Re: Longstanding gut issue.

July 12, 2008

Hi Blake,

Has she been tested or treated for Dysautonomia, such as Neurally Mediated

Hypotension?

It can really contribute to digestive problems, including constipation, due to

incorrect blood flow to the stomach for the digestive process.

I assume she's had ruled out things such as gall bladder or tumor?

I hope patients of CFS Specialists are still on this list, becasue a number of

them have gut protocols that we may not have seen before.

I remember that some patients cannot tolerate some probiotics. But I don't know

which ones, or the details. We used to have alot of threads about it, but also

there are new ones and new info, I'm sure.

BW,

Katrina

>

> Dear list,

>

> Any thoughts on improving this women's gut or what may be causing the problem?

>

> This women with severe CFS (32 YO) has sharp stomach pain after all meals. The

following is what she is doing gut wise:

> -Enzymes with meals (Dipan-9 by Thorne).

> -Betaine HCL-pepsin with meals (Thorne).

> -VSL#3 (1/day) probiotic.

> -Diflucan daily and previously nystatin daily.

> -Very hypoallergenic diet/low sugar diet. She only eats sweet potato, chicken,

spinach, carrot, zylitol, fresh ginger tea, camomile tea, Aminoplex rice protein

drink with about 10 raspberries.

> -Fish oil + glutamine (2000 mg).

>

> We have tried cycling up and down with Betaine HCl and enzymes with no further

benefit. As she has so many food intolerances multi-herbal combinations don't go

down well with her. She is trying to reduce stress, on bio-identical hormones,

among other things. She was negative for H. pylori when checked last year.

Negative for parasites using two good (as good as they get anyway) labs. She

also has constipation unresponsive to natural and pharmaceutical laxatives. She

now uses enemas.

>

> Any thoughts would be greatly appreciated!

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

July 12, 2008

Hi Katrina,

Thanks for your email! She has very low blood pressure, dizziness, can't

tolerate sitting up, sensitivity to light/sound/touch, etc. So I'm sure she does

have dysautonomia. Is there a specific treatment for this condition, rather than

taking a more general approach?

Best regards,.

Blake Graham

Re: Longstanding gut issue.

Hi Blake,

Has she been tested or treated for Dysautonomia, such as Neurally Mediated

Hypotension?

It can really contribute to digestive problems, including constipation, due to

incorrect blood flow to the stomach for the digestive process.

I assume she's had ruled out things such as gall bladder or tumor?

I hope patients of CFS Specialists are still on this list, becasue a number of

them have gut protocols that we may not have seen before.

I remember that some patients cannot tolerate some probiotics. But I don't

know which ones, or the details. We used to have alot of threads about it, but

also there are new ones and new info, I'm sure.

BW,

Katrina

>

> Dear list,

>

> Any thoughts on improving this women's gut or what may be causing the

problem?

>

> This women with severe CFS (32 YO) has sharp stomach pain after all meals.

The following is what she is doing gut wise:

> -Enzymes with meals (Dipan-9 by Thorne).

> -Betaine HCL-pepsin with meals (Thorne).

> -VSL#3 (1/day) probiotic.

> -Diflucan daily and previously nystatin daily.

> -Very hypoallergenic diet/low sugar diet. She only eats sweet potato,

chicken, spinach, carrot, zylitol, fresh ginger tea, camomile tea, Aminoplex

rice protein drink with about 10 raspberries.

> -Fish oil + glutamine (2000 mg).

>

> We have tried cycling up and down with Betaine HCl and enzymes with no

further benefit. As she has so many food intolerances multi-herbal combinations

don't go down well with her. She is trying to reduce stress, on bio-identical

hormones, among other things. She was negative for H. pylori when checked last

year. Negative for parasites using two good (as good as they get anyway) labs.

She also has constipation unresponsive to natural and pharmaceutical laxatives.

She now uses enemas.

>

> Any thoughts would be greatly appreciated!

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

July 12, 2008

I also have " gut " problems. As for constipation the best remedies I have

found are magnesium (milk of mag if acute) otherwise lost of mag tabs,

lots of vit C, water and fiber. . . another thing I have found is that

lots of sleep helps me. I suppose this is spastic colon so if I get

tired or stressed and with CFS-that means most of the time, I get

constipated. My Dr. suggested biotin as another remedy for candida. The

above mentioned things are me simplified version of everything I have

used over the 20 some years that I have been sick. They are tried and

true and give me relief every time. However I must be diligent as I get

very sick from toxins if I don't keep it moving.

