.

Marti

[Guest guest]

Hi - I haven't found magnesium supplementation to help, but I'll

consider the magnesium baths, thanks. - Mark

> >

> > I saw a doctor today about my pelvic spasms (presently being

> somewhat

> > treated by klonopin), and he thought I probably have some nerve

> damage,

> > and nerves take a very long time to heal. I'm looking for

> suggestions

> > on what are the best supplements to try to help with this. I'm

> > thinking of taking Q10, but is there anything better to try

> first?

> > Thanks. - Mark

> >

>

>

> I would suggest magnesium/calcium/malic acid/potassium. Eyelids

> twitcing is a sign of low magnesium (that is a form of spasm -

> probably not as painful as your pelvic spasms.

>

> Have you tried soaking in an epsom salt bath? Sometimes the simple

> things work the best as there are so many side effects from

> medication. They take longer to work but then you don't have to

> track down side effects.

>

> Marti

>

[Guest guest]

Dear Mark

If your pelvic spasms equate to my proctalgia fugax then you might look at

Buscopan (Hyoscine) as a muscle relaxant. It certainly afforded me a great

deal of relief

Regards

R

Supplements to help nerve damage?

>I saw a doctor today about my pelvic spasms (presently being somewhat

> treated by klonopin), and he thought I probably have some nerve damage,

> and nerves take a very long time to heal. I'm looking for suggestions

> on what are the best supplements to try to help with this. I'm

> thinking of taking Q10, but is there anything better to try first?

> Thanks. - Mark

>

>

>

> ------------------------------------

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

From: " Mark London " <mrl@...>

Sent: Wednesday, April 23, 2008 11:07 AM

>I saw a doctor today about my pelvic spasms (presently being somewhat

> treated by klonopin), and he thought I probably have some nerve damage,

> and nerves take a very long time to heal. I'm looking for suggestions

> on what are the best supplements to try to help with this. I'm

> thinking of taking Q10, but is there anything better to try first?

Hi Mark,

If it is nerve damage, you might want to research Benfotiamine. This is an

unusually effective form of Vit B-1, developed originally to treat peripheral

neuropathy in diabetics.

However, newer studies are cropping up showing it's benefit in many forms of

nerve problems as well as in some cases of chronic fatigue.

It is the most bio-available form of thiamine.

Wishing you luck with this

Sharon M

[Guest guest]

" Mark London " <mrl@...> wrote:

>

> I saw a doctor today about my pelvic spasms

> (presently being somewhat

> treated by klonopin), and he thought I probably have some nerve

> damage,

> and nerves take a very long time to heal. I'm looking for

> suggestions

> on what are the best supplements to try to help with this. I'm

> thinking of taking Q10, but is there anything better to try first?

> Thanks. - Mark

I'd look at chiropractic.

Classical homeopathy, like a Mag Phos 6x (in the cell salts

at the HFS, ask). 4 pellets dissolved under tongue once or

twice a day until the symptoms go away. Quit the remedy when

symptoms go away. Don't use longer than 10 days if

symptoms don't go away at all by then. I suspect if this remedy

is going to help, it will do so in 1-5 days.

(Disregard instructions on the label, they are

excessive use, more frequent dosing won't help,

and it's not how homeopathy is classically used.)

And TCM Yin tonifiers. More on products of this kind

in my msg archive*.

Hopefully these approaches would would resolve and you could

withdraw from the klonopin.

Avoid anything dissipating nerve force/strength.

Carol W.

*willis_protocols

[see also my Links>

[Guest guest]

Hi - Since my doctor is out of town for the next few weeks, I'm going

to first try going up on the klonopin and see if that can fix the

problem. If not, then I'll definitely look into asking for a

different drug like lyrica. I knew that neurontin had muscle

relaxant effects, and it appears that lyrica also does. - Mark

>

> Hi Mark,

> One thing I would not suggest - Lyrica. As to anything else, I have

> discontinued everything trying to figure out why I got sick and got

> nerve damage during the timeframe I was supposedly taking healthy

> supplements.

