Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 > >> > ***There isn't enough choices here. My illness was acute > onset/stressed. At the time I was just getting over a very bad tooth > infection and a cold that had lasted six months as a result of the > tooth infection. Three days into the antibiotics I got very-sudden > onset. It was just like someone had flipped a switch. > > Bernie > Ditto for me Bernie, Acute Sudden Onset/Stress My stressors were Cat Scratch Fever, Systemic Strep, Unknown Virus (probably reactivated EBV). And a divorce, working two jobs. I was well the day before I got sick. Truly. Up and about, working two jobs - feeling dizzy, woozy (already had swollen lymph nodes from cat scratch). Next day - bedridden. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Hi all I have changed the poll.Already voted members. Please excuse me for the change. If you have already voted could you please re vote as poll has automatically restarted and cancelled previous votes. bw nil Re: New poll for > >> >>> >> ***There isn't enough choices here. My illness was acute >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 and also Could someone give me definition of acute versus gradual. Some says acute is not being able to walk next day.Should the symptoms be that high in order the illness to be evaluated as acute or would having never ending flu one day and never feeling fine again be considered as acute,too? bw nil Re: New poll for > >> >>> >> ***There isn't enough choices here. My illness was acute >> onset/stressed. At the time I was just getting over a very bad tooth >> infection and a cold that had lasted six months as a result of the >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Enter your vote today! A new poll has been created for the group: Should all psychological treatments for CFIDS/FM be banned as discussion topic from this list. This would include Cognitive Behavior Theraphy and Gupta. o Yes, ban o No, do not ban o Restrict to only most recent one (i.e. Gupta but no CBT) To vote, please visit the following web page: /surveys?id=2728634 Note: Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the web site listed above. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 > > and also > > Could someone give me definition of acute versus gradual. Some says acute is > not being able to walk next day.Should the symptoms be that high in order > the illness to be evaluated as acute or would having never ending flu one > day and never feeling fine again be considered as acute,too? > bw > nil Here is my opinion, may not be scientific. I don't think acute must be can't walk the next day. I think have the flu and it never going away would be acute. The triggering over into the cascade is what I would use to evaluate sudden onset vs gradual. Mine was sudden but gradual is very real and devastating too. (I think this would be worse to me - you question yourself). I would define sudden onset as occurring swiftly, you can't put a tight time frame because some triggers are viral, some bacterial. Plus the person who is ill, could have a strong constitution and be able to fight a little longer. My pancreatitis is not acute, it is chronic. It sure feels acute but the guideline for acute vs. chronic pancreatitis is vomiting. That is usually when you are admitted into the hospital. To be really technical, my CFIDS started when I was nine and was hospitalized for pesticide exposure. The start of the immune cascade. Some issues but still healthy Then college, when I had EBV. More issues, more cascade. Then my ACUTE CFIDs in '99,FINAL trigger over to full blown cascade. then my relapse in '03. I am rambling, not enough sleep. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 I cannot even believe this ban is up for discussion. Who would know better than PWCs that the mind and body is connected? Nobody is saying that CFS isn't a " real disease " just because we can find some relief with meditation and mind techniques. I will try most anything that offers some hope of a better quality of life. Also I would like to know what could be more experimental than something like Gupta. CFS is a real illness with real symptoms. Let's not close our minds just because we have a fear of people saying this illness is all in our heads! Lynn > > > Enter your vote today! A new poll has been created for the > group: > > Should all psychological treatments for CFIDS/FM be banned > as discussion topic from this list. This would include Cognitive > Behavior Theraphy and Gupta. > > o Yes, ban > o No, do not ban > o Restrict to only most recent one (i.e. Gupta but no CBT) > > > To vote, please visit the following web page: > /surveys?id=2728634 > > Note: Please do not reply to this message. Poll votes are > not collected via email. To vote, you must go to the > web site listed above. > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 If you really mean " you cannot even believe " a ban is up for discussion, you have no earthly idea what the ME/CFS patient population has been battered with for over 20 years, or the extent to which it has suffocated biomedical science.. Many of us do practice some sort of meditation, brain work, etc. or we would not be here. When " psychological " threads take off on this list, the biomedical (known and needed) goes into the toilet, marketing steps up, " original patients " ...M.E.--icd-CFS get drowned out, and alot of arguing ensues. The concerns here are far more than just " fear of people saying this illness is all in our heads! " IT's much more monstrous than that...what has been done to patients and what is planned. Also, perhaps you don't realize how severe many patients on this list are..who are reading, but too sick to even post or express themselves, much less engage in such debate. Or, how distressing it is to see that topic dominate. I agree that we should not be without psychological and other tools to relieve and help us navigate this nightmare. And they have a place in managing our illness. But the fields themselves are being quite corrupted today. I don't think that sorting through all of that entanglement needs to be on this list. The internet and the entire planet is filled with CFS-psychological and other mind/body resources and forums. No one is being deprived if it's not on this list. But the focused resources and forums for ME/CFS biomedical treatment are slim and slimming. Just when there is much more of it happening and on the horizen. How many here have even seen recent ME/CFS Conference reports and videos of current Scientific findings, and