Here is another thought. Your list makes me cringe. I have a gazillion

things that the Dr. has recommended and it is so stressful with brain

fog to deep track of all these. Keep the regime as simple and stress

free as it can be.

Gail

Blake Graham wrote:

>

> Dear list,

>

> Any thoughts on improving this women's gut or what may be causing the

> problem?

>

> This women with severe CFS (32 YO) has sharp stomach pain after all

> meals. The following is what she is doing gut wise:

> -Enzymes with meals (Dipan-9 by Thorne).

> -Betaine HCL-pepsin with meals (Thorne).

> -VSL#3 (1/day) probiotic.

> -Diflucan daily and previously nystatin daily.

> -Very hypoallergenic diet/low sugar diet. She only eats sweet potato,

> chicken, spinach, carrot, zylitol, fresh ginger tea, camomile tea,

> Aminoplex rice protein drink with about 10 raspberries.

> -Fish oil + glutamine (2000 mg).

>

> We have tried cycling up and down with Betaine HCl and enzymes with no

> further benefit. As she has so many food intolerances multi-herbal

> combinations don't go down well with her. She is trying to reduce

> stress, on bio-identical hormones, among other things. She was

> negative for H. pylori when checked last year. Negative for parasites

> using two good (as good as they get anyway) labs. She also has

> constipation unresponsive to natural and pharmaceutical laxatives. She

> now uses enemas.

>

> Any thoughts would be greatly appreciated!

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

July 13, 2008

Dear Group,

I had constipation for years and I suffered tremendously. It was so bad that I

ended up doing enemas with about 2 liters ( about 2 quarts) or water every two

days. When I did not do the enema I got a headache, and my heart raced for hours

which made my exhausted. On a day like that I walked around the house for the

rest of the day like a shadow and there was no chance that I was able to go

anywhere, even by car. That was part of my life when I lived in the US and I had

tried many American drugs without much success. In desperation I was taking milk

of magnesia for a long time, before that stopped working and I had to go to the

enemas.

Then upon moving to Poland, my local family doctor prescribed a drug that is

commonly used in Europe, or in Poland at least. The drugs name is:

Duspatalin Retard 200 mg

The Latin name: Mebeverini hydrochloricum

Is is made by Sovay Pharmaceuticals in Holand.

You take one capsul in the morning and one at night, each one 20 minutes before

a meal. I have found that the timing makes a huge difference in efficacy of the

drug.

I was on the drug for about one year and I was able to go to the bathroom almost

normally, then I had to cut down to one pill a day in the morning, because I

started to have the opposite of the original problem. I stopped taking the drug

about one year ago because I became regular and I dont have any problems with

that now. One of my best friends who is a pharmacist in Warsaw, told me that

the drug works to relax the colon so that it can move freely.

I have no idea where the drug is available or if it is approved in the countries

were all of you are living. It helped me to have that part of my body working

well. Maybe your doctors can tell you if it is safe for you to take.

Mira

@...: gmilsem@...: Sat, 12 Jul

2008 21:28:56 -0700Subject: Re: Longstanding gut issue.

I also have " gut " problems. As for constipation the best remedies I have found

are magnesium (milk of mag if acute) otherwise lost of mag tabs, lots of vit C,

water and fiber. . . another thing I have found is that lots of sleep helps me.

I suppose this is spastic colon so if I get tired or stressed and with CFS-that

means most of the time, I get constipated. My Dr. suggested biotin as another

remedy for candida. The above mentioned things are me simplified version of

everything I have used over the 20 some years that I have been sick. They are

tried and true and give me relief every time. However I must be diligent as I

get very sick from toxins if I don't keep it moving.Here is another thought.

Your list makes me cringe. I have a gazillion things that the Dr. has

recommended and it is so stressful with brain fog to deep track of all these.