>

> Let me hasten to add that I have not recovered from quinolone

damage

> to tendons or nerves from five years now. I hate to be negative,

but

> don't get your hopes up of your nerves healing. Furthermore, at

this

> point, no one can even sort out what is going on with me - not the

> head pressure, not the nerve pain, not the loss of vision, growth

of

> cataracts, anxiety, difficulty sleeping, brain confusion.

>

> No form of magnesium helped including magnesium taurinate or

> Recuperat-ion. In fact it is possible the Recup made things worse.

> Who knows. I have even speculated that the fluoride in the Recup,

if

> there is any, may have made things worse. How do we even know the

> problem is nerve damage? I used to have severe pelvic pain caused

by

> borrelia. My husband had prostate problems caused by chronic

borrelia

> infection. (Read tertiary borreliosis akin to tertiary syphillis)

>

> So do we go back on antibiotics or take CoQ 10??????

>

> a Carnes

>

>

> > I saw a doctor today about my pelvic spasms (presently being

> somewhat

> > treated by klonopin), and he thought I probably have some nerve

> damage,

> > and nerves take a very long time to heal. I'm looking for

> suggestions

> > on what are the best supplements to try to help with this. I'm

> > thinking of taking Q10, but is there anything better to try

first?

> > Thanks. - Mark

> >

>

[Guest guest]

Mark, along the lines of Vitamin B-1, I tried Picamilon for my nerve

damage. That is GABA bonded with niacin to get it into the brain.

It's sold OTC but rather pricey. I couldn't tell if it helped or not.

Before I got the nerve damage from the quinolones all my nerve pain

had gone away using Zithromax for the Lyme disease. I continue to

think that the antibiotics MP is using at low dose over a few years

are the best available treatment for Lyme, cfs, fms, and " autoimmune

diseases. "

But get some sun and eat fatty, cold water fish, for goodness sakes.

a Carnes

>

>

> >I saw a doctor today about my pelvic spasms (presently being

somewhat

> > treated by klonopin), and he thought I probably have some nerve

damage,

> > and nerves take a very long time to heal. I'm looking for

suggestions

> > on what are the best supplements to try to help with this. I'm

> > thinking of taking Q10, but is there anything better to try

first?

>

> Hi Mark,

>

> If it is nerve damage, you might want to research Benfotiamine.

This is an unusually effective form of Vit B-1, developed originally

to treat peripheral neuropathy in diabetics.

> However, newer studies are cropping up showing it's benefit in many

forms of nerve problems as well as in some cases of chronic fatigue.

> It is the most bio-available form of thiamine.

>

> Wishing you luck with this

>

> Sharon M

>

[Guest guest]

Man, Mark. Yu missed my point. Don't take the Lyrica. If it can cause

cataracts what else can it damage?

You aren't gonna believe I am writing this, but get in the tub with

the epsom salts and a bottle of hyrdrogen peroxide. No, don't drink

the bottle. Put it in the water after you have sat there awhile.

Meanwhile go see a chiropractor who applies pressure to two different

areas of your body where there is pain and has you hold your breath.

Hey, just sit at home and hold your breath as long as you can and let

it slowly out. That often relieves a lot of muscle pain.

Try it - you might like it, and it will be free. It's even more fun

if you can get your significant other to do the pressure on the

painful areas for you at the same time.

Enjoy yourself and run from Klonopin and Lyrica, I am not a doctor,

so do not be taking my advice. If I were a doctor I would be

prescribing Klonopin and Lyrica to patients such as you, and I would

making money.

a

>

> Hi - Since my doctor is out of town for the next few weeks, I'm

going

> to first try going up on the klonopin and see if that can fix the

> problem. If not, then I'll definitely look into asking for a

> different drug like lyrica. I knew that neurontin had muscle

> relaxant effects, and it appears that lyrica also does. - Mark

[Guest guest]

www.benfotiamine.net or www.benfotiamine.org; also BenfoTiamine Creme

Thiamine; Vitamin B1 and BenfoTiamine are all forms of Vitamin B1.