how much time is being spent on addressing them? How quickly does the work of Doctors and Scientists actually studying the disease zip by or even get shot down? Cognitively impaired patients, many in severe or late stages, who are hanging on to their bodily functions and lives, by a thread, deserve to have that focused forum. BW, Katrina > > > > > > Enter your vote today! A new poll has been created for the > > group: > > > > Should all psychological treatments for CFIDS/FM be banned > > as discussion topic from this list. This would include Cognitive > > Behavior Theraphy and Gupta. > > > > o Yes, ban > > o No, do not ban > > o Restrict to only most recent one (i.e. Gupta but no CBT) > > > > > > To vote, please visit the following web page: > > /surveys?id=2728634 > > > > Note: Please do not reply to this message. Poll votes are > > not collected via email. To vote, you must go to the > > web site listed above. > > > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 By the way, this CFSFMExperiemntal website has a dizzying array of rotating advertisements from at the bottom of the message page. The last one I saw was Chronic Fatigue Syndrome...Read about Mental Conditions at Revolution health. com. More coming, I'm sure. K > > > > > > > > > Enter your vote today! A new poll has been created for the > > > group: > > > > > > Should all psychological treatments for CFIDS/FM be banned > > > as discussion topic from this list. This would include Cognitive > > > Behavior Theraphy and Gupta. > > > > > > o Yes, ban > > > o No, do not ban > > > o Restrict to only most recent one (i.e. Gupta but no CBT) > > > > > > > > > To vote, please visit the following web page: > > > /surveys?id=2728634 > > > > > > Note: Please do not reply to this message. Poll votes are > > > not collected via email. To vote, you must go to the > > > web site listed above. > > > > > > Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 > > > > > > > > > Enter your vote today! A new poll has been created for the > > > group: > > > > > > Should all psychological treatments for CFIDS/FM be banned > > > as discussion topic from this list. This would include Cognitive > > > Behavior Theraphy and Gupta. > > > > > > o Yes, ban > > > o No, do not ban > > > o Restrict to only most recent one (i.e. Gupta but no CBT) > > > > > > > > > To vote, please visit the following web page: > > > /surveys?id=2728634 > > > > > > Note: Please do not reply to this message. Poll votes are > > > not collected via email. To vote, you must go to the > > > web site listed above. > > > > > > Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 Dan, I'm very sick from going out of town for a medical appont and breathing more smoke from weeks of fires here. Either my internet communication or eyes of the beholder may intepret my statments as contradictory, but they are not. Will get into that more when I'm able. Katrina > > > > > > > > > > > > Enter your vote today! A new poll has been created for the > > > > group: > > > > > > > > Should all psychological treatments for CFIDS/FM be banned > > > > as discussion topic from this list. This would include Cognitive > > > > Behavior Theraphy and Gupta. > > > > > > > > o Yes, ban > > > > o No, do not ban > > > > o Restrict to only most recent one (i.e. Gupta but no CBT) > > > > > > > > > > > > To vote, please visit the following web page: > > > > /surveys?id=2728634 > > > > > > > > Note: Please do not reply to this message. Poll votes are > > > > not collected via email. To vote, you must go to the > > > > web site listed above. > > > > > > > > Thanks! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 Always overstating! Where are all the psychological you're talking about. The scientific conferences are available but I see little discussion of those. My newsletter just focused entirely on Klimas and the immune system - not a peep from this group so far as I can tell. Good research shot down by psych people on the list (?????) The point is that people already present in this forum have come forward and said yes, this is helping- and they got shot down and quite frankly insulted with comments that they have psychological problems and basically should not be participating on this list. When I put forward a quote from someone who's had CFS for 20 years and has tried everything and is seeing remarkable (not complete health) but neverthess remarkable progress from Gupta I would think something that would be welcomed and eagerly investigated by everyone. Apparently not. The need to be politically correct can be more powerful than the commitment. By the way - before you decide the Amygdala Program is not for you why don't check it out. Ashok has released the first several DVD's of the program - they explain it. You can view them http://www.cfsrecovery.com/ From: kattemayo <kattemayo@...> Subject: Re: New poll for Date: Thursday, July 3, 2008, 4:06 AM By the way, this CFSFMExperiemntal website has a dizzying array of rotating advertisements from at the bottom of the message page. The last one I saw was Chronic Fatigue Syndrome...Read about Mental Conditions at Revolution health. com. More coming, I'm sure. K > > > > > > > > > Enter your vote today! A new poll has been created for the > > > group: > > > > > > Should all psychological treatments for CFIDS/FM be banned > > > as discussion topic from this list. This would include Cognitive > > > Behavior Theraphy and Gupta. > > > > > > o Yes, ban > > > o No, do not ban > > > o Restrict to only most recent one (i.e. Gupta but no CBT) > > > > > > > > > To vote, please visit the following web page: > > > http://groups. / group/CFSFMExper imental/surveys? id=2728634 > > > > > > Note: Please do not reply to this message. Poll votes are > > > not collected via email. To vote, you must go to the > > > web site listed above. > > > > > > Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 " The scientific conferences are available but I see little discussion of those. My newsletter just focused entirely on Klimas and the immune system - not a peep from this group so far as I can tell. " Why is that? I have tried a couple of times to post some interesting research and there " not a peep " . Instead we drop back to talking about soy and garlic. (Good topics but there is a lot of good research going on now, seems we could discuss that too). Keep posting that research, it is a tremendous service and I am very thankful for the work that you do. Marti Quote Link to comment Share on other sites More sharing options...
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