Keep the regime as simple and stress free as it can be.GailBlake Graham wrote:>>

Dear list,>> Any thoughts on improving this women's gut or what may be causing

the > problem?>> This women with severe CFS (32 YO) has sharp stomach pain after

all > meals. The following is what she is doing gut wise:> -Enzymes with meals

(Dipan-9 by Thorne).> -Betaine HCL-pepsin with meals (Thorne).> -VSL#3 (1/day)

probiotic.> -Diflucan daily and previously nystatin daily.> -Very hypoallergenic

diet/low sugar diet. She only eats sweet potato, > chicken, spinach, carrot,

zylitol, fresh ginger tea, camomile tea, > Aminoplex rice protein drink with

about 10 raspberries.> -Fish oil + glutamine (2000 mg).>> We have tried cycling

up and down with Betaine HCl and enzymes with no > further benefit. As she has

so many food intolerances multi-herbal > combinations don't go down well with

her. She is trying to reduce > stress, on bio-identical hormones, among other

things. She was > negative for H. pylori when checked last year. Negative for

parasites > using two good (as good as they get anyway) labs. She also has >

constipation unresponsive to natural and pharmaceutical laxatives. She > now

uses enemas.>> Any thoughts would be greatly appreciated!>> Blake Graham, B.Sc

(Honours)> Clinical Nutritionist>> [Non-text portions of this message have been

removed]>>

_________________________________________________________________

Connect to the next generation of MSN Messenger

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ltagline

July 13, 2008

See

http://www.druginfosys.com/Drug.aspx?drugCode=438 & DrugName=Mebeverine%20(HCl) & ty\

pe=1

R

Re: Longstanding gut

issue.

I also have " gut " problems. As for constipation the best remedies I have

found are magnesium (milk of mag if acute) otherwise lost of mag tabs, lots

of vit C, water and fiber. . . another thing I have found is that lots of

sleep helps me. I suppose this is spastic colon so if I get tired or

stressed and with CFS-that means most of the time, I get constipated. My Dr.

suggested biotin as another remedy for candida. The above mentioned things

are me simplified version of everything I have used over the 20 some years

that I have been sick. They are tried and true and give me relief every

time. However I must be diligent as I get very sick from toxins if I don't

keep it moving.Here is another thought. Your list makes me cringe. I have a

gazillion things that the Dr. has recommended and it is so stressful with

brain fog to deep track of all these. Keep the regime as simple and stress

free as it can be.GailBlake Graham wrote:>> Dear list,>> Any thoughts on

improving this women's gut or what may be causing the > problem?>> This

women with severe CFS (32 YO) has sharp stomach pain after all > meals. The

following is what she is doing gut wise:> -Enzymes with meals (Dipan-9 by

Thorne).> -Betaine HCL-pepsin with meals (Thorne).> -VSL#3 (1/day)

probiotic.> -Diflucan daily and previously nystatin daily.> -Very

hypoallergenic diet/low sugar diet. She only eats sweet potato, > chicken,

spinach, carrot, zylitol, fresh ginger tea, camomile tea, > Aminoplex rice

protein drink with about 10 raspberries.> -Fish oil + glutamine (2000 mg).>>

We have tried cycling up and down with Betaine HCl and enzymes with no >

further benefit. As she has so many food intolerances multi-herbal >

combinations don't go down well with her. She is trying to reduce > stress,

on bio-identical hormones, among other things. She was > negative for H.

pylori when checked last year. Negative for parasites > using two good (as

good as they get anyway) labs. She also has > constipation unresponsive to

natural and pharmaceutical laxatives. She > now uses enemas.>> Any thoughts

would be greatly appreciated!>> Blake Graham, B.Sc (Honours)> Clinical

Nutritionist>>

July 13, 2008

Dear ,

Can you resend the link? You did not make the whole address a link and people

may have trouble writing the whole thing into their search engines.

Mira

@...: rwindsor@...: Sun,

13 Jul 2008 18:03:20 +1000Subject: Re: Longstanding gut

issue.

See

http://www.druginfosys.com/Drug.aspx?drugCode=438 & DrugName=Mebeverine%20(HCl) & ty\

pe=1R Re: Longstanding gut issue.I

also have " gut " problems. As for constipation the best remedies I have found are

magnesium (milk of mag if acute) otherwise lost of mag tabs, lots of vit C,