BenfoTiamine is also very safe as compared to other forms of Thiamine.

>

> From: " Mark London " <mrl@...>

> Sent: Wednesday, April 23, 2008 11:07 AM

>

>

> >I saw a doctor today about my pelvic spasms (presently being

somewhat

> > treated by klonopin), and he thought I probably have some nerve

damage,

> > and nerves take a very long time to heal. I'm looking for

suggestions

> > on what are the best supplements to try to help with this. I'm

> > thinking of taking Q10, but is there anything better to try

first?

>

> Hi Mark,

>

> If it is nerve damage, you might want to research Benfotiamine.

This is an unusually effective form of Vit B-1, developed originally

to treat peripheral neuropathy in diabetics.

> However, newer studies are cropping up showing it's benefit in many

forms of nerve problems as well as in some cases of chronic fatigue.

> It is the most bio-available form of thiamine.

>

> Wishing you luck with this

>

> Sharon M

>

[Guest guest]

Interesting, never heard of that. I've upped my B vitamins, as

someone else suggested, but if that doesn't help, I'll give

BenfoTiamine a try!

> >

> > From: " Mark London " <mrl@>

> > Sent: Wednesday, April 23, 2008 11:07 AM

> >

> >

> > >I saw a doctor today about my pelvic spasms (presently being

> somewhat

> > > treated by klonopin), and he thought I probably have some nerve

> damage,

> > > and nerves take a very long time to heal. I'm looking for

> suggestions

> > > on what are the best supplements to try to help with this. I'm

> > > thinking of taking Q10, but is there anything better to try

> first?

> >

> > Hi Mark,

> >

> > If it is nerve damage, you might want to research Benfotiamine.

> This is an unusually effective form of Vit B-1, developed

originally

> to treat peripheral neuropathy in diabetics.

> > However, newer studies are cropping up showing it's benefit in

many

> forms of nerve problems as well as in some cases of chronic

fatigue.

> > It is the most bio-available form of thiamine.

> >

> > Wishing you luck with this

> >

> > Sharon M

> >

>

[Guest guest]

Actually; what I would do is up the B-vitamins AND do the

BenfoTiamine; this way the water soluble B1 in the B-Vitmain complex

interacts with BenfoTimaine in a special way enhacing all the B's

effect; so I recommend the water soluble B's with the BenfoTiamine.

So do both forms of the B1; water soluble and Benfo; plus B-Complex

Also if you buy the Benfotiamne buy the Neuropathy formula w/B6;B12;

give the upped B-vitamns a chance though as you say;Thiamine works

fast

> > >

> > > From: " Mark London " <mrl@>

> > > Sent: Wednesday, April 23, 2008 11:07 AM

> > >

> > >

> > > >I saw a doctor today about my pelvic spasms (presently being

> > somewhat

> > > > treated by klonopin), and he thought I probably have some

nerve

> > damage,

> > > > and nerves take a very long time to heal. I'm looking for

> > suggestions

> > > > on what are the best supplements to try to help with this.

I'm

> > > > thinking of taking Q10, but is there anything better to try

> > first?

> > >

> > > Hi Mark,

> > >

> > > If it is nerve damage, you might want to research Benfotiamine.

> > This is an unusually effective form of Vit B-1, developed

> originally

> > to treat peripheral neuropathy in diabetics.

> > > However, newer studies are cropping up showing it's benefit in

> many

> > forms of nerve problems as well as in some cases of chronic

> fatigue.

> > > It is the most bio-available form of thiamine.

> > >

> > > Wishing you luck with this

> > >

> > > Sharon M

> > >

> >

>