Re: CFS for 10+ years, Now no stage 3+4 sleep

[Guest guest]

I got to the point of wishing I was dead before I found a solution to my

sleep problems. I was sensitive to light, sound and touch.I now use a

combination of GABA synergists to cut down brain activity to allow sleep.

Dilantin, 100 mg

Baclofen , 50 mg and

Azalopram, 0.5 mg.

These , together , have literally , saved my life.

If I experience sleep problems now, one extra dose of any of the above will

give me restorative sleep.

Regards

R

CFS for 10+ years, Now no stage 3+4 sleep

> Just curious if anyone here who's had CFD for more than 5 years AND

> who've had a clinical sleep study has shown reduced or no stage 3+4

> sleep? As I was told, 3/4 sleep is reduced with long term CFS, can

> anyone confirm this?

>

> For me:

> Stages 1+2: 83%

> Stages 3+4: 0%

> REM sleep: 17%

>

> In addition to my poor quality sleep, I'm an insomniac and sleep less

> than 6 hours a night. Upon first being diagnosed with CFS, I didn't

> have sleep problems. Now, I feel if my sleep was restored, I could be

> productive again. I feel that my sleep problems may have unknowingly

> led to CFS but the doctors tell me its the CFS that led to the poor

> sleep?

>

> Any thoughts?

>

>

>

> ------------------------------------

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

My sleep has been restored, and is now normal, as a result of taking

900mg of EPA a day, which is a component of fish oil. It was

marketed as VegEPA, but that brand made me very ill, so I use

another type. It is well worth a try...

Tansy

>

> Just curious if anyone here who's had CFD for more than 5 years

AND

> who've had a clinical sleep study has shown reduced or no stage

3+4

> sleep? As I was told, 3/4 sleep is reduced with long term CFS, can

> anyone confirm this?

>

> For me:

> Stages 1+2: 83%

> Stages 3+4: 0%

> REM sleep: 17%

>

> In addition to my poor quality sleep, I'm an insomniac and sleep

less

> than 6 hours a night. Upon first being diagnosed with CFS, I

didn't

> have sleep problems. Now, I feel if my sleep was restored, I could

be

> productive again. I feel that my sleep problems may have

unknowingly

> led to CFS but the doctors tell me its the CFS that led to the

poor

> sleep?

>

> Any thoughts?

>

[Guest guest]

I had the same experience with EPA. I took 2200mg/day EPA fish oil

(with no DHA) for three months and although my sleep wasn't too bad to

start, my sleep now is excellent and when I wake up in the morning my

brain feels relaxed for the whole morning- no having to lie down again

within an hour or two.

Nat

> My sleep has been restored, and is now normal, as a result of taking

> 900mg of EPA a day, which is a component of fish oil. It was

> marketed as VegEPA, but that brand made me very ill, so I use

> another type. It is well worth a try...

>

> Tansy

[Guest guest]

I should also mention that when I did have severe insomnia 5-6yrs ago

(lost the ability to fall asleep completely for almost 2 years). I

took trazadone which helped but later started magnesium and taurine

injections 4x/week for approx 3 months and this helped contribute to my

sleep returning. I continue to take the injections off and on as

maintenance treatment.

I've had CFS for close to 17yrs and getting restorative sleep has not

helped me become more productive or given me more physical energy, btw.

Nat

[Guest guest]

For me it was definitely the CFS that caused the sleep problems. I

sleep like a log before I became ill.

Gail

cnolongapo wrote:

>

> Just curious if anyone here who's had CFD for more than 5 years AND

> who've had a clinical sleep study has shown reduced or no stage 3+4

> sleep? As I was told, 3/4 sleep is reduced with long term CFS, can

> anyone confirm this?

>

> For me:

> Stages 1+2: 83%

> Stages 3+4: 0%

> REM sleep: 17%

>

> In addition to my poor quality sleep, I'm an insomniac and sleep less

> than 6 hours a night. Upon first being diagnosed with CFS, I didn't

> have sleep problems. Now, I feel if my sleep was restored, I could be

> productive again. I feel that my sleep problems may have unknowingly

> led to CFS but the doctors tell me its the CFS that led to the poor

> sleep?

>

> Any thoughts?

>

>